NeuroTalk Support Groups - Diatomaceous Earth?

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- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - Diatomaceous Earth? (https://www.neurotalk.org/peripheral-neuropathy/202203-diatomaceous-earth.html)

Wow, I am so glad I decided to go back and read this thread from the first post. I clicked on the link in your very first post and read this:

Secondly, an unexpectedly dangerous compound to avoid is N-acetylcysteine (NAC), a high-priced product heavily recommended by alternative medical doctors and other health practitioners. NAC is a form of cysteine often recommended as a more powerful form of the much-needed amino acid L-cysteine or in lieu of glutathione, an antioxidant that is rarely effective in supplement form.66 Although dozens of journal articles support its short-term use as immunity booster and detoxifier, evidence is mounting of potential long-term harm. The NAC form of cysteine conceivably can poison vitalethine, a vital component needed to activate humoral immunity.67-69

I have an unopened bottle of NAC that I just bought and was going to start taking. Glad I read this post again. True or not true I think I will avoid it for now.

Quote:

Originally Posted by Stacy2012 (Post 1065592)

Take a look here:
http://neurotalk.psychcentral.com/post1065604-5.html

There are a lot of special things the world does not hear about that are amazing.

Not hearing about something does not negate validity. Maybe it is due to no big money to be made.

Just my opinion.

But as I said, I am not validating the info just sharing.

Linked to your Facbook page

Quote:

Originally Posted by KarenEVP (Post 1057593)

Hi Guys!

My problem has been resolved but I sure haven't forgotten the people who helped me! My sugar is in the normal range, (not diabetic), but when I was was 48 1/2 this horrible PN happened to me.

Would like to mention Mrs. D. again, of course, who helped me with my Vitamin D Deficiency and allowed me to use my right leg again more than three hours a day.... took away that chronic pain in the calf, the "ball and chain leg pain" as I used to call it - first person to give me my life back. Mrs. D. :You-Rock:

Shout out again to StaceyD :hug: who told me about Benfotiamine (was taking 500mg to 1000 a day, Life Extension brand) who relieved that awful all over pricking and itching I was dealing with and the occasional electronic shock in the left cheek and left foot. Woot Woot to you, second person who gave me my life back here.

Also the hordes of you :grouphug: who told me about Alpha Lipoic Acid 600mg per day. When I added that, even more of the lighter annoying nerve pain went away (I just used Spring Valley from Walmart).

But now I have found something else and it's CHEAP :Dancing-Chilli: so I'm sharing, why the heck not. I started trying it for my knee arthritis which was precluding me from riding my bike... I started just walking but then my heel spurs threatened to return so then I was stuck, weight going up again, etc. A friend of mine from long ago at my first job after college told me about it.

Diatomaceous Earth - Food Grade (fossil flour). It just kind of looks like flour (will provide you with links) and you take a heaping tablespoon per day - or most people do. I paid 10 bucks for a giant 5 lb. bag. Because I have neuropathy, I started with only 1/3 a teaspoon per day.... My knees felt better immediately. I was able to start riding my bike again right off the bat. The fossil flour did seem to kick up the neuropathy a bit more when I started - most things do, but after about four days, the neuropathy symptom increase started backing off.

When I try something new, if it makes my neuropathy symptoms worse and worse as the days go by, then I just figure I can't use it. In this case, the neuropathy symptoms kicked up a bit, but gradually diminished in just a few days.

Now I am up to about a level tablespoon of fossil flour a day, some in the morning, some in the early afternoon. I don't take it past 4PM because it gives me an energy boost and I stop so I can sleep. Here I am about 4 weeks into it and for the fifth day in a row, I woke up with ZERO neuropathy pains - no light pains in the legs, thighs, no zipping pins in the feet (these had become manageable, but never went completely away).

I have not run to take my Benfotiamine (which is kind of pricey to take) and Alpha Lipoic Acid first thing in the morning anymore....I haven't taken either in days and days now - this is unheard of for me. I've completely forgotten to take my morning 10mg of Nortriptylene that my neurologist gave me that is an antidepressant with benefits for neuropathy... Why? Because there is zero nerves going off in my legs, not even little tiny ones. NOTHING. ZILCH. :D

Other benefits: My face looks really beautiful and much younger, family and co workers have noticed. I can ride my bike everyday now. I am literally riding my bike with a smile plastered to my face ear to ear because I cannot believe that I am climbing the trails (mountain bike in woods) that I used to climb at the pace that I cam climbing them with no pain in my knees. I can walk up and down steps with zero knee pain. I can sit and hop up from potty without a zinging pain in my knee caps. I can stand up and bend down and wipe up goop spilled on the floor without zinging pain in my knee caps. I have lost the weight, fast. Family and co workers have immediately noticed that. I no longer crave chocolate and sugar - people who know me know what a life long slave I have been to chocolate. It is so easy to walk past chocolate and other 'like items' in stores now, without picking them up. I am so much less depressed. I get so much more done in a day now. I wake up and get out of bed much more easily, no more dragging myself out of bed.

