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03-20-2014, 08:51 AM | #21 | ||
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Junior Member
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Another Update... and maybe my last:
I've gone through just about every test immaginable the last 6 months. 6 rounds of bloodwork, heavy metal screaning, HIV tests, hepatitis tests, antibodies, urine samples, brain MRI, nerve conduction study, EMG, thyroid tests, food allergy / ALCAT screenings, liver enzymes, adrenal glands. Everything... EVERYTHING has come back clean or in range. The only thing that was ever "out of range" was my intial B6 readings. Those have since come back in range after stopping all B6 supplementation and avoiding it in foods. What I'm basically left with are benign fasciculation syndrom (BFS) like symptoms: - Muscle fasciculations (not constant... they come and go with stress or exertion... but they are EVERYWHERE... zero muscle exceptions). Places twitch that I didn't even know could twitch. - Leg cramps (not constant... these also show up for a couple hours about every 2-3 days) - Some perceived weakness / fatigue (sometimes my right arm will feel jello-like on me or my legs will get spaghetti-like... but it's transient... it will show up for a couple hours then go away... EMG was clean and all clinicals show zero clinical weakness... I can workout like a champ if I wanted to) - Aching / shooting muscle pains. These are very random and also not constant. Primarily my upper back. - Minor sensory issues... not as bad as when this all started (minimal finger numbness, hand tightness) Anyways, after sitting with my neuro for the 6th time, she flat out told me she doesn't think I have anything "diagnosable." No neuropathy. No MS. No ALS. She said 99% she believes I may be dealing with peripheral nerve hyperexcitability, stress, and fibromyalgia if anything. She wants to put me on Lyrica, but my pain is no where near requiring medication. So I'm going to just go natural for a while and see how I do. So, my approach is similar to what it has always been. Eat healthy. Exercise right. De-stress. Epsom salt baths. Magnesium Lotion. My supplementation will be slow and steady if anything. I'm currently just taking an Omega-3 supplement and a Chelated Copper supplement (2mg / day). My copper was within range but on the low end. Best wishes to everyone... none of this is fun. Pathfinding over months... But, I think it's time for me to focus on my wife (8 months pregnant) and others as opposed to myself. |
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03-20-2014, 09:09 AM | #22 | |||
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Wisest Elder Ever
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It can take time to normalize functions and to repair. If you stay away from known nerve toxins, you should be okay.
The one thing you did not test for is CMT.... but if you do not progress you may not need to test for that. Caffeine and OTC decongestants will also cause twitching. And low blood sugar spells will do it too. So keeping the blood sugar as stable (not swinging) is a very good way to control this hyperexcitability. The Zone diet is excellent for this, IMO. It is very balanced and low glycemic. Best wishes for the new baby. You will be very busy very soon! I found that keeping a calm style very useful for handling my son who was a preemie. I credit his presence as a therapeutic thing for me too. If I got the least bit tense he would tense up too! So let that baby be your guide as well!
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"Thanks for this!" says: | hopeful (03-20-2014) |
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