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Idiopathic PN 09-13-2013 06:44 PM

Quote:

Originally Posted by lined_in_silver (Post 1014461)
Idiopathic-you sound like me a little. I have tried, but never commit, because I don't have a diagnosis yet for my PN.
Also, had the blood test done for Celiac and it was negative, but some will argue that the only true way to test is from a biopsy of the tissue itself. We just can't trust these blood tests in general, can we! Everyone you ask has a different answer !! B12 in particular has many variables, like the ranges considered normal, and intrinsic factor,

Anyway, I think for anyone with idiopathic p.n, it is always worth a shot to cut out gluten for as long as possible, then re introduce and note any symptoms.

Another thing I wanted to ask is if you have ever considered candida ? This is yeast overgrowth. A quick Google search will explain , if you're not familiar. The possible symptoms go on and on. You mentioned brain fog, mood swings and anxiety. I remember these in particular from working at a health food store for years.

Food for thought :-)

lined_in_silver,
Thank you for your post.
Candida may always be a possibility. I was reading a long list of the symptoms and I have some of them, e.g. brain fogginess, memory problems, bloating, etc. I dont have though the skin problems like mouth thrushes, rashes, etc. Its confusing because most of the symptoms can also be the symptoms of other diseases.

I am not sure if the testing for bacteria overgrowth (stool and blowing - I could not remember now the name of the test where you ingest sugar and you blow) is same for Candida. I had the test I mentioned but its negative. Does this rule me out?

i had a biopsy of the small intestine and celiac was ruled out.

Wide-O 09-14-2013 02:13 AM

I have recently personally learned that there may be many shades of grey between "no problem" and "celiac".

I had stopped eating wheat, not because of suspecting gluten intolerance, but because I wanted to hold back on fast carbohydrates.

After 4 months I tried eating some bread sporadically (as I'm nearing my ideal weight), and on another day some whole wheat pasta. I was amazed at how difficult it seems for my body to process the wheat. Immediately I felt slightly bloated after eating one piece of bread, and in both cases I felt hungry again after 3 hours, where I got used to not getting hungry at all for up to 8 hours after a meal.

My wife - who first reluctantly followed my diet, but is now over the moon with it - had exactly the same reaction.

I'm not talking about a severe reaction: just slightly uncomfortable, a feeling of having eaten too much (we hadn't). That feeling lingered for quite a long time.

It may be anecdotal, and I suppose it's still speculation, but it just might be that our bodies aren't really made to eat wheat (especially refined forms). I was really surprised, as I always loved whole wheat bread (fresh from the bakery here), and considered it healthy. At this point I don't think I will introduce it into my diet again, as I want to avoid eating anything that upsets my digestion and/or my PN.

Joano 09-14-2013 08:45 PM

Your description of the way you and your wife felt after eating wheat again pretty much sums up my experience too. I know I feel better not eating it. Also several articles have been written about gluten free helping people who are hypothyroid too--which is my case.


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