I read a lot of posts in the past that discussed about compounded cream for the PN. I never had the chance to try it because in most of my readings it seems that it does not help.

I went to my rheumatologist (for the osteoarthritis), she recommended the pain cream. She said it wont hurt me if I try....so I said okay....

I tried it and I think its giving me some relief from burning. Due to the duration and extent of my pain, just a relief even for a couple of days is a big deal. I am so happy for the last 2 days that I cant wait to share my very, very tolerable pain.

I am not sure if it'll work for a longer time but I am enjoying my tolerable pain, FOR NOW. I have not felt this for years. It feels so pleasantly strange without the pain I live with since 2011. I really, really hope that my honeymoon with this cream would last at least even until the holidays. Yay!!!!!!

The compounded pain cream is consist of the following:

Ketamine-5%; Baclofen-2%; Gabapentin-10%; Clonidine-0.2%.

Yes, keep spreading good news like that when it happens. I too use that compounded cream and find a measure of relief. So glad to hear that it works a bit for you. ginnie

I realize this is a prescription, and was wondering if it is covered by insurance. If not, is it very expensive?

No, most medicare part D programs will not cover it. I did two things, wrote to the drug company, got a reduction in price, and the next time my son paid for it. I would use it more if it were covered. ginnie

Theilled you are getting some relief!!!

I use a compounded cream on my face for nerve damage with fairly good success, but it is expensive.

I have neuropathy in my left foot and use OTC Kerasal Neurocream with good results. I've gotten coupons from their website and also wait for my CVS coupons (20% of entire purchase, for ex) and buy two at a time. Only the new Neurocream helps. I put it on twice a day. I'm not trying to exercise yet...that seems to cause flairs. But for every day stuff, I'm getting relief.

Hope to try a little exercise relatively soon. Fingers crossed.

The drugs (gabapentin and nortryptiline) have been of little help for the "folded sock" pain which I experience in both feet, in the skin folds directly behind the toes.

I started out with Capsazin (lower dose), out of caution, as some complained of intense burning. I went on to the Neuro Cream just over a week ago, and most of the folded sock pain is well relieved. A couple of days ago, the arches in my feet started feeling on fire, perhaps due to my insoles rubbing against them, but now am spreading the Neuro Cream onto my arches & will see if it helps.

I'm using it 3 times a day, but read where one fellow was able to cut down to once daily. How long have you been using it, and about how long do you think it was before you "got the most" out of it?

Hello Groucho:

Fortunately, that Kerasal Neurocream started working on my foot almost immediately. I would say by the second day, the pain was 90% better.i also use an OTC orthotic in my shoe for that foot. I suspect, my foot neuropathy isn't as bad as what others have described here....but some days have been very rough....one day it was tough to walk. I use it usually twice a day...sometimes only one time. I am glad someone took notice...was shocked that no one else seemed to want to try it. It is working VERY well for me...thank goodness! Few things in my medical world have been this simple...and I pray it keeps up. Also, I have been able to get the cream at a discount almost ecpvery time...as I mentioned above.

I also have been careful to keep my B 12 and D3 levels up.


The pain in my face, was caused after some peculiar dental work. Since, I had no idea what was going on, I went to several dental professionals, who likely only worsened the problem. One even pulled my tooth. The trigeminal nerve is likely involved. The pain was through the roof. I use a compounded cream for this mess...that cream has Gabapentin in it and next time I see the neuro I might talk about reducing the dosage (a trial) as this med concerns me.

Anyway, I hope the Neurocream continues to work for you, including the other areas of your feet that are causing you such terrible pain.

Please post an update.

Apparently my insurance covered for the cream as i only received a bill for my co-pay.

The only problem with this cream--- it has very short shelf life. It shows on the label that it is valid only for a month.

Does anyone here using the compounded cream use it beyond the expiry date?

Thank you.

Mary

I think you should call the pharmacy and ask them.

Some drugs are not stable in solution, or mixed with water, or some of the compounding gels.

Gabapentin liquid formulations are always kept in the frig, because they are not stable at room temp for example.

The compounding pharmacies have references specific to the stability of the products they make. So asking them is the best way to get an accurate answer.

I have a rx for a compound cream for my small fiber neuropathy which contains Ketoprofen/Lidocaine/Gabapentin/Amitriptyline. I'm curious how often this can be safely used. The rx says to use one or two times daily, but I get the impression from a brief conversation with the pharmacist and reading a little about it that you can use it pretty liberally. Does anyone know?