You can still do the benfotiamine. It is for other aspects of nerve
functions. There are people who have genetic problems with thiamine. (Asians for example who flush and get ill drinking alcohol are examples). But anyone consuming sugar and alcohol could use benfotiamine as thiamine gets used up quickly with dietary habits. Some people find benfotiamine very helpful and others less so. But it is not harmful, for the most part.

Don't assume your magnesium is doing any good if it is OXIDE form. This is a common in many supplements still because it is so cheap. A chelated one is best. or SlowMag which was made for doctors to prescribe, but is over the counter still.
This is my magnesium thread:
http://neurotalk.psychcentral.com/thread1138.html

Lewie,
What do you eat in a typical day?
Has any doctor suggested that this could be caused by something in your diet? If not, I am dumbfounded. My suggestion is that you consider this, although quite possible the doctors you see will know little about this. Some people are allergic to certain foods and the trigger foods can cause all sorts of problems.
Ron

I am currently on a special diet to rule out different foods, no progress other than losing more weight that I don't need to lose. never thought I would hate losing weight. if generalize at all it gets worse for days, it seems to be worse in the morning and by night I am not nearly as bad and it starts getting worse again between 3am and 4am when it brings me insomnia.

I started taking a calcium magnesium citrate combo, however I was taking it same time as gaba and read they interact. so I take then an hour or so apart and my twitches have gotten much better. now to get this buzzing feeling to go away out of my lefty foot!

Had an episode last week where my heart was racing weeks beats all night. I couldn't sleep at all. Made me very nervous. Quit taking gabapentin and haven't had an episode since. Thinking my blood pressure got to low. Its typically lower all the time usually 100/60. My nuero doc gave me zanax which gave me a good night sleep. Also wanted me to try amtryptiline.

Does most people have nueropathy, have it at night while sleeping? Mine is bothering me as I go to sleep and I wake with no nueropathy. After about a minute of being awake it comes on.

saw a rheumatologist and she said my c3 was low. only like 2 points below the lower side. but this is the first thing they found that wasn't normal. what can I do to boost this?

Low complement C3 may signify lupus... or the "dreaded" angioedema, which I seem to have.

You should discuss with your doctor further testing. Get the full testing for angioedema... just to be on the safe side.

http://www.nlm.nih.gov/medlineplus/e...cle/003539.htm

I have almost no signs of angiodema as far as I could tell? In fact almost the opposite as far as swelling, Everything seems to be shrinking, skin is getting more transparent and tight. As far as Lupus, I have some of the symptoms but all the rest of my blood work is normal which wouldn't be if I had Lupus.

I also read somewhere that c3 is lower due to fungus or parasite infections. Been tested for the fungus. Not sure about the parasites.

Very tired of the fight, I am scared to go to sleep due to my nightly episodes that have lasted for months now. Its like when you get really scared and your insides burn, your stomach drops and your heart is racing. I wake up sometimes 1-6 times a night with this going on in my body but nothing going on in my head. Meaning I am not scared but my body thinks so. Oh it must be getting near my bed time cause my nightly rash just showed up,

Males sometimes do not express HAE until their testosterone starts to fall.

Mine went undiagnosed for my whole life because I have mostly gastrointestinal HAE....with only minor swelling attacks. It was the use of a blood pressure medication, and my own falling little testosterone (that women have), that pushed me into a crisis.

The drug induced lupus does not have elevated ANAs.... either.

So look at your medications, also.

The complement results for HAE are complicated, and the websites for it explain the various types. So it would be worth it to rule this out.

What stone is left unturned?

