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Old 05-09-2007, 03:20 PM #11
daniella daniella is offline
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Thank you all. I'm feeling more hopeful but also because today is a better day though still in bed but more functioning. I live in Michigan but am willing to go out of state. My mom sent my results to the cleveland clinic and they felt right now they couldn't help. The mayo clinic there was a huge wait. I have an apt on Mon at the pain clinic. I'm willing to hear what they have to offer but fear because the pt made me worse and all the meds have too. I have another emg/ssp tomorrow. It just seems like it spreading as now in the other leg severe pain and my arm is numb. I didn't fast but the neuro said my blood sugar was normal. Before I had my nutrient deficiency blood test I asked if I should fast and they said no.After this test tomorrow my mom did more research about a place in Chicago that specializes in neuropathy.Thanks again.If I can help any of you. You all have been wonderful and helped me hold to hope.
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Old 05-09-2007, 03:56 PM #12
shiney sue shiney sue is offline
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For a diabectic test you must fast shame on that Neuro Dr. Yep chicago
try it. Not sure why the Clinic's feel they can't help you?? Any way i lived
in Michigan in the Ann Arbor and GP area a good part of my life. Pain
Clinic's do more then hand out meds,tell them your fears and i'm glad your
having a better day. Let us know about the pain Clinic. Have you tried
University of Michigan in Ann Arbor,or i know who wants to go downtown.
Henry Ford Hospital,i worked as a ER (Truuma) nurse at both for years.
To bad about Cleveland Clinic it would have been close. But Chicago isn't
that far either. Stay in bed, if you don't like PC turn around and leave,
but try to give them a look see. Sue
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Old 05-09-2007, 04:09 PM #13
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Default Jack Miller Center

Daniella,
The center in Chicago may well be the Jack Miller Center for peripheral neuropathy founded by an idiopathic PN sufferer some years ago. They are part of the University of Chicago hospital system which is very good. The link follows
http://millercenter.uchicago.edu/
If Sue's suggewstion about Henry Ford Hospital doesn't work ourt maybe you could contact the Jack Miller Center. They do both PN research and clinical evaluations. The website has some really good links to explain the types of PN, causes, diagnostic procedures, etc.
Best of luck - hope you get some real relief soon.
Alkymst
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Old 05-09-2007, 04:40 PM #14
shiney sue shiney sue is offline
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Ah ha you beat me to the punch Alkymst. My Daughter-in-Law is a
Psychiarist from the Chicago area,she highly recommends the Jack Miller
Center for Peripheral Neuropathy. Then she reminded me my Neuro helped
start it. Whoops!! I know if my neuro goes back,i'm going with her. Oh I
live in Columbia Mo. another College and Hospital town. Sue
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Old 05-09-2007, 04:48 PM #15
daniella daniella is offline
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Hi. I think that place in Chicago is the one my mom is looking into. We called u of m but were little help. I'm dealing mostly with Beaumont docs. I'm keeping an open mind about the pc just scared but I will tell them plus my mom is coming so will help.I'm really not that confident in my neuro though was recomended by everyone. Well will see after the tests tomorrow. Like I said I would be willing to go to Japan for treatment to be free of pain.Thank you again.
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Old 05-09-2007, 05:17 PM #16
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Default ahhh haaaa

Ok now i know, Beaumont was a good Hospital my Sister-in -law goes
there use to work there. They live in South Lyon area but she still goes
there. I also had a cousin who was a Dr. there,but he's retired. I am
glad your mom is coming,sounds good you will work it out. Oh, if your
to go to Japan your dragging my body with you. I'm waiting for my
first Grandchild he was do May 1st,but still not here,my Daughter is having
him at home with a midwife,her husband a big bathtub,and a few thousand
close friends. Maybe that's why he shy. They live in Portland,Or so there's
also a webcam for me,she's braver than i am.. Sue
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