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-   -   Escalators (https://www.neurotalk.org/peripheral-neuropathy/199295-escalators.html)

Electron 01-05-2014 09:36 PM

I think escalators and elevators are fun.:)

Dr. Smith 01-06-2014 11:33 AM

For those of you with problems with escalators, how do you do with moving walkways? You may not like them either, but to the same degree? As there is no up-down motion, might they be a segue to adapting to escalators?

Doc

Susanne C. 01-06-2014 11:54 AM

Quote:

Originally Posted by Dr. Smith (Post 1041749)
For those of you with problems with escalators, how do you do with moving walkways? You may not like them either, but to the same degree? As there is no up-down motion, might they be a segue to adapting to escalators?

Doc

I have the same problems judging getting off and on, and I can no longer walk on them, I just stand to the side and let people pass. I cannot use a treadmill either, my podiatrist tried for half an hour to do a gait analysis, but I kept falling, no matter how he adjusted it. I believe this is just an idiosyncrasy of my CMT.

Kitt 01-06-2014 02:18 PM

Quote:

Originally Posted by Sham (Post 1041632)
I forgot to say they him hereditary but not sure from where.

You might find the following article of interest. There are many.

http://en.wikipedia.org/wiki/Heredit...mic_neuropathy

ElaineD 01-06-2014 02:50 PM

Moving walkways present problems as well. I do ok if I hang on tight. But there is a sort of wobbling motion. My balance is so terrible that anything sets me off.

If I'm on a elevator I have to hang on when it starts and stops, because sometimes those aren't smooth movements.

After 4 years I'm getting used to taking my PN into account. I'm doing better because I know I need to anticipate, hang on, take time.

I never get out of the car without standing up slowly and then waiting to see if I'm dizzy, if my legs feel ok, and where I'm going to be going next.

The days of just walking around thoughtlessly, just going from place to place quickly are gone. And mostly my grief over that loss is gone too.

I so remember staring up at three flights of stone stairs on Christmas eve as I sat in the car and someone asked, "can you manage those stairs".

"NO, I can't manage those stairs." It was clear, unembarrassed and final.

I am learning!

Hugs, Elaine

Sham 01-06-2014 03:04 PM

I have not been on one for many years, so I don' t really know. I can walk on treadmills but have to hang on. Then when it stops, I have to step off and stand there holding on for a minute or to to reorient myself.

Thanks Kitt, I have extremely high arches, slight hammer toes, extremely week ankles, and can not attempt to try to run. I walk looking down constantly so I know where my feet are. I also get cramps in calves and feet and burning pains in legs. Lately with this stupid cold weather my toes are getting painful cramps. My big toe the other night wouldn't go flat and was stuck. I told my husband I am going to retire on a beach somewhere, too bad I am only 36 so it is still a good 30 years away. Now that I am wishing time would go any faster because I do not want to miss anything with my boys. Sorry that was off the subject.

QUOTE=Dr. Smith;1041749]For those of you with problems with escalators, how do you do with moving walkways? You may not like them either, but to the same degree? As there is no up-down motion, might they be a segue to adapting to escalators?

Doc[/QUOTE]

Joano 01-06-2014 04:22 PM

Some time ago I attended a luncheon where the speaker was probably in her sixties. She began by standing still for a few moments before approaching the podium, and then told her audience, "At my age I find I must stabilize before I can mobilize." We all could identify with her!

Kitt 01-06-2014 04:34 PM

Quote:

Originally Posted by Sham (Post 1041796)

Thanks Kitt, I have extremely high arches, slight hammer toes, extremely week ankles, and can not attempt to try to run. I walk looking down constantly so I know where my feet are. I also get cramps in calves and feet and burning pains in legs. Lately with this stupid cold weather my toes are getting painful cramps. My big toe the other night wouldn't go flat and was stuck. I told my husband I am going to retire on a beach somewhere, too bad I am only 36 so it is still a good 30 years away. Now that I am wishing time would go any faster because I do not want to miss anything with my boys. Sorry that was off the subject.

Anyone in your family with problems similar to you? You do not have to have high arches, hammertoes, etc. It appears from that article that HSAN 1 includes a type of CMT 2. (Type 2B).

Pinksweetpea 04-23-2014 12:22 AM

Escalators
 
Quote:

Originally Posted by ElaineD (Post 1041298)
Even elevators are disconcerting. I always hold on to something when they start up, because a few will jolt a bit, either starting or stopping.

For me it is the STANDING UP, and moving through space that causes the problem. And uncertain movement.

Standing is already a serious difficulty for me....add moving and jolting, and stepping on or off while moving.....not good.

Hugs, Elaine

Oh,as a kid I LOVED escalators. I was a daredevil and very active. Climbing to the top of the tree, hanging by one knee from the top of the jungle gym. Yeah, back in the day.

Walking on the highest wall....climbing rock cliffs, jumping from the highest step.

Everything kids do.

Me too, I am exactly the same when I go on escalators, especially the ones that form steps. If they go too fast, I don't go on them at all in case I fall. If I am honest I am terrified on them because of my balance issues now.


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