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Old 04-21-2014, 02:49 PM #91
Stacy2012 Stacy2012 is offline
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Kitt do you also have lyme disease?? Thanks for all the info!
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Old 04-21-2014, 03:25 PM #92
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No, I do not. However, I do know a few people who have it.
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Old 04-21-2014, 04:57 PM #93
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Karen I have been reading about some people experience the "herx" as a side effect of starting DE, sorta like the candida die off. Especially people with a lot of fungus/candida and other type problems, which would make sense.

I think I am going to go very slow as you said with starting DE since I have candida.
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Old 04-21-2014, 05:57 PM #94
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Since we have been talking about lyme disease, here is a very good page on it I found today.

http://www.livingwithlyme.info/137764039
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Old 04-21-2014, 06:22 PM #95
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There also are a bunch of useful sites on the Lyme forum by Bobbi, Lara and others. Thanks for the site.
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Old 04-21-2014, 09:17 PM #96
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Originally Posted by KarenEVP View Post
Just got a text from my little sister, she's a Registered Nurse. She's worked in re-hab centers, psyche wards and now she's a school nurse (much easier and more pleasant gig, quite frankly). My sister is 46 and I sent her the mud cause it was supposed to thicken hair, make your skin and nails more beautiful, etc. She has no health problems. She just sent me a text, "Love the mud!" I sent her one back, "The mud has helped me beyond measure. Stay on the mud and you won't get old!"

When I first got this PN thing... three of my toes on my right foot went numb. Went to a neurologist in a panic, thinking MS. He did the 'shock the leg' test and told me I had an abnormality but it wouldn't be a a big deal. When I wound up in pain a few months later and thought my life was over, I was really mad at that doctor. I felt like he lied to me.

I became willing to try anything, I felt like there was a solution. I tried accupunture, which did make my foot that felt giant immediately go back down to normal size... then I started reading here and posting and trying anything people talked about. My boyfriend said I was trying too much. I told him if it was him, he'd want to figure it out before his nerves got damaged too. I felt that I was in a race against time.

The accupuncture lady told me that everyone has their own inner guidance. She said it will be that inner guidance that will help you find what you need. I knew she was right. I got it down to manageable. Again, large part because of this site, actually, more like 99.9% this site, to be exact. But I remember someone making the comment here to me, "but partly it was you because you were willing to try/take supplements."

I know Doctor Spock is trying to rain on my little Diatom Fossil parade here, and I knew someone would, but I have pain on my side. When I went back up just to see the posts, again I was horrified at what this horrible PN thing does to people. They are even painful to read, those posts.

For those ppl who have had enough of empty promises and treatments that stop working, those are the ppl who will begin to try anything. If not what I've mentioned in my post here, maybe something someone else has mentioned.

Thanks again Neuro Talk for all that you have done for me. Not just me, but me and my family cause we all know what it's like to have a family member flattened by PN. Everyone suffers.
I read it isn't to be used on skin as it sucks out all the moisture. HMMM?
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Old 04-21-2014, 10:27 PM #97
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I read it isn't to be used on skin as it sucks out all the moisture. HMMM?
I had read it isn't to be applied directly to the skin but I think you ment taking it internally. Right?
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Old 04-22-2014, 07:53 AM #98
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That is your choice, Karen. But I wanted to go on the record that I don't believe that high a dose is necessary.

Well what happened was - the same obgyn doc who told me that the progesterone "will help your neuropathy," also told me that to aviod taking estrogen (which is more dangerous) to eat all this soybean stuff per day and soy milk. At first all seemed fined and I figured it would be no problem with the neuropathy - the soy cleared up the menopausal brain fog wonderfully so I was pretty happy - although it got old kinda quck eating all that soy bean per day....

Then, after a bit of time went by, when I ingested it, particuarly the soy milk, wham - all of a sudden the nerve pain in the legs would start up. Soy is a phytoestrogen, one of the most powerful, if not THE most powerful... and it was estrogen dominance that was at least partly the culpret for my PN - as proven by additional relief from my PN symptoms that I receieved nearly immediately when I went on progesterone... which reduces estrogen dominance.

So on the one hand, same doc told me - progesterone helps neuropathy, and although that turned out to be completely true, also told me but take soy to help your falling estrogen levels - soy a phytoestrogen, increases estrogen dominance which works against the relief I was getting from the progesterone.

When my neuropathy seems to be able to tolerate something for a while, then whatever the new things is builds up in my system and beings to cause additional neuropathy symptoms, it takes me a while to realize - Oh, ok, now the soy is causing more problems my neuropathy for me than it's worth for me in getting relief from the menopausal symptoms.

During that period of not realizing what was increasing the leg nerve pain all of a sudden, I was taking the maximum benfotiamine permitted, four, 250 mg per day, that according to the instructions on the bottle, at least (so much as I can believe that) which is the Life Extention brand (by the way). I felt better doing that than taking drugs for the pain, because when the pain went away when I took the benfotiamine that made me feel proud that I was managing neuropathy symptoms with supplements.

Also, just to note, I finally (at some point) took the advice that I had seen so many times at this site from many others, and began taking 200 - 600 mg alpha lipoic acid and had even further reduction from nerve pain.

Also, Mrs. D - when I wanted to splurge on chocolate or some other neuropathy trouble making goody - I will pop my supplements before doing so hoping to minimize the increase in neuropathy symptoms - although I would still wind up paying for that slurge with at least some pricking in the toes.

Again, the Diatomaceous Earth has taken all that chocolate craving away from me, which is part of the wonderful relief I have recieved from that.

Just a story of mine as to how I came to take so much Benfotiamine, just one example too, there have been others; along the same lines as this one, just different supplements I tried that didn't agree with my neuropathy.
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Old 04-24-2014, 08:36 AM #99
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I am starting my DE today. Right now, lol. I am starting with only 1/2 teaspoon as I have read for days on a couple forums about this and some people really have the herx/detox reaction with flu, headache, pains. I do not want this to irritate my feet too much so I am starting slow and small.
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Old 04-24-2014, 10:56 AM #100
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Originally Posted by Stacy2012 View Post
I am starting my DE today. Right now, lol. I am starting with only 1/2 teaspoon as I have read for days on a couple forums about this and some people really have the herx/detox reaction with flu, headache, pains. I do not want this to irritate my feet too much so I am starting slow and small.
No reason to rush - start small!!! I got the morning head ache for a couple of days but that was it. I'm not surprised - never done a detox ever before... so I figure I was probably pretty clumped up

Great luck to you with it!
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