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Old 11-03-2013, 11:52 AM #1
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Default Quality of life and PN

Apologies if this has been posted before, came across it on a Facebook group.

Quantifying quality is difficult, but according to this study PN can reduce your quality of life by up to 32 %.

Haven't thought about it yet, but like many stats, they may not reveal the full picture, and/or may wildly differ amongst individuals.

Still: http://www.ncbi.nlm.nih.gov/pubmed/23716362/
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Old 11-03-2013, 12:06 PM #2
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Default They hit the nail on the head with that one :)

My QOF has been reduced upwards of 75% or more. My whole life has changed in a year. I will keep going to whatever dr's I have to in order to get some quality of daily life. Forget working....I just want to be able to clean my house and buy groceries.....lol

Thanks for the post Wide-O

Debi from Georgia
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Old 11-03-2013, 01:12 PM #3
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to Wide - O
thank you so much for the post with the link. I will register to this on line library. Seems like there is a wealth of information there.

To Dbi
I agree with you Debi.!!
This neuropathy is completely debilitating for me some tjimes! I lost my job
Other than that, speak about quality of life. The neuropathy is so bad some days I have complete parastesia of arms, and weakness in hands, my hand has now begun to have tremors.

Just to ambulate is difficult when the autonomic neutropenia( I have that in addition) make me feel dizzy and loose balance.

so YES, it is correct that quality of life is effected.
I did not have access to this article Wide_O, so I have to learn once I can get in there, how they measured to come up with 30 %. Perhaps an average. Because there are many variable in the p[opulation of people with neuropathy.

Thakn
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