advertisement
Reply
 
Thread Tools Display Modes
Old 11-10-2013, 06:58 PM #21
Synnove Synnove is offline
Member
 
Join Date: Jan 2013
Location: Florida
Posts: 314
10 yr Member
Synnove Synnove is offline
Member
 
Join Date: Jan 2013
Location: Florida
Posts: 314
10 yr Member
Default

I AM SORRY,
I got off the subject of the thread: BEST FOOD FOR NEUROPATHY.

Is there a thread or a good web site any one can suggest? Is it OK to just fallow a diabetic diet? By the way, by reading all the things here about food being bad for neuropathy, I think even the good old diabetic diet would be too liberal,
Perhaps, it is very individual. and people most have to try them self what is good for them?
Synnove is offline   Reply With QuoteReply With Quote

advertisement
Old 11-10-2013, 07:18 PM #22
ElaineD's Avatar
ElaineD ElaineD is offline
Member
 
Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
ElaineD ElaineD is offline
Member
ElaineD's Avatar
 
Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
Default

Ahh Mrs. D. The subject is statins.

I have taken them since they came on the market, because I have genetically outrageous cholesterol. This would be since 1990 or earlier.

And since three angioplasties with two stents for major CAD at age 57, in 1999, I have taken 80 MG of Lipitor a day (14 years).

My PN did not show up until 2008, after I had taken lots of nitrofurantoin (Macrobid) for chronic UTIs.

I looked into the Statin possibility, but really think that since I had taken them so long, and for almost 20 years before the PN showed up, that most likely they aren't the culprit.

I did take doses of Methyl B-12 for a year and a half, and didn't see any change.

I'm getting a EMG on Wednesday, so I will find out then what the status of my PN is.

It is so disabling. I am beginning to adapt to it, after 5 years or so, however.

Hugs, Elaine
ElaineD is offline   Reply With QuoteReply With Quote
Old 11-10-2013, 08:10 PM #23
skipper53bill skipper53bill is offline
Junior Member
 
Join Date: Apr 2013
Posts: 31
10 yr Member
skipper53bill skipper53bill is offline
Junior Member
 
Join Date: Apr 2013
Posts: 31
10 yr Member
Default

Quote:
Originally Posted by Synnove View Post
I AM SORRY,
I got off the subject of the thread: BEST FOOD FOR NEUROPATHY.

Is there a thread or a good web site any one can suggest? Is it OK to just fallow a diabetic diet? By the way, by reading all the things here about food being bad for neuropathy, I think even the good old diabetic diet would be too liberal,
Perhaps, it is very individual. and people most have to try them self what is good for them?
to be honest with you. i bought (ebay) dr. bersteins book who is a diabetic who cured his neuropathy and his autonomic neuropathy by keeping his blood sugars between 80-95 at all times. no more than 30 carbs a day. some veggies, all nuts, meats and eggs, of course no sugar and no fruits except for berries and that was it, oh and no starches, none. i am able too keep my blood sugars below 100, but sometimes falling too low in the 60s, since then the neuropathy has lessened around my throat and some on my face, but it graduated in my stomach and the intensity got worse in my legs and hand and arms. i wish anybody the best with this horrible disease. i just got on disability in jan. of 2013 and medicare kicks in july of 2014.
skipper53bill is offline   Reply With QuoteReply With Quote
Old 11-10-2013, 08:11 PM #24
skipper53bill skipper53bill is offline
Junior Member
 
Join Date: Apr 2013
Posts: 31
10 yr Member
skipper53bill skipper53bill is offline
Junior Member
 
Join Date: Apr 2013
Posts: 31
10 yr Member
Default

Quote:
Originally Posted by IllPn View Post
Statins have been mentioned I am on pravastatin. When I was off of it for a bit here and there, I ended up with higher cholesterol. What is suggested to do instead of taking this? I always have wanted to know why I have this - I have taken flagyl a couple times and wondered too if a neck injection could have caused this... are nerves like in your extremities that get injured to blame for this? I have several areas that have been pinched for yrs.
yes pinched nerves can cause neuropathy
skipper53bill is offline   Reply With QuoteReply With Quote
Old 11-10-2013, 08:21 PM #25
skipper53bill skipper53bill is offline
Junior Member
 
