Hi.
Being a newly diagnosed PN sufferer, I am still trying learn about my condition. Recently I was caught out in the cold (Scotland) with poor shoes and socks (my bad) well my feet got really cold and for a couple of weeks now my feet seemed to have gone into melt down and are aggressively bothering me. Like a new level of uncomfortableness.

Is this normal? Will the symptoms die down?

You will remain more sensitive to the cold, and must pay attention to your footwear. Do you have sensation in your feet? You mention that you have sensory motor neuropathy, as do I, but i cannot feel my feet at all or whether my shoes fit, are comfortable, etc. if this is a problem for you you may need to go up a size and wear orthopedic shoes with very soft socks.

Symptoms often settle down after a flare up. You will also get used to some of the sensations and it will seem more bearable.

Thanks for the information. I have an appointment to see a orthopedic next week who is checking my feet and will advise. The flare up you described has not settled yet.

Hi and thanks for the info. I see an orthopedic next week. Yes I do have the fuzzing in my feet and it seems to be steadily increasing in intensity. I have come home for tests in Scotland and hope when I go back to CA that the weather there will help and take away that problem. If I can use flip flops or walk in bare feet they seem to e more tolerable.

My condition: Mild Motor and Sensory Axonal Polyneuropathy.

I am at a loos for really what to do. My work requires me to be on my feet and active. Can I continue to hind this in my line of work which is the world of sport? My belief is that if I still try and use my legs and these muscles then this may hold back atrophy? But am I cause more damage than good? I know I must move more into the management part of my work.

I will repost this just to reassure you- you will not injure yourself by exercising. You may strengthen the muscles which are not atrophying, which is a help as they will have to compensate for the ones which are. There is no way to prevent the atrophy in the affected muscles as this is caused directly by the nerve deterioration, which you cannot control.

well that isnt entirely true for many pners. if you can feel your feet or lower legs for instance you can easily sprain or break you ankles or break your toes, so you have to take into account what kind of exercize is safe for you depending on what is affected by pn.

I was not thinking of that- it is a good point. I would never know if I had broken something unless it turned color and became swollen, just as I can put my foot in scalding water without noticing. The OP seemed worried about exercise that he is accustomed to in his profession and whether that would worsen his condition, and it seems unlikely, rather he should maintain what activity he can.

The sensations I am now having in my feet are new. It's as if they always feel cold. The same sensation I felt after I was exposed to the cold earlier in the New a Year while standing outside to long with not enough socks on for the extreme conditions.

I am wondering if this will regress once I return to CA where I work? If I am in a warm climate? Could this flare just calm down totally? I guess only time will tell?

Or is this feeling normal for my condition? How does one learn to accept this feeling and adjust to it? That's what's on my mind all the time right now.

This is so much information and now I'm very confused. I have so many questions.

That is how PN is. Doctors for the most part are not much help, unless they are specialists for PN only.

Take it slowly, and learn a bit each day. Start with that thread I gave you. And then get a good foot doctor who has experience with soccer players. Those are your best bets to start with.

Much of PN is environmental. Fix your exposure, toxin exposure, diet, and habits, and many cases can resolve.

The hereditary types require different testing (DNA) to nail accurately.