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Still in my thoughts hopeful. :) Really hope you are catching some breaks, getting some sleep.
Mr Smith. Every time I read your signature I think of the "I'm your Pain" song from Alice Cooper. And I wonder how halarious it would be to hear his rendition now, the examples of pain would be quite different I'm sure. :D |
Are you too young to remember the original? He said it in (nearly?) every episode...
Dr. Smith's Pain Doc |
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Hi Aussie, Thank you so much for your words of comfort and support. They are so appreciated!! This makes me want to scream at times. I'm having a little reprieve now. I went back up to the 60 mgs every other day. It helps somewhat with the horrible symptoms. I have also been taking. Dramimine every night. I hope it is safe to do that but I need it. Dr. Smith, Good idea on screaming in CAPS you may see some of that after this week when I go back to 30 mgs everyday!!! You make me smile!!! To everyone, Thanks so much for your kind words and support. I don't know what I would do without all of you. I would probably lose my mind!:) Hopeful:grouphug: |
I understand wanting to address the osteoporosis and the best way is to go to the source. But since you take more then one thing that can be the problem, and the cymbalta is so hard to get off of, have you considered just treating the osteoporosis?
If you still take steroids and even increase to every week vs once a month, then your osteoporosis numbers may not improve when you get off the Cymbalta...and may even get worse with the increase in steroids. There are several options to treat osteoporosis...in the bisphosphonate class. I have had osteoporosis (from steroid use) from years. I cannot take oral bisphosphonates due to gastroparesis, but I get IV Reclast...just once a year and my numbers have greatly improved even though I must take IV steroids before each IVIG infusion. Just a thought. |
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Actually, I just got home from having IVIG. I'm going to speak with my rheumo when I next see him about medication for the osteo. I was considering taking supplements for a year and have another bone scan and if it is worse then considering medication. Thanks again:) |
hopefull, hang on it will get better, I went through hell ,when I weaned myself off Lyrica. Sometimes things work, sometimes they don't, but we all keep trying. When I asked my rhum. about benfotiamine and lipolic acid, he said try it wont huirt you, its worth trying/
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To be honest maybe my mom could get it but it wouldn't be unusual at her age. Actually she only has one small area of osteopenia. She is a walker and always has been. I read the article. Thanks! I have a few of the causes. I am kinda small, white and a woman. My calcium levels are 10. My D is low just ordered it. As for my estrogen. I been on replacement for a while. I don't smoke. Drink very infrequently. Until the last three years I was into a strong exercise regime including pretty heavy weight lifting. I have always eaten veggies and fruit and taken at least a multi-vitamin before I got sick. Just saying I did mostly everything I could to avoid this from happening. That's why I was so shocked when they called to say my scan showed osteo of the spine. I was the one in my family always encouraging my sisters to exercise and eat right. Do you know they use to laugh and tell me I was the one that would get sick! Turns out they were right. Guess you never know no matter what you do.:( |
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Thanks for your words of encouragement. It's always nice to hear from people who have gotten through the same thing. Gives me hope. I think it is just going to take me longer to get through this. I do take R-lipoic acid but not benfotiamine. From all I read that is for those who have diabetes. I'll go back in the search and look it up. Thanks again:) |
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