Join Date: Apr 2013
Posts: 31
10 yr Member
skipper53bill skipper53bill is offline
Junior Member
 
Join Date: Apr 2013
Posts: 31
10 yr Member
Default

Quote:
Originally Posted by Synnove View Post
hi Skipper 53 Bill

So, did you have all theese neuropathy symptoms before you were diagnosed with diabetes, 5 years ago?
Have you seen a Rheumatologist? Have you been checked for Sjoegreen Syndrome?
Sjoegren's have the symptoms with terrible neuropathy AND, important, DRY MOUTH Do you have dry eyes?

I have all theese symptoms you mentioned, full body small fiber,(also long fiber) and I also get burning inside of mucus membrane, all over. And I have autonomic neuropathy.
How is your GI functioning? Constipation, and slow digestion/absrbtion? Have you had a gastric Emptying studey? You should
How is your bladder functioning? If you wake up at night with dry mouth< perhaps it could be the Autonomic neuropathy doing that.
Ask for a test called Autonomic Reflex Study. It will test for functioning of your B/P and breathing. The autonomic nervous system controls your breathing.
( by the way, some of the symptoms are like mine)
6 years ago i first had the classic symptoms of burning, tingling, numb, pins and needles on the bottom of my feet. i went to the doctor and had a high a1c, i quit drinking 3 years ago and smoking 9 months ago, now i am finding out that statin drugs for my cholesyerol may be contributing to the problem, so no more statins for me.

yes i do have constipaion and now since my stomach started hurting a slow gi., so far my bladder is doing great.

doctor did tell me that the dry mouth is also autonomic neuropathy with some drooling here and there.i do not have insurance until medicare kicks in on july 2014, i was approved of disability in july of 2012. i wish everybody the best of health with this horrible disease.
skipper53bill is offline   Reply With QuoteReply With Quote
Old 11-11-2013, 06:55 AM #26
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Quote:
Originally Posted by ElaineD View Post
Ahh Mrs. D. The subject is statins.

I have taken them since they came on the market, because I have genetically outrageous cholesterol. This would be since 1990 or earlier.

And since three angioplasties with two stents for major CAD at age 57, in 1999, I have taken 80 MG of Lipitor a day (14 years).

My PN did not show up until 2008, after I had taken lots of nitrofurantoin (Macrobid) for chronic UTIs.

I looked into the Statin possibility, but really think that since I had taken them so long, and for almost 20 years before the PN showed up, that most likely they aren't the culprit.

I did take doses of Methyl B-12 for a year and a half, and didn't see any change.

I'm getting a EMG on Wednesday, so I will find out then what the status of my PN is.

It is so disabling. I am beginning to adapt to it, after 5 years or so, however.

Hugs, Elaine
Well after all that time, stopping now is not going to do much for you. The damage seems to be genetically driven, if you read that link I put in earlier on this thread.

But you will have to invest in high dose quality CoQ-10... watersoluble type is best and most effective. Studies show that by the 5 year mark of stating statins, 1/2 of your own CoQ-10 production is lost. The heart suffers the most, but muscles also can suffer when this nutrient is low.

The statin drugs were developed for familial hypercholesteremia...a seriously high cholesterol level that leads to early death. 400 (some say 300) and above. I knew a gal who had 800! But then the drug companies (Big Pharma) decided to market this for everyone...so studies were done (and some say arranged and massaged) to convince doctors to treat everyone, and the treatment goals were lowered consistently so that huge amounts of money could be made by all the Big Pharmas marketing statins. Zocor with its high lipophilic properties seems to be the most toxic now and there has already been warnings to lower doses of this particular type as it enters the brain and does damage there. Lipitor is a moderate lipophilic type also.

