Originally Posted by antonina (Post 1019398)

sorry to report that they did not live up to the hype. i did, however, see dr. ahmet hoke @ hopkins (head of PN Dept) who was the most knowledgeable & forthcoming neuro i have seen in 14 years of coping with CIPN.

he spent more than an hour going over my test results. he also performed a punch biopsy & a NCS. here are his recommendations:

1) exercise (weak painful legs? a stationery bike or swimming)
2) reduce high triglycerides (known PN inducers)
3) treat my diabetes with meds since my diet & exercise approach wasn't working
4) if RLA works, keep using it

i cannot recall all his suggestions without digging thru my records but it was a very worthwhile visit. i wish i could see him on an ongoing basis but a trip from nyc is a giant hassle for me.

if you're coming east, i'd go to hopkins. most bang for your buck. oh btw, hoke takes medicare (if you have it). latov does not.

Originally Posted by Balanchine (Post 1019768)

Hmm. Well, things in general seldom live up to hype imho except maybe for Mozart and Bach. Unfortunately the brevity of my trip east will not allow for a jaunt Baltimoreward, though I would have liked it both for your MD rec and the crab cakes. Another time perhaps. Thanks very much for your kind help. And to the good Doctor S as well, per usual!

Originally Posted by antonina (Post 1019901)

you're very welcome! when/if u get to baltimore, check out Duda's crabcakes in the Fell's Point area....

Originally Posted by Dr. Smith (Post 1019944)

LOL! :ROTFLMAO: If I/we ever got to Baltimore, I think we'd be looking more toward the B&O Museum or Camden Yards! :D

Doc

Originally Posted by antonina (Post 1019993)

i didn't realize you were heading east with Balanchine!:hug:

Originally Posted by antonina (Post 1019993)

i didn't realize you were heading east with Balanchine!:hug:

Originally Posted by kaz75 (Post 1020170)

Dr. James Dyck is the top neurpathy doc in the world. He is at Mayo in Minnesota. He & his father (who is in his 90s & STILL researching) have discovered many various forms of neuropathy. He is as good as they come. He is also friendly & easy to talk to. I LOVED him!