Well now I am having these jerks/spasms when I lie down day at night.
It is discouraging to read online that this is another condition that does not seem like you can get rid of. One sit says it can be from PN. Does anyone have this? I sure don't want to be jerking all day long! Last night I was lying on my side and my mouth jerked open. It is all over back muscles, head, legs,... how do these things manifest themselves so fast?

I am hoping once I relax more this will go away but does not seem like it is something that will just go away? Thanks for any input and if anything helps with this...

i have them from time to time infrequently. they just come and go.

Yes... I have the same thing. Terrible jerks all over my body when I try to fall asleep. The only thing that seems to help is Ambien. Never had it until the neuropathy hit.

I have the same, the twitching/jerks cycle around my whole body every time i try to relax and sleep. and it came on with small fiber neuropathy last year

I found this old thread while searching for something else. I have SFN and I have this too when I try to sleep. Change in my diet, supplementation, exercise and sleeping in a timely manner all helped reduce and get rid of these for the most part. It still happen now and then, but rarely. The internal shaking when I'm lying down to sleep at night is the more common and almost nightly symptom, but that has calmed down mostly too.

if you are well hydrated and supplementing Magnesium you can get the rest you need to heal. If after you try everything you can and you are still losing sleep, Ambien will allow rest. I advise trying all else first for a couple of weeks. I have been off Ambien for six months now after a two year relationship and I am just now sleeping good enough to stop worrying about it. My jerking and internal quaking got better but I was doing everything at once. Sleep is essential, try for 5hrs a night. Good Luck, Ken in Texas.