I came across this thread and read it all the way through. My PN also started shortly after being diagnosed with a plantar fibroma. It's fairly large and on the arch of my left foot. If I didn't have such high arched feet, there is no way I could have worn a shoe. I ignored a lot of my PN symptoms for about a year while trying to get relief from the fibroma. Both feet burn and ache and it is now in my hands. Not being able to sleep at night is hard. I tried Nortriptyline and if or when I cannot stand the pain, I will try to increase the dose. For now, I am trying diet, supplements, acupuncture and I've stopped drinking wine as it seems to really trigger an increase in symptoms. I do miss being as active as I once was, but I am hopeful when I read posts like yours. I was barely leaving the house for some time, but I've noticed lately I can be on my feet a little more. I hope things continue to improve for you!

I can relate to what you said here:

My biggest complaint at the moment is the altered sensation on my foot soles. Even comfy cotton or polyester socks can feel prickly. I'll take that over the ache and the burning all day everyday. I still get sore feet with extended standing or walking but it seems to be slowly improving and I'm able to slowly extend activity times.

Birkenstocks are my friends, sandals at home and as often as possible weather permitting, clogs are my second choice. Soft Spot Supremes seem best for me for the other times. Shoes for the gym are another matter, I have yet to find any that I can wear for more than an hour. Socks it seems like the newer the better, a few too many washings and they seem to hurt even more.

Good luck, hope you continue in the "right" direction.

I've done exhaustive searches on the internet and really haven't found a link between pn and the fibromas. You are the first person I've come across that seems to have problems with both such as myself. It seems like a coincedence at this point, but I'd be interested in hearing more about your symptoms and progression to compare notes.

Thanks Mike, good luck to you too. It's hard to explain to people who have no reference for what it's like to have socks feel so uncomfortable. I used to love to wear a good pair of socks in the winter, and now I dread the thought of it.

After a solid month of improvement I have to say that the past week has been quite a disappointment. The burning has returned along with an increase in achiness and sensitivity in the feet. A few symptoms that I thought I was close to putting behind me have crept back in intensity.

As a result I've been stuck in the house trying to stay off my feet. very disappointing after I finally had a month were I was able to get out and be active. I also ran out of my gabapentin yesterday as I miscalculated how much i had left and won't be able to pick up the refill until tonight. The increased pain began before I ran out of gabapentin so I'm not confident on the correlation.

I really hope this is just a flare up. It's hard to take a step backwards after seeing improvement. The pain isn't as bad as it was in march when i was at my worst, but it's in the ballpark. I'm trying to stay positive and weather the storm. I've made it this far so I have to keep pushing through each day and hope for the best.

I'm not surprised you can't find much on the internet about PN and Ledderhose ( plantar fibromas). Less than 1% of the population has LD, so it would be tough to say how many of those have PN. My PN started nearly right away when I found the lump on my arch. I found a doctor in TX who has been doing enzyme injections for about 20 years with some reported good success. If it doesn't hurt, don't do anything as surgery is the worst thing for it and it will come raging back. If it does hurt to the point of not being able to walk on it, consider the hyaluronidase injections.

Sorry to see you are not feeling well. Right now I have a good day or two at the most. It's hard to get used to.

I've browsed the dupuytren-online website so I'm familiar with Ledderhose. At this point the fibroma itself doesn't bother my foot nearly as much as the PN symptoms. I also have a good fibroma in my hand which I'm sure will lead to a contraction one day. Lucky me huh?

I've had an increase in symptoms and pain the past 2 weeks, and i didn't want to jump the gun in case it was just a flare, but it seems like there is more to it at this point.

I was having a slow steady improvement most of April and May, but June hasn't been so kind yet and the past 3 days have been particularly bad and my struggles at work were reminders that I have a long way to go in getting better.

I honestly don't know the cause of increased symptoms, but the week prior to the increased pain I went on vacation for a week. During that time I indulged in more junk food, more alcohol, and more time on my feet than I have previously allowed myself prior to the vacation. It could be a combination of all 3 or just the natural progression and or waxing and waning of this awful disease. I guess the most important thing now is that I'm back on track towards treating my body right and taking it easy on harmful stimuli.

So here's a journal entry so I can look back and find clues to managing this soul draining disease.