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02-01-2008, 09:52 AM
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#11 | ||
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In Remembrance
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This is an amazing story. May I reprint it at the TOS site? Why? Because you're such a survivor! I am in awe of you! I have some similar symptoms, but we have mostly upper body with severe nerve pain and loss of use of arms / hands. We have a surgery where they remove a cervical rib and muscle area called scalenes. But I am going to attach the link so that we also remember about nutrition. God bless you Cheryl. You're my idol now. |
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02-10-2008, 02:18 AM
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#12 | ||
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New Member
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Hi Vanessa! I have Prominent Sensory Polyneuropathy and have much muscle weakness in both upper arms and both legs, right leg especially. My understanding is that since I have much demyelinating and axonal involvement, the nerves that control the muscles, well can't always do their job as adequately as they use to. As you mentioned, just going through the grocery store is a big challenge. . .I have to hang onto a cart or my thigh muscles with cramp up and spasm. I also have the pins and needles, the
"Electric Shock" sensations (boy they are fun!), and extensive body burning that is chronic. Have had a dull pounding headach now for 5 weeks. Doc can't figure out why. My blood work is all good, vitals are great. It's hard for me to exercise as I also have moderate lumbar stenosis, which causes me alot of spinal pain. But hey, could be worse. My days are what I decide to make of them, and I usually can deal with it all with a smile and some laughter. Blessings, BevAnn Quote:
__________________
"Be True To Your Work, Your Word, Your Friends" |
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02-11-2008, 04:00 PM
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#13 | |||
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Magnate
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Muscular weakness is not unusual with PN. Muscle biopsies done in areas where there is neuropathy are often quite abnormal. Muscle biopsies done farther away from neuropathic regions (usually the stocking and glove areas) are generally normal unless some other condition is going on.
Many hereditary myopathies are associated with neuropathies... You can have neurogenic myopathies. You can get sarcopenia from aging, or disuse....sarcopenia is like osteopenia...one is bone (osteo) one is muscle (sarco). People with PN generally do respond to exercise. A combination of aerobic and resistance training, stretching and balance work it best. I think a lot of PTs are discouraged these days as it used to be a great profession to go into and now insurances have limited benefits....they seldom get to see improvements in their patients except in the most motivated of the bunch. If you have a heritable neuropathy, the approaches are different, as those generally come with more arthropathy....altho any PN will disrupt proprioception in joints and cause joint deformity and can cause gait abnormalities which can result in fractures, ulcers or just plain deformity. Sensory nerves give and take positional input to the tendons and ligaments...and motor neurons move muscles...you generally don't have neuropathy without some muscle involvement....the amount of and location of that involvement Proximal or Distal or both depends on the kind of neuropathy you have, or if you a comorbid myopathic condition. There are some myopathies that do not respond to exercise, but in general, a consistent exercise program will result in gains in strength and improvement of affect. BTW, muscle biopsies are invasive and generally not done unless there is a suspected myopathy (muscle disease). It is surgical and causes substantial swelling...and yes, they hurt.....they are not done in neuropathic areas, such as in stocking and glove distributions as that is where they will be abnormal due to the neuropathy....they are done in areas where they feel the neuropathy would not produce muscle abnormality....if abnormal there, usually additional pathology is going on. |
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I'd received during a 2 year period of time.
But the PN burn, fatigue and now spinal cord pain whenever I put my chin to chest....felt like shock wave and burn down my spine...doc said...well...just dont do this! Well duh! Too many stupid "Sherlocks" each pointing in other directions.
That's what was wrong! B12 deficiancy, big time even thou was told it was normal level...232 is normal level? Yeah doc....and wearing a white coat makes you smart! NOT!
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