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Old 11-09-2013, 12:10 PM #11
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Quote:
Originally Posted by ElaineD View Post
How do others handle their PN?
Hi Elaine,

I spoze it depends—to a large part—on severity & progression of symptoms, and personality.

For some, PN is little more than a major nuisance; for others, it consumes every aspect of life and becomes incapacitating—and any/everywhere in-between.

One short answer might be, Do what you gotta do and don't sweat the small stuff—one day at a time.

Doc
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Old 11-09-2013, 08:38 PM #12
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I keep some of my symptoms at bay, and I believe I am slowing or stopping the progression of PN, by eating a plant-based diet, exercising, and managing stress with meditation & guided imagery. This type of healing is known by very few doctors and really hasn't caught on, but I believe it would help many PNers if they just tried it. I recommend no meat or dairy and eating plenty of whole plant foods, and keeping processed foods to a minimum. There are loads of studies that show animal products cause disease, and societies that eat a plant-based diet have much lower incidence of chronic disease. Based on what I have read, I believe people with an auto-immune disease have an especially good chance of being helped by a healthy lifestyle.
Ron
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Old 11-17-2013, 10:53 PM #13
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Originally Posted by ElaineD View Post

I have several other conditions, but this one, PN, is the most disabling of all. And to top it off, my family can't 'see the problem' and tend to think if I 'tried harder' I would be able to walk more and do more.
I definitely understand Elaine. I have a lot of health problems and I'm only 29. My family is understanding fortunately, but it seems no one else is. I work with mostly people that are significantly older than me and they don't get it at all, even though we work in healthcare and take care of patients as young as 18 that have worse problems than I do. I work 12 hour shifts (supposedly, I never leave on time) and can barely walk sometimes and they say "but you're young!" I was just diagnosed with PN, but I'm not entirely sure I believe that's what it is (see thread I posted)...
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Old 11-19-2013, 04:47 PM #14
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Originally Posted by ElaineD View Post
Hi all,

I'm new to this forum, but not to peripheral neuropathy. Mine was diagnosed in 2009, after an EMG, but no definite cause was ever found. I'm not diabetic, and extensive MRI/CT Scans and Spinal Tap ruled out most causes.

My Rheumatologist speculates that it may be prolonged use of an antibiotic from 2007-2010 that is known to cause PN.

I was just glad that is hasn't progressed, since at the time it was found I had no idea what would happen.

I have several other conditions, but this one, PN, is the most disabling of all. And to top it off, my family can't 'see the problem' and tend to think if I 'tried harder' I would be able to walk more and do more.

How do others handle their PN?

Hugs, ElaineD
Hi Elaine. I am new as well. I have PN in my hands and feet. I'm hoping it is from low B12. Have you had blood tests? Dealing with family is hard. I force myself to do stuff but prefer to rest most of the time. I hat being a stick in the mud!
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