Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 01-22-2014, 04:42 PM #1
WVKayaker WVKayaker is offline
Newly Joined
 
Join Date: Jan 2014
Location: WV
Posts: 1
10 yr Member
WVKayaker WVKayaker is offline
Newly Joined
 
Join Date: Jan 2014
Location: WV
Posts: 1
10 yr Member
Default Fed up with doctors

Hello, I'm new to the forum. I'm trying to find info on peripheral neuropathy and possible causes.
Background: I'm a 37 yo female that has been active an in good health up until the fall of 2013. I started having hip pain in Sept 2013 after a trip to the beach and attributed it to tendonitis from the long car drive. The hip pain lingered. In early October I went on a cruise and when I got back I started to have a lot of problems:
Extreme fatigue - lasted for about 3 weeks - so tired I could barely function at all
Headaches - I had trouble with migraines in the past but hadnt had any since 2012 and suddenly I was having a lot. Also having a lot of tension headaches.

Neuropathy - It started in the toes of my right foot as a tingling/numbness. Spread to both feet, then both hands. Worse at night. By november it had spread up both arms and legs and sometimes my face. By late December it wasnt much tingling - it had changed to a burning pain in hands and feet that was accompanied by shooting pains at times that would go up legs and arms. Also, randomly I get the feeling that part of my body has been plunged into freezing water. Early on I would get strange feelings like someone was pressing their finger on a part of my face/lip/nose. Havent gotten that int he last month.

Joint pain - Hip started in Sept. After the neuropathy I started to get pain in my rt knee, then ankles, then it moved to hands and other knee. At this point I have pain in all my joints but it is transient - it may hurt in my knee and hip and hands in the morning, elbows and wrist this afternoon. THe joint have not swollen or gotten red.

Eye twitching - Left eye started twitching in Oct. Twitches more than 50% of my waking hours. Right eye has started in addition to left in early Jan and they both twitch at the same time now.

In November I went to my family doctor she said that my symptoms were consistent with peripheral neuropahty and she wanted to find the reason, if any. She ran a battery of lab tests to check for vitamin deficiencies, thyroid, diabetes, etc. She said she was trying to eliminate the "easy to fix" problems. All tests came back normal. She also tested my urine for protein and ran tests for Lupus, lyme disease, RA, etc. All of those were normal. Based on the symptoms she referred me to a Rheumatologist. I waited 2 months to get in to see him and was pretty underwhelmed. He said he had no idea what was wrong with me and my symptoms dont make any sense. He said if he were to guess he would say my joints pain was due to hypermobile joints and his only real concern is my neuropathy. He said that he hasnt had much luck with Neurology consults int he past so he was just going to send me for a nerve conduction test and put me on Cymbalta for the neuropathy and follow up in a month to see how the Cymbalta was working for me. He ordered no labs/tests except for the EMG test.

I'm tired of being in pain and I'm concerned that there is a problem that needs addressed. I love my family doctor but was very underwhelmed with the Rheumatologist. He didnt ask any family history and didnt really ask that many questions about my symptoms. Should I go back to the GP for a referral to a neurologist or just wait the month to see what the EMG shows?

Thanks!
WVKayaker is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
RSD Doctors in NY Emily82905 Reflex Sympathetic Dystrophy (RSD and CRPS) 31 06-07-2012 07:08 PM
PCS and Doctors Kelley84 Traumatic Brain Injury and Post Concussion Syndrome 13 10-21-2011 07:54 AM
doctors PCS5 Traumatic Brain Injury and Post Concussion Syndrome 3 09-22-2008 12:13 AM


All times are GMT -5. The time now is 03:52 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.