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-   -   Help! New, Not sure if I have PN (https://www.neurotalk.org/peripheral-neuropathy/198135-help-pn.html)

jlev 12-05-2013 06:39 PM

Hope
 
OMG! That is a horrific incident. I am so sorry. I am very concerned because you have mentioned suicide. Do you have anyone, like your parents or a close friend, that you can reach out to? I do not have great advice because I have been newly diagnosed with neuropathy. I do experience the same issue you described that when I am active I feel a little better, but I "pay" for it that evening with worse symptoms. If I rest, that evening the symptoms are better. Are you on any medications? I have been put on Gabapentin and Clonazepam (at night) which have at least made the symptoms manageable for the time being and I am able to function. I am hoping to find some better long term solutions on this site, but at least I am not in horrible pain right now. Unfortunately, this issue runs in my family and my mother has also had PN for the past 14 years - hers came on when she fell and hurt her knee. It took her a year and a half to find a doctor to treat her symptoms and she too felt like her life was over during that time period. Please do not give up hope - keep searching for a doctor to treat you both physically and psychologically (if needed). I do not know you but I am sending you my love and well wishes. This too will pass and you can get better and find love again. You may not find answers but you should be able to find a doctor to provide you relief - keep searching and don't give up. XOXOXO :)

Electron 12-05-2013 07:26 PM

That is quite an experience, at least you weren't hurt worse or killed. Congrats on defending yourself. Hang in there, man. I am not a dr or anything, but my 2c-- It doesn't sound like typical PN but it is different for everyone. If you have still not turned up with a disease, I think you need to try not to worry about this anymore. Do drugs like Tylenol and Advil help your pain? These help with inflammation and do not typically relieve PN pain. If it does turn out to be PN, there are effective drugs you can take to manage this. It is unfortunate to have to take drugs, but these can help you get your normal life back.
Ron

echoes long ago 12-05-2013 07:54 PM

bone scans. i forgot about those. i had them done on both feet when they were looking to see if i had charcot foot because i had rebroken both my ankles a number of times as well as bones in toes. i didnt have charcot foot. i kept breaking my ankles because i kept turning them violently because i couldnt feel them going on eneven surface. broke toes because i couldnt feel myself hitting things with foot while walking so i hit some hard surfaces like a diving board support pretty hard. that phase seems to be behind me now, i havent broken anything in a while. Mrs D is right, a bone scan would be called for.

mrsD 12-05-2013 08:00 PM

It might be best to see an orthopedic MD rather than a podiatrist.
They usually do the bone scans.

toepain2013 12-05-2013 08:06 PM

Thank you, thank you, thank you! Everyone, seriously, you've all helped me feel *so* much better.

Also, regarding suicide -- I've already contacted a therapist and I plan to begin therapy as to come to terms with the new situation. This type of health problem isn't like anything I've confronted before, it's time for me to handle this and prevent myself from losing sight of what's important...which is that life is *always* worth it.

Much love to everyone, I'll keep you all posted as this journey progresses. Thanks again for the kindness, support and feedback.

jlev 12-14-2013 04:26 PM

Just Checking In
 
Hi - I have been thinking about you and hoping you are doing a bit better - at least mentally. Praying for you both in health and love. Just wanted you to know people are out there for you and hoping you get the help and relief you deserve.:grouphug:

pyro 12-15-2013 12:05 AM

Get a MRI/Bone scan. Good luck


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