advertisement
Reply
 
Thread Tools Display Modes
Old 05-08-2007, 04:03 PM #1
hoibie@comcast.net hoibie@comcast.net is offline
Junior Member
 
Join Date: Sep 2006
Location: Boulder, CO
Posts: 95
15 yr Member
hoibie@comcast.net hoibie@comcast.net is offline
Junior Member
 
Join Date: Sep 2006
Location: Boulder, CO
Posts: 95
15 yr Member
Default Motor Neuropathy

My Neurologists said that I have Motor Neuropathy. Does anyone have info about this condition? I haven't seen that term in any of the posts.
__________________
Herb M
hoibie@comcast.net is offline   Reply With QuoteReply With Quote
Old 05-08-2007, 04:29 PM #2
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default Itis true that the majority of neuropathy sufferers--

-seem to have greater sensory than motor symptoms, but there are plenty of people who have more motor than sensory effects, especially with many of the autoimmune neuropathies, such as CIDP (chronic inflammatory demyelinating neuropathy) or its variants.

CIDP itself is thought to be the subacute/chronic version of Guillain Barre syndrome, an acute onset paralyzing motor-sensory neruopathy that is usually self-limiting, but can have many longer-term residual effects.

There are a number of autoimmune or compressive motor neuropathies; there are also many genetic/hereditary motor syndromes, and it often involves extensive testing to determine exactly what is happening. Have you gotten a more specific diagnosis? And, do you have any sensory symptoms?

Take a look at:

http://www.neuro.wustl.edu/neuromusc...y/proxmot.html

http://www.neuro.wustl.edu/neuromusc...mdem.html#cidp

http://www.neuro.wustl.edu/neuromusc....html#motorddx
glenntaj is offline   Reply With QuoteReply With Quote
Old 05-08-2007, 04:33 PM #3
hoibie@comcast.net hoibie@comcast.net is offline
Junior Member
 
Join Date: Sep 2006
Location: Boulder, CO
Posts: 95
15 yr Member
hoibie@comcast.net hoibie@comcast.net is offline
Junior Member
 
Join Date: Sep 2006
Location: Boulder, CO
Posts: 95
15 yr Member
Default

I have had neuropathy for several years. Pain is minor. My toes are numb and stiff and feel uncomfortable
__________________
Herb M
hoibie@comcast.net is offline   Reply With QuoteReply With Quote
Old 05-08-2007, 06:16 PM #4
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default I have met many....

who have multifocal motor neuropathies while we were receiving IVIG at the doctors' office or at the hospital. For most it is the muscle pain, weakness and cramping that are the worst..when it is at the worst.

Check out the resources at www.immunedisease.com for some of the basics. It is a very close relative to many neuropathies, GBS and CIDP. That your pains are minor makes you very fortunate so far. Be sure to see your neuro on any regular basis tho, for blood tests to prevent any possible problems. This isn't meant to scare you...I'm talking preventative medicine here only. - j

PS - no pain is really minor tho is it? It's YOUR pain, after all!
dahlek is offline   Reply With QuoteReply With Quote
Old 05-08-2007, 06:25 PM #5
rose rose is offline
Member
 
Join Date: Aug 2006
Location: Northern California
Posts: 732
15 yr Member
rose rose is offline
Member
 
Join Date: Aug 2006
Location: Northern California
Posts: 732
15 yr Member
Default

It is important also to make sure B12 deficiency hasn't been missed. It can cause predominantly sensory or motor problems, and the damage will increase until it's taken care of. In that case, central nervous system damage can be avoided if enough B12 is taken in time.

It's cheap and safe, so the possibility can be covered without risk.

rose
__________________
I will be adding much more to my B12 website, but it can help you with the basics already. Check it out.

.
rose is offline   Reply With QuoteReply With Quote
Old 05-09-2007, 07:51 AM #6
Brian Brian is offline
Senior Member
 
Join Date: Oct 2006
Location: Australia
Posts: 1,256
15 yr Member
Brian Brian is offline
Senior Member
 
Join Date: Oct 2006
Location: Australia
Posts: 1,256
15 yr Member
Default

Hi Herb, does your neuro have any idea why this is happening to you, has the neuro been looking for a cause ?
Brian is offline   Reply With QuoteReply With Quote
Old 12-09-2009, 12:54 AM #7
eagleflight eagleflight is offline
New Member
 
Join Date: Aug 2009
Location: Washington state
Posts: 4
10 yr Member
eagleflight eagleflight is offline
New Member
 
Join Date: Aug 2009
Location: Washington state
Posts: 4
10 yr Member
Default Do you mean Multifocal Motor Neuropathy?

Hello, I have had Mulitfocal Motor Neuropathy for 20 years. Ask your doctor if this is what he means. I'm assuming it would be very similiar. What type of symtoms are you experiencing?


Quote:
Originally Posted by hoibie@comcast.net View Post
My Neurologists said that I have Motor Neuropathy. Does anyone have info about this condition? I haven't seen that term in any of the posts.
eagleflight is offline   Reply With QuoteReply With Quote
Old 12-11-2009, 03:36 PM #8
Raglet's Avatar
Raglet Raglet is offline
Member
 
Join Date: Jul 2008
Posts: 229
15 yr Member
Raglet Raglet is offline
Member
Raglet's Avatar
 
Join Date: Jul 2008
Posts: 229
15 yr Member
Default

hi there

I have sensory motor neuropathy, and my motor symptoms predominate. My sensory symptoms are numbness up to my knees but my motor symptoms are definitely the most annoying. A lot of my muscles have become spastic as a result of being so weak due to the motor neuropathy (they don't get any input from my nerves).

If you have numbnes as well, then I would think that you have sensori-motor neuropathy as well. My nerve conduction studies show sensori-motor axonal neuropathy.

You are right, there are not many on this board with motor symptoms, but there are a few of us.

cheers
raglet
Raglet is offline   Reply With QuoteReply With Quote
Old 12-11-2009, 03:51 PM #9
echoes long ago's Avatar
echoes long ago echoes long ago is offline
Senior Member
 
Join Date: May 2008
Location: new york
Posts: 1,581
15 yr Member
echoes long ago echoes long ago is offline
Senior Member
echoes long ago's Avatar
 
Join Date: May 2008
Location: new york
Posts: 1,581
15 yr Member
Default

i have sensory motor neuropathy also with numbness now up to my knees. It has really taken off in the last 2 months, previously up to the bottom of my calves. As far as motor symptoms i just feel very heavy in the legs if i walk too fast and forget about running. i also get very heavy in the arms if i try to do something over my head. i get very tired easily also. otherwise i dont think i have any other motor symptoms.

what motor symptoms are you having raglet?
echoes long ago is offline   Reply With QuoteReply With Quote
Old 12-11-2009, 04:38 PM #10
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,428
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,428
15 yr Member
Default

I have CMT aka Hereditary Motor Sensory Neuropathy (HMSN). Yes, I have it all; motor and sensory neuropathy and it's hereditary.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Can being fit raise your risk of motor neurone disease? BobbyB ALS 0 04-17-2007 10:28 AM
Link suggested between soccer and motor neurone disease BobbyB ALS 0 04-02-2007 08:20 PM
Celiac Disease and Motor Neuropathy jccgf Peripheral Neuropathy 0 01-19-2007 07:38 PM
Celiac Disease and Motor Neuropathy jccgf Gluten Sensitivity / Celiac Disease 0 01-18-2007 07:07 PM
Motor neurone disease victim fights to the end BobbyB ALS 0 11-17-2006 10:07 PM


All times are GMT -5. The time now is 12:02 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.