Urinalysis
specific gravity 1.008 SR 1.003-1.030
pH 7.5 SR 5-7.5
Total protein negative
UA Glucose negative
UA Ketones negative
UA Bilirubin negative
UA Blood negative
Ua nitirite negative
UA Urobilinogen 0.2 SR 0.2-1.0 mg/dL
UA Leukocyte Esterase negative
UA WBC/HPF negative
UA squamous epithelial cells negative

Histoplasma antigen EIA, urine negative

URINANALYSIS #2
Component Standard Range Your Value
UA Color Yellow
UA Appearance Clear
SPECIFIC GRAVITY 1.007 SR 1.003 - 1.030
Urine pH 6.0 SR 5.0 - 7.5
TOTAL PROTEIN Negative Negative
UA Glucose Negative Negative
UA Ketones Negative Negative
UA Bilirubin Negative Negative
UA Blood Negative Negative
UA Leukocyte Esterase Negative Negative
UA Nitrite Negative Negative
UA Urobilinogen 0.2 SR 0.2 - 1.0 mg/dL
UA Microscopic Nothing Seen


COMPREHENSIVE METABOLIC PANEL
sodium 142 standard range 136-144 mmol/L
potassium 3.7 standard range 3.3-5.0 mmol/L
Chloride 107 standard range 102-110 mmol/L
CO2 24 standard range 20-26 mmol/L
BUN 10 standard range 8-24 mg/L
creatinine 1.04 standard range .072-1.25 mg/dL
glucose, fasting 84 standard range 64-128 mg/dL
calcium 9.9 standard range 8.4-10.5 mg/dL
total protein 7.7 standard range 6,5-8,4g/dL
albumin 4.5 standard range 3.5-5.0g/dL
total bilirubin 0.9 standard range 0.2-1.4mg/dL
Alkaline phospatase 62 standard range 38-126U/L
AST 25 standard range 16-40 U/L
ALT 25 standard range 5-60 U/L
Anion Gap 11 standard range 8-14mmol/L

HISTOPLASMA ANTIGEN DETECTION EIA, URINE

C-REACTIVE PROTEIN 0.1 mg/dL standard range 0.0-0.8 mg/dL

EGFR 92
EGFR 91
EGFR 85

ANA, IGG ELISA W/ REFLEX TO ANA, IGG IFA none detected

Rheumatoid Factor (RF) Level <7 standard range 0-14 IU/mL

(TSH) Level 2.37 standard range 0.35-4.94 mU/L

BORRELIA BURGDORFERI ANTIBODIES, IGG & IGM BY WESTERN BLOT negative

COCCIDIOIDES AB PANEL,SERUM CF
IgG by ELISA 0.7 SR<=0.9
IgM by Elisa 0.3 SR <=0.9 IV
CRYPTOCOCCUS ANTIGEN, SERUM negative

CULTURE, BLOOD nothing grown

COMPREHENSIVE METABOLIC PANEL #1
sodium 142 standard range 136-144 mmol/L
potassium 3.7 standard range 3.3-5.0 mmol/L
Chloride 107 standard range 102-110 mmol/L
CO2 24 standard range 20-26 mmol/L
BUN 10 standard range 8-24 mg/L
creatinine 1.04 standard range .072-1.25 mg/dL
glucose, fasting 84 standard range 64-128 mg/dL
calcium 9.9 standard range 8.4-10.5 mg/dL
total protein 7.7 standard range 6,5-8,4g/dL
albumin 4.5 standard range 3.5-5.0g/dL
total bilirubin 0.9 standard range 0.2-1.4mg/dL
Alkaline phospatase 62 standard range 38-126U/L
AST 25 standard range 16-40 U/L
ALT 25 standard range 5-60 U/L
Anion Gap 11 standard range 8-14mmol/L

