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Old 02-23-2014, 08:08 AM #1
johnj7b7r6 johnj7b7r6 is offline
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Join Date: Feb 2014
Posts: 10
10 yr Member
johnj7b7r6 johnj7b7r6 is offline
Junior Member
 
Join Date: Feb 2014
Posts: 10
10 yr Member
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This is my first time posting here, I'm wondering if anyone has similar experience of my symptoms which just ever seem to quite match up. I have no DX but have been referred to a Neurologist who I will see in about 2 weeks time. I was referred by a Rheumatologist who mentioned that I was describing some PN symptoms quite well hence I have come here, previously I have been lurking on MS forums. I have had about 18 months of problems with no relapse.

My really troubling and depressing symptom is a dull/bruised foot pain pain, really typical of just having been standing too long. Quite literally I have pain by the time I have finished taking a shower in the morning - it starts within minutes of bearing weight. I can however walk/move continuously for a few hours before I just have to sit down and rest. I can then get up and go again although a heavy day of walking leaves me with some residual pain for 1-2 days. The heels are the worst, nothing works....no inserts, no gel heels etc. This typically doesn't look like the type of pain I see described here.

I have no swelling in the feet and a podiatrist and physio had no suggestions.

I also suffer with muscle twitching and buzzing - from my scalp to my feet although 95% is in my calves. If I flex the muscles the twitching stops.

The PN symptoms that my Rheumo commented on were the odd sensations to my hands, feet and legs. This started in my hands with an excessively dry, slippery feeling like my hands had been sanded down, I literally douse them in water sometimes to make them feel normal.

I have had an "unremarkable/normal" EMG examination on my legs about a year ago and several rounds of blood tests with little information given to me except for mildly low B12 levels and low Vitamin D which I am taking tablets for. The only good GP I saw said all my reflexes and sensations seemed fine.

The GP's have predictably labelled me as an anxiety case and it has been very difficult to finally get as far as a neuro appointment.

Finally I also have what I would say is an action tremor in both hands and some mild cognitive and co-ordination issues, my handwriting seems to need real concentration sometimes.

Can anyone relate to these symptoms? Especially the foot pain!
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