Here is the best website on it I have found. What it is, why it works, frequently asked questions, testimonials (not many on neuropathy though)
http://www.earthworkshealth.com/human-use.php

Here is one article that I found related to neuropathy. I am no doc. I have no idea if what they say is true. Diatomaceous Earth is one of those things that people try and if it works for them they keep doing it. There is not a lot of info on the web. Diatomaceous Earth is mined from the ground - it can't be patented or prescribed, therefore, not a lot of interest in 'studies' as you can imagine why - financially. But here you go, someone might find this interesting.
http://www.westonaprice.org/environm...ad-as-a-hatter

I feel I have a duty to come here and tell you guys because of how much help I was given here, how I was able to have a life again because of this site. I have no other motivation. I hope it helps just one other person, then that will make me happy, thanks for listening, Karen

Hi Karen, So are you continuing Diatomacious Earth consumption? How much how often? I must say I was shocked that you are doing this and wonder why it isn't irritating your bowel with the sharp ceramic like edges these particles have. After linking to your Facebook page and seeing your amazing wildlife Art I can see you are obviously very intelligent but pain can make people try things that bite back. Have you had any adverse effects so far?

My limbs are on fire with parasthesia as I write this and I'm about to pull out my hair!!! This mega nerve pain spike has been compounding non stop for 3 weeks and I'm praying it will subside before I'm forced back on those !!!!! meds. Thank you for caring and sharing.

Compounding Pharmacy

There is a super knowledgeable compounding pharmacy near me. I called them up yesterday and asked them if they've ever heard about people ingesting food grade diatomacious earth? They said they always keep it in stock. Apparently lots of their customers ingest it routinely for all manner of ailments.

Birdman, I am on day 4 of taking it. If you google this you find so much info on it, I found 3 great posts at different forums about it, with tons of posts/replys of people taking it and listing benefits and side effects of taking it.

Youtube Videos too!

I have researched it further and found another forum where someone else shared her personal positive experiences and lots of other people gave her a hard time because she had no scientific evidence. Like Karen all she wanted to do from the way it looked to me was share her long term observations with others. So I have researched on Youtube and there are great informational videosas well as some marketing ones. There are articles about different ways of consuming it from adding it to your protein shake to adding it to all kinds of food and some recommend taking some form of pro biotic or cultured yogurt blended with it.

As it restores your intestines you may want to replenish lost bacteria. It may turn out that adding various things with it helps some more than others. I keep hearing one teaspoon in the morning and one in the evening. Others try I teaspoon in the morning even if you are healthy. Some say if you get ahead of yourself and start with 2 tablespoons twice a day you might find it unpleasant and get massive constipation so the mantra seems to be to start with a little like Karen and increase until your body tells you what it wants after it has had a chance to get accustomed to it just like if you were trying every other new treatment.

A lot of the most popular non medical supplements we take aren't scientifically proven and FDA approved but it seems clear to me a lot of people have benefited. After establishing that there doesn't appear to be any horror stories about ingesting food grade DE I think it fair to say I'm going to give it a go too and if it works for me I'm going to crow all about it too so be warned!

After reading back from some of your older posts on past topics you have had some really tough times so I can appreciate your decision to give this a try. Where did you buy yours?

I bought mine at:

http://earthworkshealth.com/

I felt they were the best from everything I read. Yes, things are bad for me again right now even. The gaba medication worked great for one whole week, however, it has stopped working and I am back on the couch at night sleeping one hour and putting my feet in cold water every other hour. I guess I have to call the doctor Monday and let him know it stopped working.

I have not noticed anything from DE yet but I am pretty clean with detox stuff so maybe it will take awhile, it has only been a couple days. I do not see any reason to fear taking this after reading/researching it.

good luck

I am still on the "fence" with DE....

I am not finding anything useful in the way of studies to recommend it here. I will at this time not be using it myself.

I did find a person reporting that it caused rectal bleeding. So if anyone here notices this side effect, that is a sign to stop using it.

I would wear a mask while measuring it out. I do not think it is safe to inhale.

I would also suggest to take "vacations" from using it, in case it is mined from a toxic source. In the past several popular "natural" products have been found to be contaminated with heavy metals. Blue green algae with fluoride, Coral Calcium, and dolomite. These were sold for YEARS to the public contaminated.

I am finding people on the net who recommend taking probiotics with DE. The reasoning for this is that DE is purported to kill organisms in the GI tract, and this would be nonselective and include beneficial organisms we depend on.
For example, one organism is responsible for removing oxalate from the veggies we consume. Then this oxalate is absorbed and excreted by the kidneys, which can develop into oxalate kidney stones.
http://www.ncbi.nlm.nih.gov/pubmed/20602988
If over time these beneficial organisms die off, then they need to be replenished.
Antibiotics will kill off these beneficial bacteria too.

What I see online so far is a "fad". This may turn out to be very useful, but the human oral consumption of DE still remains to be examined more carefully IMO.
The FDA so far has this on the GRAS list (generally regarded as safe). But if you examine the GRAS list you'll find some scarey things. So I wouldn't rely on this classification as an FDA endorsement. Some DE is consumed every day by people, as DE is used in food production. We just don't have figures easily found to describe "how much" we eat daily.