NeuroTalk Support Groups - EMG's/Nerve Conduction Studies trigger burning???

Quote:

Originally Posted by ashawna (Post 641406)

I had a nerve conduction study done in August of 2003. It was ordered by a neurologist that suspected either carpel tunneling, the beginnings of Fibromyalgia and/or Peripheral Neuropathy. I found it painful and unpleasant during the NCS test. I felt weird when I left to head back to work that afternoon and my thumbs felt like they were burning. I went to bed that night and when I woke up I literally couldn't move. I felt like I had been hit by a Mack Truck. It felt like someone had pounded me all over my body with a baseball bat. It also felt like the Nerve Conduction Study tests were still going on. I was getting electrical shocks of shooting of pain up my legs and deep muscle spasms. From my elbows down to my finger tips were shooting electrical pains. I did not have the strength to life an object - I picked up a book and couldn't lift it up to read it. I had to lie in my bed for weeks not being able to do anything for myself. Unfortunately my Neurologist was away for a long conference and couldn't see me for about 6 more weeks. I finally had to go out of desperation to my local Emergency Department to do something about the pain. A Neurology Resident on call had never heard of anyone reacting to a NCS in this way but suggested anyway that I be put on Neurotin starting at a small dose and working up to a higher does three times daily. The Neurontin did the trick quite quickly as far as pain management was concerned and some of the shooting pains and muscles spasms quieted down. Unfortunately the Neurontin had terrible side effects. I had difficulty with short term memory and felt like I had a brain fog. The side effects got progressively worse so I had to get off the Neurontin. It has been almost 7 years since the Nerve Conduction Study. I was eventually able to phase back into my work - but I was forced to cut down my work (and salary) to only two days a week. I just couldnt function like my old self anymore. I still have muscle weakness and fiery burning pain. I cant feel my toes, feet, fingers and hands at times. I cannot sit in a theatre chair, I own a memory foam mattress on my bed, and my easy chair is also extra padded with memory foam. I eventually was able to hold onto my book but have to prop it in a pillow on my lap to read it. I cannot hold it up for any extended periods of time. I have been to see specialists who to this day say that they cant believe that a Nerve Conduction Study could have caused all of this - they had never heard of it before. You can imagine the frustration of the people that you are going to for help are shrugging their shoulders and cant help you. One doctor was a little bit nicer to say that he thought that the NCS somehow triggered something that was already laying dormant in me. No one can convince me that that nerve conduction study didn't effect me in a negative way. I live in constant pain and continue to lose the feeling in my hand and feet. I can take nortryptilline 10mg once a day only to take the edge of the pain off - when we tried me on a higher dose I was sweating profusely right through my clothes - so I had to be content with just the 10mg dose up to today. No one can explain what happened to me back in 2003 I would like to find out so that it can be corrected. I had to quit dancing classes, all extra curricular activities that kept me fit, I had to cancel a meditation group that met in my home once a week because I couldn't sit in the chairs for the period of time to run the group. I cannot go on trips anymore because I can only sleep on memory foam beds only. I cant go to the theater or go see movies or shows - sitting in the hard narrow theater seats is excruciating. I now have a little grand daughter and I cant do the things that she wants to do with her nanny. She doesnt understand why I can play like everyone else can. If anyone could shed a light on what could have happened to me - please let me know. Its been 7 long, painful years.

Hello, i can see there are many people who have been hurt by this test. I realise the general public may be completely unaware what the after effects of this test are, and before you know it, you are in the exam room and (they) have not told us anything about what (they) are going to do. It seems the medical profession is unconcerned with how people are left after any procedure.
My father suffered through a lung biopsy, for example. He yelled out, help! help! this elderly man, to stop the procedure! they put him upside down! The doctors told me to wait outside that I shouldn't be in the room. (They) forbid me to be with him. He had skin as copper and beautiful as a penny, but after the biopsy,when he came out, he was as pale as a sheet. There is much abuse in medicine to the public and is designed to make money for (themselves), becasue (they) keep hidden as much as possible about how they will damage us.
Anyway, about your concern, I have knowledge about a place that does this procedure. It is the same situation. They don't care to let the patients go out of the office with more pain than when they came in. I am happy I found this website because there was question in my mind when one of my patients told me about this concern and she made me realise I am working in a place where (they) are hurting people! No one had ever told me what was going on behind closed doors. No one cared to say anything. but now I know. I would say no to any procedure. I just can't believe where this america has ended up. Its not happening in many other countries, mostly America that I know of.
The nervous system has poor circulation except the brain becasue we need oxygen to think hence blood vessels, but the rest of our bodys nerves have poor circulation. at the place Im at, they do cortizone shots too. that makes the nerves, as slow as they heal, to heal even slower, so people are not even aware that they are making themselves hurt for the rest of thier lives basically. the way our bodies can heal is when we let NATURE heal it. when another thing and another procedure and another is advised by our decietful doctors, the body cannot heal. it is too busy trying to break down the cortizone shot and trying to heal the damage from the EMG, all at the same time. the body heals at a certain speed with the right nutrition and the appropriate sleep, stress reduction and alternative treatments like meditation and breathing relaxation. The things we were born with inside. When we trust these doctors who prescribe a certain dose to everyone across the board. there is no discrimination to individuals bodies. our bodies are all different, they digest differently, our livers are different etc.
A lovely patient i was seeing at a nursing home died becasue she was the unlucky victim of some doctors medicinal experiment. she died and i cried!
what is happening out there is really really bad!
please send me a reply if you would like to. (c)