So I have a back condition that causes spasms all the time. As of late I have the deep buzzing in my thigh that seems like it is on the top of the leg and also feel the vibration underneath where I sit. It comes and goes.

I wish I had been writing down symptoms as they progressed as I can't remember when this started this high up in my leg. Is there any way to tell compression in the back is causing this? I do get tingling on my rear and down the leg at times too --just lying in bed! But no real pain YET

I was just wondering too are some just lucky this does not spread? Are those with diabetes able to control the spread whereas those that are idiopathic don't know what they are in for and how it will spread? Mine has taken off as of late after this PT but you would think you would have more symptoms while doing this if pinching nerves but guess it takes awhile to show up???
I jerk when I wake up and at night the internal shaking is so pronounced... just everything is worse in both legs and inside me. I really don't know why this happens so fast and trying to find a way to slow it down.. I have never taken supplements regularly when diagnosed and wonder if I would be better off by now if I had.

Thanks if anyone has any input

The internal vibrations/shaking are stronger at night now. I can feel inside the buzz buzz intervals on and off I am really getting concerned with having the jerking when I wake up. I have always had muscle spasms prior to this in many different places so worried something else is going on with the neuropathy.

Just a thought but maybe it is just that at night your more focused on it. I know that is at least part of my problem. My rheumo did explain a genuine reason to me once for why things r worse at night but I can't remember it. So try not to worry so much about it being worse at night. I think that happens to a lot of us.

ILLPN
Have you had tests to check if you have automonic neuropathy? The neurologist explained to me that those fine vibrations are the sensory nerves, small fiber. The sensation is not really any tremors, it is just that the sensory nerves are damaged, and they are acting sending wrong messages, and you get the sensation of vibration. My neurologist explained to me that the medicine will interupt the sensation
I did not understand what was going on for over 1 1/2 year.
And I too, think the feelings are frightening. I first started to get fine vibration in legs especially when I was exhausted and physically tired. Now the "internal vibration" as I call it , is there all the time. Spme times when I am standing on a surface, I can feel the vibration under my feet.
Some times when I am sitting, it feels like the chair is chaking.

I suggest the book Peripheral Neuropathy by Norman Latov, MD,PhD


Best wishes
Synnove

What are the tests for this kind of neuropathy? I was told I have motor and sensory neuropathy HOWEVER the other day the dr said neuropathy only goes up to the knees. I don't think so... I don't know why this has taken off

I had my neck overstretched and pain and also had my back stretched on the flexion-distraction table. I still wonder if any of this has to do with all the shaking going on now. Or just the neuropathy decide to get more intense.
If I cross my legs, I feel it in my legs trembling away if I lay my hand up against something same thing. I feel it up my legs and hands besides inside then on top of that I get the deep buzz over and over so many kinds of sensations going on

I wake up at night and feel it in my upper back and head. I have a strange disconnect in my body. I can touch my face and get symptoms running down my legs. When I went for a session of acupuncture she put some needles in my head and waves ran down my body I don't know if that was normal but was really freaking. Can someone have all 3 kinds of neuropathy?

I had an EEG yesterday as developed myoclonic jerks in the am. I hope that stays that way... I really wonder if I have a disease of some kind as have so much tingling now. When all this started I felt some vibration... mostly felt it in my lips. I just fear pain all over I don't think I could deal with this as don't do well on drugs.

--that neuropathy just goes "up tot the knees" needs to go back to medical school; peripheral neuropathy can affect any nerve outside the brain or spinal cord, in any part of the body.

It is only the most typical presentation of diabetic and some other kinds of neuropathy that involves "length dependent die-back", meaning the nerves farthest from the center of the body are affected first, so that one gets toes, lower legs, and hand/fingers affected. Even with these types, the affected areas may "climb higher" with time if the progression is not arrested.

Part of the problem is that symptoms of compressive neuropathy, caused by actual physical, mechanical damage to nerves, or symptoms of problems with the spinal cord or nerve roots next to them, may exactly match the symptoms of neuropathy from more systemic physiological causes; this is why the search for cause if often long and expensive (and not always fruitful). But it would seem in your case they should be searching for evidence of nerve compression, perhaps through imaging, in addition to other testing.

ILLPN
The blood test to find cause of neuropathy is a set of blood tests recommended, it is generally called a "neuropathy panel", and your neurologist will know. Perhaps you already had the test. And then there are a long list of all kinds of blood tests for further workup. I find them all very complicated. Sometimes test come back negative, they just have to try over again, and there are hundreds of different complicated bloodtests, mostly to do with immune system. and autoimmune related. There are many autoimmune disorders that causes severe neuropathy. Do you have joint pains?
The ting you mentioned about burning of lips. That was one of my first symptoms. I got suspicious it had to do with an autoimmune thing.
( I belive this burning lips symptom is from the small fiber neuropathy.)

You asked : can one have all three neuropathies.
The answer is yes.
You can have peripheral neuropathy, sensory and motor and you can have long fiber, and small fiber neuropathy. You can also have autonomic neuropathy. All at the same time.

I hope you find answers, and good treatment.
The investigation of underlying reason for your neuropathy can, as Glenntaj said, often take a very long time. And it can be very frustrating.
Do not give up. If an underlying cause can be found, ant treated, chances are better. Ideopathic neuropathy (without established underlying cause)
is treated with symptom management. There are some good treatment mangament methods, nutritional, supplements and prescripition medications.
The meds often used are some antidepressant meds, they are good in targeting nervepain. They are often used in a combination with antiseizure medication such as Gabapentin or Lyrica.
Do you have a rheumatologist? Have you had diagnostic tests and X Rays for arthritis? Have you had MRI s of your spine?
Have you had EMG and NCS (nerve conduction study) of your extrimities to find possible entrapment that can cause peripheral neuropathy.
Herniated discs any where on the spine can cause pressing on nerves.
Arthritis, both Osteo and Rhematic, can also cause neuropathy.

Do you have any compression fractures? Do you have Osteoporosis?

I will recomend this book, "Peripheral neuropathy" by Dr. Norman Latov You can buy it on line
Best wishes
Synnove

Other autonomic tests include a skin punch biopsy, to determine if the number of small fibers in, say, your foot, have diminished - one sign of Peripheral (especially length-dependant) neuropathy. Also sudomotor sweat testing (an autonomic function). I know these are used to diagnose erythromelqalgia, which is an assortment of autonomic symptoms.

I'm going to get that book. Thanks!