COMPREHENSIVE METABOLIC PANEL #2
sodium 141 standard range 136-144 mmol/L
potassium 4.4 standard range 3.3-5.0 mmol/L
Chloride 104 standard range 102-110 mmol/L
CO2 26 standard range 20-26 mmol/L
BUN 13 standard range 8-24 mg/L
creatinine 1.05 standard range .072-1.25 mg/dL
glucose, fasting 116 standard range 64-128 mg/dL
calcium 10.1 standard range 8.4-10.5 mg/dL
total protein 7.6 standard range 6,5-8,4g/dL
albumin 4.9 standard range 3.5-5.0g/dL
total bilirubin 0.6 standard range 0.2-1.4mg/dL
Alkaline phospatase 57 standard range 38-126U/L
AST 23 standard range 16-40 U/L
ALT 22 standard range 5-60 U/L
Anion Gap 11 standard range 8-14mmol/L

COMPREHENSIVE METABOLIC PANEL #3
SODIUM 140
POTASSIUM 4.3
CHLORIDE 104
CO2 28
BUN 15
CREATININE 1.11
Glucose, Fasting 86
CALCIUM 9.9
TOTAL PROTEIN 7.6
ALBUMIN 4.4
TOTAL BILIRUBIN 1.1
ALKALINE PHOSPHATASE 60
AST 25
ALT 26
Anion Gap 8

CBC WITH PLT COUNT AND AUTO DIFF #1
WBC 5.52 SR 3.20-10.60k/uL
Red blood cell 5.37 SR 4.69-6.07 M/uL
HGB 16,3 SR 14.6-17.8 g/dL
HCT 49.1 SR 40.8-51.9%
Mean corpuscular volume 91.5 SR 77.8-94.0 fL
Mean corpuscular hemoglobin 30.4 SR 26.5-32.6 pg
Mean corpuscualr HGB concentration 33.3 SR 32.7-36.9
red cell distribution width 13.0 SR10.8-14.1%
platelet 209 SR 177-406k/uL
mean platelet volume 7.6 SR 5.9-9.8 fL
Granulocyte% 64.9 SR 44-76
Monocyte% 8.5 SR 4-8.9
Eosinophil% 1.8 SR 0-6
Basophil% 0.5 SR 0-1.7
Granulocyte # 3.6 SR 1.3-7
Monocyte# 0.5 SR 0.2-0.7k/uL
Eosinphil# 0.1 SR 0-0.4 k/uL
Basophil# 0.0 SR 0-0.1
Lymphocyte% 24.3 SR 14.7-42.6
Lymphocute# 1.3 SR 0.8-3.1k/uL

CBC WITH PLT COUNT AND AUTO DIFF #2
WBC 4.78 SR 3.20 - 10.60 k/uL
Red Blood Cell 5.32 SR 4.69 - 6.07 M/uL
HGB 16 SR 14.6 - 17.8 g/dL
HCT 47.7 SR 40.8 - 51.9 %
Mean Corpuscular Volume 89.6 SR77.8 - 94.0 fL
Mean Corpuscular Hemoglobin 30.1 SR 26.5 - 32.6 pg
Mean Corpuscular HGB Concentration 33.6 SR32.7 - 36.9 g/dL
Red Cell Distribution Width 13.8 SR 10.8 - 14.1 %
Platelet 251 SR177 - 406 k/uL
Mean Platelet Volume 6.1 SR5.9 - 9.8 fL
Granulocyte % 64.3 SR 44.0 - 76.0 %
Monocyte % 7.0 SR 4.0 - 8.9 %
Eosinophil % 1.9 SR0.0 - 6.0 %
Basophil % 0.4 SR0.0 - 1.7 %
Granulocyte # 3.1 SR 1.3 - 7.0 k/uL
Monocyte # 0.3 SR0.2 - 0.7 k/uL
Eosinophil # 0.1 SR 0.0 - 0.4 k/uL
Basophil # 0.0 SR 0.0 - 0.1 k/uL
Lymphocyte % 26.4 SR14.7 - 42.6 %
Lymphocyte # 1.3 SR 0.8 - 3.1 k/uL

