I am in Dallas so same country as you Mrs. D. After the mercury levels came back high, my neurologist here referred me to a leading toxicologist at UT Southwestern. He did not seem to think the levels were enough to warrant treatment. He indicated they needed to be more in the 100s rather than the high 30s. The Johns Hopkins toxicology department concurred. So, I did not pursue it any further.

It is just scary because the past two weeks my symptoms are getting suddenly worse. I have no idea why. Along with the fatigue, extreme muscle weakness in arms and legs (right now the typing is causing my arm to feel numb all over), ice cold in my hands and feet, chills, constipation, dizziness, going back and forth from numbness to shooting pains, and at night a rapid heart beat which is new. There has to be something else going on and I cannot imagine that the two nights in the past month that I had a drink could be doing all of this!!!

What is your thinking on the B vitamins? Could they come back normal on blood work but not actually be absorbed properly? That seems somewhat impossible...

My EMG showed nothing, and the neurologists said they couldn't help me. Since then (5 years ago) I've read that small fiber neuropathies won't show on an EMG or regular nerve conduction test. I agree a skin biopsy would be useful I just read a researcher say it will become part of the small fiber neuropathy "testing gold standard".

For sure prediabetes can cause small fiber neuropathy, as well as mercury poisoning (or many toxins). Get a Dr. who knows about small fiber neuropathies (the Mayo clinic in Rochester has some). Also, Johns Hopkins has a great (they say) neuro department. Check online for small fiber neuropathy. Research is really taking off on this.

Thank you all,

I've had 2 endoscopies in 5 years and biopsy's done during both for gluten - both were negative. I've been strict gluten free for 6 months+ in the past with no real benefit to my health.

I do now have an appointment with a neurologist which is progress.

My diet is okay ish.... It's strict low/moderate carb with an occasional indulgence. It's mostly veggies, fruit, meat, fish and good fats. I have lots of gut issues and intolerances to dairy and starch which I avoid. My only non fruit carb is some white rice as it's easier on my gut. Generally avoid grains as well due to the digestive trouble. I still do have one takeaway a week which no doubt sends my blood sugars into the stratosphere...

..although still not conclusive on that front. Fasting blood sugar is consistently around 80 and 1 hour post prandial is rarely over 120. My meals are typically carbs, protein and fat with rarely more than 30/40g of carbs per meals. Seems to mostly be in the 90-100 range throughout the day.

So far I'm feeling quite 'buzzed' from the B12. On a very low dose at the moment - 250mcg every other day. Sleep is not too bad so I'll probably stay as this level for a while and see if my body starts to adjust.

--testing for celiac/gluten sensitivity would also seem to be in order--at least the serological tests (anti-gliadin IgG and IgA, anti-transglutaminase igA, and total IgA; this last, if not in the normal ranges, can skew the results of the other mentioned IgA tests).

Moreover, that zoom/crash in the 5-hour glucose tolerance test--the reactive hypoglycemia--implies insulin resistance/metabolic syndrome/pre-diabetes (though there are certainly people who experience a hereditary form of this--but wild swings in blood sugar either way are not good for nerves). Were insulin levels checked along with blood sugar levels during the test? That can often be revealing.