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Old 09-25-2013, 03:35 PM #21
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Originally Posted by Stacy2012 View Post
I got lucky in that my general practioner dr said right away that my PN was from my thyroid, which is amazing.

Very little is talked about in person or on the internet about thyroid causing PN. Yes you can find info but not in mass quantities like things like diabetes, etc.

And some say if you fix thyroid PN gets better/goes away. I wonder if anyone here has ever had that happen?????
Good for you, Stacy. I sure wish that would happen to me!
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Old 09-25-2013, 05:01 PM #22
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Oh, that did not happen to me.

My pn did get better initially when I started desicated thyroid meds, but in the year since then it has gotten worse. I just noticed today that my numb spots on my heels have completely come back, no longer numb. However the burning in my feet is the worse its ever been...well, not the worse, but it has gotten bad, can't work anymore, though I have learned ways to live with it.

MrsD are you saying you no longer have PN???? I did not know that!! That is amazing. I assumed since you post so much around here that you still deal with it.
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Old 09-26-2013, 06:01 AM #23
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I still have minor PN symptoms, but NOT the PN I had in my hands and feet back then with the hypothyroid. During my pregnancy 33 yrs ago, I lost 80% of the functions in both hands.

But after delivery, most returned. I didn't get diagnosed properly because my blood work appeared normal, but I did develop a goiter, that led to a radiouptake test, which was very abnormal, so then finally I was treated. By then my feet were numb pretty much, and my hands so so. I slept every night with carpal tunnel braces. My feet woke up slowly, tingling away, over time. The only numbness I have now are the tips of the two middle toes.

I do get burning sometimes too, but not often.

My PN is more or less stable now and not progressing at all.
I also have spurring in the left ankle and broken sesamoid bones in both feet. So those are mechanical problems unrelated to the compressive nerve problems I used to have with the HYPO.
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Old 09-26-2013, 07:16 PM #24
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Quote:
Originally Posted by mrsD View Post
I still have minor PN symptoms, but NOT the PN I had in my hands and feet back then with the hypothyroid. During my pregnancy 33 yrs ago, I lost 80% of the functions in both hands.

But after delivery, most returned. I didn't get diagnosed properly because my blood work appeared normal, but I did develop a goiter, that led to a radiouptake test, which was very abnormal, so then finally I was treated. By then my feet were numb pretty much, and my hands so so. I slept every night with carpal tunnel braces. My feet woke up slowly, tingling away, over time. The only numbness I have now are the tips of the two middle toes.

I do get burning sometimes too, but not often.

My PN is more or less stable now and not progressing at all.
I also have spurring in the left ankle and broken sesamoid bones in both feet. So those are mechanical problems unrelated to the compressive nerve problems I used to have with the HYPO.
This is very good to know. And it makes it all the commendable that you've gathered and shared so much knowledge about many PN forms/ causes/ treatments. Thanks!
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Old 09-27-2013, 10:37 AM #25
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This is very good to know. And it makes it all the commendable that you've gathered and shared so much knowledge about many PN forms/ causes/ treatments. Thanks!
I couldn't agree more.

Here's something else: a friend with neuropathy saw a doc here in LA who prescribed prednisone. He took a relatively short course of it and says his hands feel 95% better. I need to get more info from him, but in our initial talk his symptoms sounded a good deal like mine. Although one doc told him that his problem might have been caused by a flu shot, which he got (for some reason) while he was in the throes of pneumonia. Go figure.

Anybody have any thoughts on prednisone for treating PN?

Last edited by Balanchine; 09-27-2013 at 03:43 PM. Reason: new info
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Old 09-28-2013, 03:04 AM #26
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Anybody have any thoughts on prednisone for treating PN?
From: Peripheral Neuropathy Fact Sheet
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Inflammatory and autoimmune conditions leading to neuropathy can be controlled in several ways. Immunosuppressive drugs such as prednisone, cyclosporine, or azathioprine may be beneficial.
Prednisolone for neuropathy

prednisone for peripheral neuropathy

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Old 09-28-2013, 11:03 AM #27
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Thanks, doc. I'll have a look at those links. At first blush I have a feeling that the prednisone treatment wouldn't be helpful, or perhaps I should say prescribed, for me since mine is idiopathic. My friend seems to be suffering from some sort of auto-immune problem, maybe Guillain-Barre and/or reaction to a flu shot. He said that after 2 months on the pred the sensation came back to his hands 95%. I'd take 50 at this point.
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Old 09-28-2013, 09:07 PM #28
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i take prednisone for respiratory infections,over 40 in the last 12 years, and the prednisone has not helped my peripheral neuropathy pain, numbnessor inflammation. my cause is toxins.
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Old 09-29-2013, 01:47 PM #29
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i take prednisone for respiratory infections,over 40 in the last 12 years, and the prednisone has not helped my peripheral neuropathy pain, numbnessor inflammation. my cause is toxins.
Appreciate your input, echoes - and really sorry to hear it hasn't helped!
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