advertisement
Reply
 
Thread Tools Display Modes
Old 11-30-2013, 03:51 PM #11
nilram nilram is offline
Junior Member
 
Join Date: Dec 2007
Location: Oregon
Posts: 72
15 yr Member
nilram nilram is offline
Junior Member
 
Join Date: Dec 2007
Location: Oregon
Posts: 72
15 yr Member
Default

Funny. A couple days after I heard about this FDA action, I went to 23andme's web site, bought their kit and now it's sitting on my desk waiting for me to spit into it. I've been putting it off for ages. It looks like the FDA letter prevents them from marketing, but not selling. Fortunately, the news of the FDA letter is free marketing for them, for a while at least.
__________________
May all beings have happiness and the causes of happiness.
May all beings be free from suffering and the causes of suffering.
May all beings rejoice in the well-being of others.
May all beings live in peace, free from greed and hatred.
nilram is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (11-30-2013)

advertisement
Old 12-02-2013, 07:21 PM #12
JoanB's Avatar
JoanB JoanB is offline
Member
 
Join Date: Sep 2009
Location: Pittsburgh
Posts: 739
10 yr Member
JoanB JoanB is offline
Member
JoanB's Avatar
 
Join Date: Sep 2009
Location: Pittsburgh
Posts: 739
10 yr Member
Default

I saw one of their commercials on TV yesterday...so I guess the FDA did not shut them down after all?
JoanB is offline   Reply With QuoteReply With Quote
Old 12-03-2013, 01:21 PM #13
Chemar's Avatar
Chemar Chemar is offline
Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 28,459
15 yr Member
Chemar Chemar is offline
Administrator
Community Support Team
Chemar's Avatar
 
Join Date: Aug 2006
Posts: 28,459
15 yr Member
Default

there is also a class action lawsuit now

http://www.forbes.com/sites/danmunro...ainst-23andme/

Interesting piece in Businessweek
http://www.businessweek.com/articles...ber-and-airbnb


Here is a petition as well
https://www.change.org/petitions/fda...-genomics-kits
__________________
~Chemar~


*
.


*
.


These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Chemar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (12-03-2013)
Old 12-04-2013, 07:43 PM #14
hopeful hopeful is offline
Member
 
Join Date: Aug 2009
Posts: 914
10 yr Member
hopeful hopeful is offline
Member
 
Join Date: Aug 2009
Posts: 914
10 yr Member
Default

I just received a brochure from 23andme a few weeks ago. I put it on the side so I could do it after the holidays. Needless to say, I'm disappointed!
hopeful is offline   Reply With QuoteReply With Quote
Old 12-21-2013, 09:04 AM #15
Marlene Marlene is offline
Member
 
Join Date: Apr 2007
Posts: 498
15 yr Member
Marlene Marlene is offline
Member
 
Join Date: Apr 2007
Posts: 498
15 yr Member
Default

Another article on this talking about how the insurance companies view this.

http://www.fastcompany.com/3022224/i...ance-companies
Marlene is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (12-21-2013)
Old 01-01-2014, 10:03 AM #16
ElaineD's Avatar
ElaineD ElaineD is offline
Member
 
Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
ElaineD ElaineD is offline
Member
ElaineD's Avatar
 
Join Date: Nov 2013
Location: North Carolina
Posts: 293
10 yr Member
Default NYTimes article about Genetic Testing

The author sent her required samples to three labs, with three DIFFERENT sets of results, some contradictory.

http://www.nytimes.com/2013/12/31/sc...ml?ref=science

"In the case of rheumatoid arthritis, though, the tests examined the same five markers, plus a few others, and delivered contradictory interpretations."

"J. Craig Venter, chief executive of his namesake institute and of Synthetic Genomics, was a pioneer in sequencing the human genome in 2000. Though he issued recommendations to genetic testing companies four years ago to help them improve their predictions, he remains skeptical of their clinical value."

“Your results are not the least bit surprising,” he told me. “Anything short of sequencing is going to be short on accuracy — and even then, there’s almost no comprehensive data sets to compare to.”

Buy Beware!

Hugs, Elaine
ElaineD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dr. Smith (01-01-2014), mrsD (01-01-2014)
Old 01-01-2014, 01:08 PM #17
Kapla Kapla is offline
Junior Member
 
Join Date: Dec 2013
Location: Northern California
Posts: 15
10 yr Member
Kapla Kapla is offline
Junior Member
 
Join Date: Dec 2013
Location: Northern California
Posts: 15
10 yr Member
Default

I had this done a few months ago and enjoyed the Ancestral History. The medical stuff was good to see as well and not a whole lot surprised of any findings.
Kapla is offline   Reply With QuoteReply With Quote
Old 01-01-2014, 02:25 PM #18
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,428
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,428
15 yr Member
Default

I know my ancestral history and what I have. Lucky me. 23 & Me doesn't test for CMT anyway. That is through DNA blood testing, EMG/NCV for two types of it and family history can be helpful.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."

Last edited by Kitt; 01-01-2014 at 04:30 PM.
Kitt is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
genetic testing cait24 Myasthenia Gravis 13 06-16-2013 07:41 PM
23andMe:Substantial genetic component for PD Conductor71 Parkinson's Disease 2 06-24-2011 07:54 PM
Genetic Testing Missyat Epilepsy 3 12-26-2009 11:41 PM
Genetic Testing paula_w Parkinson's Disease 0 10-20-2008 08:55 AM
Genetic testing Jim091866 Parkinson's Disease 1 10-13-2006 04:31 PM


All times are GMT -5. The time now is 03:39 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.