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Old 01-01-2014, 07:54 PM #1
melon melon is offline
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My Mood: Link between Ehler Danlos Syndrome and Pn ?
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Default Link between Ehler Danlos Syndrome and Pn ?

I recently read the following article on my EDS forum and was curious if any one else here with weak connective tissue , or some related disease that affects it has any noticed any sort of relationship ?

For example whether they had their PN diagnosed prior to their EDS symptoms or after , and if improving their stability helped ?

Happy New Year !

melon
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Old 01-04-2014, 12:17 PM #2
andybonse andybonse is offline
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Originally Posted by melon View Post
I recently read the following article on my EDS forum and was curious if any one else here with weak connective tissue , or some related disease that affects it has any noticed any sort of relationship ?

For example whether they had their PN diagnosed prior to their EDS symptoms or after , and if improving their stability helped ?

Happy New Year !

melon
Wow freaky I saw this thread I was thinking the exact same thibg. I have eds hypermobility and have dysautonomia so im guessing I have neuropathy too. A lot of people with eds have neuropathy what a coincidence? I think it is related some how deffinite.
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Old 01-04-2014, 02:50 PM #3
melon melon is offline
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Originally Posted by andybonse View Post
Wow freaky I saw this thread I was thinking the exact same thibg. I have eds hypermobility and have dysautonomia so im guessing I have neuropathy too. A lot of people with eds have neuropathy what a coincidence? I think it is related some how deffinite.
Yes, it makes me wonder too if its a good part of the reason why I only get temporary relief from supplements and most of the other things people have tried here .

If nothing is addressing that problem specifically and the connective tissues role, what difference are new treatments going to make ?

m
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