If you cannot get off your statin, you may be able to lower your dose. Dr. Jay Cohen has written a book on this, which states that most statins work in very low doses, and can be used that way more safely. For example Crestor now has a study showing 5mg twice a week got most people to a reasonable goal. That option of using a low dose and monitoring your levels, may reduce some of your risks. But there is no getting around the fact that statins are fairly toxic and cholesterol is not the enemy everyone thinks it is.

This researcher is doing alot of work on the benefits of cholesterol. You might want to read her links:
http://people.csail.mit.edu/seneff/
She also explains how important cholesterol is in the body, in a series of YouTubes with Dr. Mercola. Just type in her name to view those on YouTube.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 11-11-2013, 07:08 AM #27
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Quote:
Originally Posted by skipper53bill View Post
6 years ago i first had the classic symptoms of burning, tingling, numb, pins and needles on the bottom of my feet. i went to the doctor and had a high a1c, i quit drinking 3 years ago and smoking 9 months ago, now i am finding out that statin drugs for my cholesyerol may be contributing to the problem, so no more statins for me.

yes i do have constipaion and now since my stomach started hurting a slow gi., so far my bladder is doing great.

doctor did tell me that the dry mouth is also autonomic neuropathy with some drooling here and there.i do not have insurance until medicare kicks in on july 2014, i was approved of disability in july of 2012. i wish everybody the best of health with this horrible disease.
When you consume a high protein diet, as you are, then you need much more hydration to help remove all that nitrogen.
This could be part of your sleeping dry mouth. So make sure you are drinking enough water during the day.

Also you could be snorked up from the tomato intake from your diet. Tomatoes have double effect on you:
1) they contain solanine which is an alkaloid in the nightshade family. There are thoughts now that this is cumulative and that some people cannot get rid of it, so it causes reactions, like tingling, burning etc. The green in potatoes is a high concentration of solanine. Deadly Nightshade, a weedy vine with little red berries has huge amounts of solanine in it, and this accounts for its name and toxicity.

2) But tomatoes also are histamine foods, and release histamine in the body. This leads to tingling and burning, as well, and some people get nasal congestion as those membranes swell up. If this happens at night you end up breathing thru your mouth, because your nose is stuffed up. There are mechanical breathing aids to help with this... One is called Breathe Right.

When you eat tomatoes all the time, for flavor and variety etc, you lose track of what it can be like to NOT have these reactions, as you get used to them.

To do a elimination diet of suspected foods, you have to go without for at least 2 weeks or more. Then reintroduce the food slowly. Some reactions may be delayed a day or so, so watch for them. In my case even the small amounts of tomato in ketchup gives me tingling and burning (especially in the mouth and gums) now whereas before I never noticed it.

Another culprit of nightshades is paprika. It is in everything processed now just about....hot dogs, sausages, snacks, etc.
Black pepper is also problematic for some people...you might try avoiding black pepper too for a while. All the HOT sauces are derived from nightshade family peppers. These can be very very hard some people!
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 11-11-2013, 07:30 AM #28
skipper53bill skipper53bill is offline
Junior Member
 
Join Date: Apr 2013
Posts: 31
10 yr Member
skipper53bill skipper53bill is offline
Junior Member
 
Join Date: Apr 2013
Posts: 31
10 yr Member
Default

Quote:
Originally Posted by mrsD View Post
Well after all that time, stopping now is not going to do much for you. The damage seems to be genetically driven, if you read that link I put in earlier on this thread.

But you will have to invest in high dose quality CoQ-10... watersoluble type is best and most effective. Studies show that by the 5 year mark of stating statins, 1/2 of your own CoQ-10 production is lost. The heart suffers the most, but muscles also can suffer when this nutrient is low.

The statin drugs were developed for familial hypercholesteremia...a seriously high cholesterol level that leads to early death. 400 (some say 300) and above. I knew a gal who had 800! But then the drug companies (Big Pharma) decided to market this for everyone...so studies were done (and some say arranged and massaged) to convince doctors to treat everyone, and the treatment goals were lowered consistently so that huge amounts of money could be made by all the Big Pharmas marketing statins. Zocor with its high lipophilic properties seems to be the most toxic now and there has already been warnings to lower doses of this particular type as it enters the brain and does damage there. Lipitor is a moderate lipophilic type also.

