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Old 05-11-2014, 01:29 AM #51
IH8PN IH8PN is offline
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Thanks to all for the words of encouragement.

Another week in the books, and another week of improvement. Keeping a journal or record of where you have been and where you are has proved to be important. I may still have pain and discomfort, but I look back at some of the things I couldn't do just a month or two ago.

Today I was running some errands with my wife. Being mothers day weekend I made it a point to get out and do some of the things she wanted to. A month ago I would have made it a point to stay home as I couldn't tolerate wearing shoes and socks, let alone leaving the house or being on my feet for a couple hours. I mostly hobbled around the house in either slippers or sandals, and somehow bit my lip when I had to wear shoes to work (tennis shoes at a job that requires very little standing thank god)

Well I wore a comfortable pair of tennis shoes and some thin polyester socks and I must say it wasn't too bad walking around those 2 1/2 hours. The small flares the past few days have been very minor and I've been very productive around the house the past week doing chores I just wasn't physically able to do in the not so distant past.

I hope for continued healing and improvement. My physical and mental state is at the best it's been this year. Until next time I wish everyone good health and well being.
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Old 05-11-2014, 10:22 AM #52
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Good news. It is always good to write things down. I do that also. When I add a supplement, etc.

I hope you continue to improve.
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Old 05-24-2014, 01:30 AM #53
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2 weeks since my last update. Nothing major to report. Basically a stalemate with the pn status. No progression but more importantly no regression. Mostly good days mixed in with the occasional flare up. I'm continuing to be active, spending several hours a day on my feet which was unheard of not so long ago.

My biggest complaint at the moment is the altered sensation on my foot soles. Even comfy cotton or polyester socks can feel prickly. I'll take that over the ache and the burning all day everyday. I still get sore feet with extended standing or walking but it seems to be slowly improving and I'm able to slowly extend activity times.

Today I was getting some "knife jabs" in both feet but its not something that happens very often, and if it wasnt for today I wouldnt even think to note it in my progress update.

Still wishing to get back to normal, but I'm just elated to have the worst of the pain behind me!!
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Old 05-31-2014, 08:52 PM #54
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I came across this thread and read it all the way through. My PN also started shortly after being diagnosed with a plantar fibroma. It's fairly large and on the arch of my left foot. If I didn't have such high arched feet, there is no way I could have worn a shoe. I ignored a lot of my PN symptoms for about a year while trying to get relief from the fibroma. Both feet burn and ache and it is now in my hands. Not being able to sleep at night is hard. I tried Nortriptyline and if or when I cannot stand the pain, I will try to increase the dose. For now, I am trying diet, supplements, acupuncture and I've stopped drinking wine as it seems to really trigger an increase in symptoms. I do miss being as active as I once was, but I am hopeful when I read posts like yours. I was barely leaving the house for some time, but I've noticed lately I can be on my feet a little more. I hope things continue to improve for you!
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Old 06-02-2014, 10:22 AM #55
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I can relate to what you said here:

My biggest complaint at the moment is the altered sensation on my foot soles. Even comfy cotton or polyester socks can feel prickly. I'll take that over the ache and the burning all day everyday. I still get sore feet with extended standing or walking but it seems to be slowly improving and I'm able to slowly extend activity times.

Birkenstocks are my friends, sandals at home and as often as possible weather permitting, clogs are my second choice. Soft Spot Supremes seem best for me for the other times. Shoes for the gym are another matter, I have yet to find any that I can wear for more than an hour. Socks it seems like the newer the better, a few too many washings and they seem to hurt even more.

Good luck, hope you continue in the "right" direction.
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My PN is considered Critical Illness Neuropathy. In October 2010 I left for a golf trip not feeling well, woke up in a hospital 21 days later. I was in an induced coma for treatment of Legioneers Disease. First day out of ICU I noticed the pain in my feet and as they say the rest is history.
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Old 06-05-2014, 03:37 PM #56
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Quote:
Originally Posted by Pixel22 View Post
I came across this thread and read it all the way through. My PN also started shortly after being diagnosed with a plantar fibroma. It's fairly large and on the arch of my left foot. If I didn't have such high arched feet, there is no way I could have worn a shoe. I ignored a lot of my PN symptoms for about a year while trying to get relief from the fibroma.
I've done exhaustive searches on the internet and really haven't found a link between pn and the fibromas. You are the first person I've come across that seems to have problems with both such as myself. It seems like a coincedence at this point, but I'd be interested in hearing more about your symptoms and progression to compare notes.
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Old 06-05-2014, 03:40 PM #57
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Thanks Mike, good luck to you too. It's hard to explain to people who have no reference for what it's like to have socks feel so uncomfortable. I used to love to wear a good pair of socks in the winter, and now I dread the thought of it.
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Old 06-05-2014, 03:49 PM #58
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After a solid month of improvement I have to say that the past week has been quite a disappointment. The burning has returned along with an increase in achiness and sensitivity in the feet. A few symptoms that I thought I was close to putting behind me have crept back in intensity.

As a result I've been stuck in the house trying to stay off my feet. very disappointing after I finally had a month were I was able to get out and be active. I also ran out of my gabapentin yesterday as I miscalculated how much i had left and won't be able to pick up the refill until tonight. The increased pain began before I ran out of gabapentin so I'm not confident on the correlation.

I really hope this is just a flare up. It's hard to take a step backwards after seeing improvement. The pain isn't as bad as it was in march when i was at my worst, but it's in the ballpark. I'm trying to stay positive and weather the storm. I've made it this far so I have to keep pushing through each day and hope for the best.
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Old 06-05-2014, 07:08 PM #59
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I'm not surprised you can't find much on the internet about PN and Ledderhose ( plantar fibromas). Less than 1% of the population has LD, so it would be tough to say how many of those have PN. My PN started nearly right away when I found the lump on my arch. I found a doctor in TX who has been doing enzyme injections for about 20 years with some reported good success. If it doesn't hurt, don't do anything as surgery is the worst thing for it and it will come raging back. If it does hurt to the point of not being able to walk on it, consider the hyaluronidase injections.

Sorry to see you are not feeling well. Right now I have a good day or two at the most. It's hard to get used to.
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Old 06-08-2014, 01:25 AM #60
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Quote:
Originally Posted by Pixel22 View Post
I'm not surprised you can't find much on the internet about PN and Ledderhose ( plantar fibromas). Less than 1% of the population has LD, so it would be tough to say how many of those have PN. My PN started nearly right away when I found the lump on my arch. I found a doctor in TX who has been doing enzyme injections for about 20 years with some reported good success. If it doesn't hurt, don't do anything as surgery is the worst thing for it and it will come raging back. If it does hurt to the point of not being able to walk on it, consider the hyaluronidase injections.

Sorry to see you are not feeling well. Right now I have a good day or two at the most. It's hard to get used to.
I've browsed the dupuytren-online website so I'm familiar with Ledderhose. At this point the fibroma itself doesn't bother my foot nearly as much as the PN symptoms. I also have a good fibroma in my hand which I'm sure will lead to a contraction one day. Lucky me huh?
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