I am not saying I "can't" make it through the flight. What I am voicing is my fears and how I deal with it and how my fears are now affecting my decisions.

The chi is heavy and can't be thrown around and I am not sure it would be considered a medical device.

It's not as bad as it probably sounds, it's simply me voicing my growing fears of the progression and most especially going away on trips and everything it means. What, do I buy a fan in every port? lol It's just overwhelming sometimes but not impossible which is the real dilema...I find myself constantly asking if it's worth the effort. Most days the answer is yes, because I can't stop living. And quite honestly, I am thankful my condition is not nearly half as bad as many folks on this board. It's confined to my feet and mostly just burning, but the burning is horrid, my toes swell like coconuts and I feel I am in the pit of hell. But it's my reality and days like this is mostly about fear of what may be coming in the future.

At home is my comfort zone...all the things I need to try and stop the flares. Public is scary if a bad flare starts.

Debi, thanks for sharing, you are right, this place is great and full of amazing information/people and I love it. And it's great for days like this when all you need is a place to vent, get it out, then pull up my big girl panties and push onward. :)

It's always inspirational to read here and be uplifted and also a blessing if I can ever contribute something for someone else. I would much rather contribute to lifting others up than wallowing in my own pitty, but it's nice to be able to do both. :winky:

Lynn, I too have read this forum and shed a tear while reading, along with lifting some prayers up. It's amazing how people can touch each other on the internet.

Thanks for being a shoulder to vent on today forum friends. :hug:

Stacey, It sounds like your in a great deal of Pain both mentally and physically however you feel your not at the pain level management stage yet?

Medication can and will provide a tremendous boost in quality of life for you and especially your family who suffer along with you.

I had a bad day, it's over now. Nothing is nearly as bad as it seems in the moment.

In our area, stores also post signs that if you need assistance getting your groceries/purchases, etc. to your car, just ask, and someone will help you—whether you needed/used an electric cart or not. If there are no signs, just ask anyway; there shouldn't be a problem.

Doc

Not for PN, but DW and/or I often carry a battery operated pocket fan from a dollar store. The blades are soft pliable plastic, so crushing in a pocket/purse isn't a problem.

Doc