advertisement
Reply
 
Thread Tools Display Modes
Old 02-04-2014, 09:43 AM #1
dannylk dannylk is offline
Junior Member
 
Join Date: Feb 2014
Posts: 8
10 yr Member
dannylk dannylk is offline
Junior Member
 
Join Date: Feb 2014
Posts: 8
10 yr Member
Default Absolutely terrified, looking for advice

Hi everyone,

I found this forum while looking for advice on my condition and it seems like you guys know more about nerve issues then any other place, I would really appreciate some help.

I'm a 23 years old and 4 months ago I started experiencing sunburn like pain all over my body besides the palms and feet, which was aggravated every time I took my adderall prescribed for adhd (which I since stopped for 3 weeks with no improvement).

Other symptoms I've been having, the fingertips on my right hand have become swollen, red and painful and I've been getting a really bad case of hot red burning ears almost every night.
The skin on my face has become dry and flaky and my mouth has also become dry.
As far as I know the fingertips, ears and dry skin aren't common neuropathy symptoms but the doctor didn't pay much attention to that.

I was diagnosed by a neurologist with having nerve pain symptoms but no underlying issue.
All tests he gave me (emg, ncs, autoimmune, celiac) came back fine besides low folic acid and 219 b12 pmol/l, (which I've been taking a 1000mg supplement for 3 months but so far no luck).
He also prescribed tegretol which does nothing but get me to bed early.

I'm absolutely devastated by this, If anyone's got any suggestions as to what this might be, any tests I should take or supplements I should try, I would really appreciate it. I can really use some advice right now.
dannylk is offline   Reply With QuoteReply With Quote

advertisement
Old 02-04-2014, 09:49 AM #2
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Welcome to NeuroTalk:

I'd try going gluten free and see if the redness improves.

Red ears often are a sign of food allergies.

Also I'd get tested for lupus. The ANA test sometimes cycles between positive and normal, so getting retested would be a good idea. Also you can get tested for Sjogren's which can cause dry mouth and dry eyes.

People who are gluten intolerant can have all sorts of autoimmune symptoms.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 02-04-2014, 10:50 AM #3
dannylk dannylk is offline
Junior Member
 
Join Date: Feb 2014
Posts: 8
10 yr Member
dannylk dannylk is offline
Junior Member
 
Join Date: Feb 2014
Posts: 8
10 yr Member
Default

Hey, thanks for responding.

I did get tested for gluten which came back negative.

The ear allergy direction is something I didn't think of and ill definitely check that out.
Do you know of anything that could the red swollen fingertips?

Also am I right in thinking that the ears and fingers might be indicative that it's not a nerve problem.
dannylk is offline   Reply With QuoteReply With Quote
Old 02-04-2014, 11:46 AM #4
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

I've had red fingertips for about a year, following a drug induced lupus attack.

My doctor thought the red finger tips were a serious sign.

I think that most of the causes are potentially serious and should be brought to the doctor's attention.

Mine are red all the time, and not due to Raynaud's syndrome.
If yours blanche and then turn red later, that is raynaud's and there are many many causes of that.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 02-04-2014, 12:50 PM #5
dannylk dannylk is offline
Junior Member
 
Join Date: Feb 2014
Posts: 8
10 yr Member
dannylk dannylk is offline
Junior Member
 
Join Date: Feb 2014
Posts: 8
10 yr Member
Default

I didn't really get what you meant by blanche and then turn red later.
My fingers which are freezing cold by the way (it's not that cold where I live) are normal on some days, swollen on the others. always happens on my right hand.
dannylk is offline   Reply With QuoteReply With Quote
Old 02-04-2014, 01:44 PM #6
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Happening only on one hand suggests perhaps, a circulatory issue.

We have a forum for TOS--thoracic outlet syndrome:

http://neurotalk.psychcentral.com/forum24.html
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 02-04-2014, 02:43 PM #7
dannylk dannylk is offline
Junior Member
 
Join Date: Feb 2014
Posts: 8
10 yr Member
dannylk dannylk is offline
Junior Member
 
Join Date: Feb 2014
Posts: 8
10 yr Member
Default

Thanks again!

TOS might make sense, I've always had extremely poor posture (scoliosis) and the pain feels better standing than sitting.

Which tests are done to diagnose TOS?
dannylk is offline   Reply With QuoteReply With Quote
Old 02-04-2014, 03:12 PM #8
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Wink

Quote:
Originally Posted by dannylk View Post
Thanks again!

TOS might make sense, I've always had extremely poor posture (scoliosis) and the pain feels better standing than sitting.

Which tests are done to diagnose TOS?
Sorry, I am not an expert on TOS....but the forum link I gave you
has many people willing to answer your questions.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Idiopathic PN (02-05-2014)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Terrified!! Need advice... scherrie Trigeminal Neuralgia 7 11-01-2012 12:39 PM
Fiona was absolutely right lrp1 Parkinson's Disease 0 08-31-2009 06:35 PM
A 'not absolutely certain diagnosis' dshue Peripheral Neuropathy 15 05-01-2009 11:30 AM
This is absolutely beautiful!!! MelodyL Social Chat 2 08-20-2008 08:37 AM


All times are GMT -5. The time now is 09:52 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.