Free Thyroxine Level 1.3 SR 0.8-1.7 ng/dL

Brain MRI

EGFR

THYROID STIM. HORMONE W/RFLX TO FREE T4 3.86 SR 0.30-4.00 mU/L

Bence Jones Protein, Quantitative Negative

IMMUNONELECTROPHORESIS,IFE,IGA,IGG,IGM
Immunogobulin G 1040 SR 768-1632 mg/dL
Immunogobulin A, SERUM 211 SR 68-378 mg/dL
Immunogobulin M 59 SR 60-263 mg/dL
total protein- electrophoresis 8.30 SR 6-8.30 g/dL
Albumin 5.29 SR 3.75-5.01 g/dL
Alpha 1 Globulin 0.32 SR 3.75-5.01 g/dL
Alpha 2 Globulin 0.73 SR 0.48-1.05 g/dL
Beta Globulin 0.81 SR 0.48-1.10 g/dL
Gamma 1.15 SR 0.62-1.51 g/dL
SPEP/IFE Normal pattern

Glycosylated Hemoglobin Level 5.3 SR 4.0-5.6%

COMPREHENSIVE METABOLIC PANEL



HELICOBACTER PYLORI BREATH TEST Negative

Vitamin D Level 32 SR 30-80ng/mL

MAGNESIUM, PLASMA OR SERUM 2.2 SR 1.6-2.6mg/dL

FOLATE, SERUM >48.0 SR 5.4-40 ng/mL

VITAMIN B12 538 SR 210-911 pg/mL

CBC WITH PLT COUNT AND AUTO DIFF

BILIRUBIN, DIRECT, SERUM OR PLASMA 0.4 SR 0-0.5 mg/dL

BILIRUBIN, TOTAL, SERUM OR PLASMA 1.2 SR 0.2-1.4 mg/dL

CK 113 SR 35-224 U/L

ESR#1- 2 SR 0-10 mm/hr

ESR#3- 2 SR0 - 10 mm/hr

Sedimentation rate #2- 2 SR 0-15 mm/h

VITAMIN B6, PLASMA 106.5 SR20.0 - 125.0 nmol/L


COMPLEMENT COMPONENT 4 15 SR 10 - 40 mg/dL

COMPLEMENT COMPONENT 3 82 SR88 - 201 mg/dL

COMPLEMENT COMPONENT 4 17 SR 10 - 40 mg/dL

COMPLEMENT COMPONENT 3 86 SR88 - 201 mg/dL

Cryoglobulin Quantitative Screen NEG 72Hour NEG 72Hour

Hepatitis C Antibody by CIA Interp Negative Negative

HEP B, SURFACE AG Negative Negative

Hepatitis B Core Antibodies, Total Negative Negative

Creatine Kinase, Total, Ser/Pla 97 SR 20 - 200 U/L

Double-Stranded DNA (dsDNA) Ab IgG ELISA <1:10 <1:10

EXTRACTABLE NUCLEAR AG ABS 5
SSA (Ro) (ENA) Antibody, IgG 2 SR 0 - 40 AU/mL
SSB (La) (ENA) Antibody, IgG 0 SR0 - 40 AU/mL
SMITH (ENA) ANTIBODY, IgG 1 SR0 - 40 AU/mL
Ribonucleic Protein (U1) (ENA) Ab, IgG 0 SR 0 - 40 AU/mL
Scleroderma (Scl-70) (ENA) Antibody, IgG 0 SR 0 - 40 AU/mL

ANTI-NEUTROPHIL CYTOPLS AB W REFLEX TITER
Anti-Neutrophil Cytoplasmic Ab, IgG <1:20 <1:20

C-Reactive Protein <0.1 SR 0.0 - 0.8 mg/dL

Adrenocorticotropic Hormone 28 SR7 - 69 pg/mL

CORTISOL, SERUM or PLASMA 13.2

TISSUE TRANSGLUTAMINASE (TTG) ANTIBODY, IGA WITH REFLEX TO ENDOMYSIAL
issue Transglutaminase Antibody, IgA 8 SR0 - 19 Units