[Mads]

Please does anyone else experience internal tremors/shakes ?

Does anyone opinion what could be? Is it usual to experience tremors in PN or Erythromelalgia (EM) sufferers?

Apart from all the 'normal' PN symptoms and 'normal' EM symptoms i am getting frequent internal body/face tremors randomly during day and especially at night or when at rest. They are getting worse - now making me very nauseous . They are not anxiety attacks. I have suffered with panic attacks before and there is no hyperventilation, sweating chest pain dry mouth a feeling of dread, or a fear of dying . These are like a vibration -rippling fuzzy pulsing . Neurologist rather dismissive of my tremors as my MRI spine/brain, CT, bloods all negative. Having nerve conduction tests /EMG end of month.

Feeling so unwell. I dont need tremors too.

Thanks x