Originally Posted by Kitt (Post 1044715)

No, I had EMG/NCV testing done. And other things - part of the exam. No need to see a geneticist. I already knew that I had CMT as it is in the family from way back. The neurologist just confirmed what I already knew and my symptoms way back then were near nothing. But CMT just kept progressing as it does. No one with CMT knows for certain how they will end up. CMT symptoms vary greatly even within the same family. This is so true.

Symptoms of CMT can become evident when you are young, old, or in-between. Or they might not be that evident but you can still pass it on. It is a complicated syndrome with so very many types of it identified now. I have one of the most common types - CMT1A. Even today CMT is misdiagnosed as something else. A good neurologist who knows CMT is the one to see.

Thanks for asking.

Originally Posted by hopeful (Post 1044961)

I think my neurologist did one blood test for it. I'll have to check with him to be sure. Thanks!