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Old 08-31-2013, 12:41 PM #11
Idiopathic PN Idiopathic PN is offline
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Originally Posted by ginnie View Post
I believe sunshine helps PN. I live in Florida, and try to get outside everyday. I also have some auto immune diseases, and moved here for just that reason.
I took a form of therapy called Photo chemotherapy, which is just masses of ultra violet light. This helped to put my auto immune disease into remission, for long periods of time. I was in a trial study that used this as part of the therapy.
I lived up north in the cold regions and since my move south to a warmer climate I do better. It has more than Vit.D to aid you. In my case the sunshine is a help. Ask your doctor about it, he may have some ideas for you involving artificial light in the home. ginnie
And i believe that sunshine helps me with my emotional well being. It lifts my spirit when i see a lot of sunlight in my living room, in the bedroom, bathroom. I love the sunlight in between the leaves when i walk outside.
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Old 08-31-2013, 01:00 PM #12
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could it have been the higher barometric pressure in the summer?

i was just in florida 3 weeks ago for 7 days, way too hot and humid for me.
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Old 08-31-2013, 03:08 PM #13
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Dr. Smith, I am from Florida, and a lot of retirees are coming here for the weather.
Hey, I know that. I was kidding. I've been to FL and to the SW. Half my family went to each to retire. To each their own. (But you can keep your palmetto bugs....
...we're goin' WEST! Just don't ask me when! )

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Old 08-31-2013, 03:34 PM #14
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Florida has bugs the size of sanitation trucks. Have to get sprayed once a year or more. ginnie
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Old 09-19-2013, 01:58 AM #15
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Iam vitamin D deficient (like so many people) and have been on D3 for a long time. I am just hypothesising that the direct sunshine might be more beneficial to autoimmune PN rather than the tablets.
I saw a doco about this today, there are new studies going on at Sydney Uni. apparently vitamin D deficiency is actually a problem here in Oz too. But what to do about Slip Slop Slap? How do we get enough sun, but not skin cancer?

Has the vitamin D helped your symptoms?
Thanks,
Anna
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Old 09-19-2013, 04:50 AM #16
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Skin cancer seems to be very much correlated with overdoing it - i.e. severe burning.

Sun will definitely age your skin, but for myself, I'm now trying to be out in the sun as much as reasonably possible, without lying down and "sunbathing". Just keeping active. Avoiding the hottest hours (like they do in Southern Europe). Go inside when/before it starts to sting. It feels good and it feels healthy. It works on several hormones, but even forgetting all that: it just feels good. Even Albert Camus was convinced that sun is extremely important.

Sure, it depends on the climate, and some people really have to protect themselves, there's not one golden rule. On the other hand, the "protection" factor on sun oils is calculated on a very thick covering - most people don't even use 20% of the intended/tested layer, as the correct covering will turn you into an oily blob. (and cost a small fortune)

I suppose it's one of these risks that we have to calculate for ourselves. Maybe avoiding sun and constantly using oils may be worse for your health in the long run. Or you may live longer but unhappier?

Just thinking out loud, and hope I don't have to eat my words.
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Old 09-19-2013, 05:24 AM #17
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I would like to jump in here on this thread about the sun.

People with lupus need to avoid direct sunlight. I had a drug induced lupus reaction last winter to lisinopril, a blood pressure drug. I avoided direct sun to some extent this summer.

Most of my lupus rash is on my forearms. They did not become inflamed this summer, but they did tan darker than usual, even with the little sun I received. My ANA's were normal, but I was cautioned not to get alot of direct sun anyway. I still did tan a bit anyway... it was so cold and cloudy I don't know how that happened. I wore long sleeves most of the summer!
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Old 09-19-2013, 11:28 AM #18
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Quote:
Originally Posted by Wide-O View Post
On the other hand, the "protection" factor on sun oils is calculated on a very thick covering - most people don't even use 20% of the intended/tested layer, as the correct covering will turn you into an oily blob.
http://www.youtube.com/watch?v=3jPaxiz8i_4

(original credit to the movie Robocop)

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Old 09-19-2013, 03:41 PM #19
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Arizona is 2nd in skin cancer just after Australia which is #1. Both are closer to the sun.
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Old 09-21-2013, 01:43 AM #20
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I saw this TED talk a while back about how sunshine releases big stores of Nitric Oxide stored in your skin. Apparently this has positive health effects like for heart health. But regarding pain, Nitrous Oxide is also basically what laughing gas is, the popular dentistry pain killer, so perhaps elevated levels in the blood are doing something to suppress nerve pain? Could explain the different effect of sunshine vs just vitamin d supplements, you don't get that big nitric oxide release with just the D supplements.

Last edited by mxmxmxmxmxmx; 09-21-2013 at 11:29 PM.
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