If you cannot get off your statin, you may be able to lower your dose. Dr. Jay Cohen has written a book on this, which states that most statins work in very low doses, and can be used that way more safely. For example Crestor now has a study showing 5mg twice a week got most people to a reasonable goal. That option of using a low dose and monitoring your levels, may reduce some of your risks. But there is no getting around the fact that statins are fairly toxic and cholesterol is not the enemy everyone thinks it is.

This researcher is doing alot of work on the benefits of cholesterol. You might want to read her links:
http://people.csail.mit.edu/seneff/
She also explains how important cholesterol is in the body, in a series of YouTubes with Dr. Mercola. Just type in her name to view those on YouTube.
I did not take any pravastatin when I went to bed and I dont plan on taking anymore from what I have been reading, my a1c and blood sugars are to die for but my neuropathy keeps getting worse. Next time I go to walmart, I will pickup the qunol ultra coq10 you are talking about.

I am making a big meatloaf today and will be excluding any night shades too see what happens

what should my blood sugars be during the daytime' my doctor ignores the question and the ada guidelines are wrong. what should be th minimum and the maximum during the awakening hours, please let me know, thank you
skipper53bill is offline   Reply With QuoteReply With Quote
Old 11-11-2013, 08:07 AM #29
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

The consensus about blood sugars is always in flux.

There are those who insist on low values all the time. But now
there are studies coming out saying some elevation is acceptable with age.

Low values --below 80-90... that give symptoms should be avoided. Sweating, muscle twitches, panic feelings, shaking etc are signs of low glucose. Even rapid falls, from say 200 to 100 in a brief time period will give symptoms of "low" sugar.

This is why you should take readings all day long for a few days and compare them. You will find YOUR low... and high that way.

This link has an A1C calculator:
https://www.accu-chek.com/us/glucose...lculator.html#

What we are doing today with diabetes, is going to change IMO within the next 5 yrs. So nothing is really cast in stone.

There is a paper now online explaining how some elevation in A1C is normal with aging and not necessarily reflective of diabetes and shouldn't be "treated" because low sugars in the elderly now are connected to dementia development. So the baby boomer flood will provide alot of data and impetus to
treatment changes etc. Over treatment or over diagnosis of diabetes is just as harmful as the reverse IMO.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 11-12-2013, 04:12 PM #30
Electron's Avatar
Electron Electron is offline
Member
 
Join Date: May 2010
Location: Oklahoma USA
Posts: 263
10 yr Member
Electron Electron is offline
Member
Electron's Avatar
 
Join Date: May 2010
Location: Oklahoma USA
Posts: 263
10 yr Member
Default

I highly recommend the book Foods That Fight Pain, Neal Barnard. He links food to back pain, and lots of info on foods that trigger different types of pain, although he doesn't specifically address PN. Search for that title in this forum, and I list some of the triggers, but get the book. For starters, I would eliminate the whey protein (from milk). Milk is one of the triggers. Although you may have some plant products triggering your pain, I believe eliminating animal products is the best way to health.
Ron
Electron is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
skipper53bill (11-15-2013), v5118lKftfk (07-30-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Health Advice for Peripheral Neuropathy & Drug Induced/ Toxic Neuropathy Jesse M Peripheral Neuropathy 78 08-01-2015 08:59 PM
paraneoplastic/SF-non lenght dependent neuropathy/demyelinating neuropathy pelztier86 Peripheral Neuropathy 16 05-21-2013 12:16 PM
What are the best foods to eat for neuropathy skipper53bill Peripheral Neuropathy 8 05-08-2013 01:59 PM
Small Fiber Neuropathy (or Length-Dependent Neuropathy) plgerrard PN Tips, Resources, Supplements & Other Treatments 1 05-09-2010 06:56 AM
Super foods! bizi Weight Loss & Healthy Living 8 05-24-2008 06:17 PM


All times are GMT -5. The time now is 08:56 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.