Karen I am so happy for you that you are doing good!! That is wonderful!! People like you give hope to others.

Very interesting topic, you never know what odd thing is waiting to be your miracle. Interesting.

Wanted to add, reading your link I read this:

Secondly, an unexpectedly dangerous compound to avoid is N-acetylcysteine (NAC), a high-priced product heavily recommended by alternative medical doctors and other health practitioners. NAC is a form of cysteine often recommended as a more powerful form of the much-needed amino acid L-cysteine or in lieu of glutathione, an antioxidant that is rarely effective in supplement form.66 Although dozens of journal articles support its short-term use as immunity booster and detoxifier, evidence is mounting of potential long-term harm. The NAC form of cysteine conceivably can poison vitalethine, a vital component needed to activate humoral immunity.67-69

Interesting, I wondered how safe NAC was long term

Stacy- was it you that told me about the Befiotamine? (spell?) Couldn't remember for sure. That kept me from being bed ridden three or four days a week. that was huge for me.

Most people do fine with NAC. I have not had a problem. Good to build up Glutathione, lung health etc.

Yes, Benfotiamine has been very good for a lot of reasons along with the other supplements. I have used them a long time.

Also guys, on day three of 1/3 teaspoon per day - I started packing up zip lock bags and sending it out to all friends and family to try.

My little brother had a serious heart attack at 39; he's had high cholesterol, hereditary, since the age of 7. He had to have a stint put in. Now he has two little babies, wife, mortgage, he's early 40's, 42 I think. I was really hopeful he would try it. He agreed to, I was very relieved because one of the main benefits ppl who use it talk about is the lowered cholesterol and cardiac issues.

Also, it helps you hold onto water like you did when you were younger. I do not mean bloating here. My skin looks fab!!! I look younger. I can't stop staring at the backs of my hands cause their not wrinkly anymore - Im 50. Also, I noticed my eyes felt better and better everyday when I woke up. My eyesight improved. I was using a 2.50 reading glasses, now down to a 2.0 ! I can't believe this stuff. See how I dont care what the naysayers say? Would you?

By day four, I was up to 3/4 teaspoon. I was at work and sitting at my desk - and I just said to myself - I feel like a million bucks!!!! And I do. I hope the same for you, whether you use "the mud" (as we affectionately call it even though there's really no dirt in there) or something else... flax seed maybe, Vitamin D, what have you!!!

Love this place.

PS Mrs. D. - you may have forgotten, but I also had Lyme Disease too. Nice to see you Mrs. D.

Kitty litter is kitty litter.

Sorry, but I have a real problem with information gleaned from sources selling something. Too much puffery, weasel words, pseudo science, BS, etc....

The reason this stuff is used as a pesticide is
The stuff may be harmless to folks with healthy guts (GI tracts) but I have IBS, and know from experience that certain foods & supplements (e.g. psyllium) can be abrasive enough to cause a flare—bleeding—in my intestines.

I can't risk that again.

Doc

I would have to agree Doc Smith - doesn't sound like it's for you. I have a touchy tummy too. Never been diagnosed with IBS. That's why I started so small, 1. to find out effect on neuropathy... 2. to minimize effect on tummy.

I did have some cramping the first night, but I'm prone to it. I took one Walmart generic Immodium ID (spell?). Didn't need one after that. I noticed if my intestine felt a bit crampy, or cramps threatened, the easiest and best thing to do was just drink a good sized glass of water, 6 oz. or so.. and that stopped it right quick. I know people talk about putting it in a glass of orange juice, but I use a good size glass of water with it. The first couple of days, it made me thirsty too, but I've been shriveling up on account of menopause so that didn't surprise me. The stuff is the bomb.

Best - I get to ride my bike everday again! Whoo Hoo!!! Doesn't get better than that in my little world!

I'm sure you'll find what works for you. May the force be with you!!!

Sorry, couldn't resist

...Beam me up Scotty!

Just got a text from my little sister, she's a Registered Nurse. She's worked in re-hab centers, psyche wards and now she's a school nurse (much easier and more pleasant gig, quite frankly). My sister is 46 and I sent her the mud cause it was supposed to thicken hair, make your skin and nails more beautiful, etc. She has no health problems. She just sent me a text, "Love the mud!" I sent her one back, "The mud has helped me beyond measure. Stay on the mud and you won't get old!"

When I first got this PN thing... three of my toes on my right foot went numb. Went to a neurologist in a panic, thinking MS. He did the 'shock the leg' test and told me I had an abnormality but it wouldn't be a a big deal. When I wound up in pain a few months later and thought my life was over, I was really mad at that doctor. I felt like he lied to me.

I became willing to try anything, I felt like there was a solution. I tried accupunture, which did make my foot that felt giant immediately go back down to normal size... then I started reading here and posting and trying anything people talked about. My boyfriend said I was trying too much. I told him if it was him, he'd want to figure it out before his nerves got damaged too. I felt that I was in a race against time.

The accupuncture lady told me that everyone has their own inner guidance. She said it will be that inner guidance that will help you find what you need. I knew she was right. I got it down to manageable. Again, large part because of this site, actually, more like 99.9% this site, to be exact. But I remember someone making the comment here to me, "but partly it was you because you were willing to try/take supplements."

I know Doctor Spock is trying to rain on my little Diatom Fossil parade here, and I knew someone would, but I have pain on my side. When I went back up just to see the posts, again I was horrified at what this horrible PN thing does to people. They are even painful to read, those posts.

For those ppl who have had enough of empty promises and treatments that stop working, those are the ppl who will begin to try anything. If not what I've mentioned in my post here, maybe something someone else has mentioned.

Thanks again Neuro Talk for all that you have done for me. Not just me, but me and my family cause we all know what it's like to have a family member flattened by PN. Everyone suffers.

KarenEVP, You posted that you had a "shock the leg" test. Do you mean EMG/NCV testing? The doctor found only a little abnormality but it wouldn't be a big deal. Curious as to what was actually found if you don't mind sharing. Thanks.

Not quite (though if you're going to refer to it as mud, ya better expect some slinging), but I'm getting used to being misconstrued.

I do have some reservations, and eagerly await MrsD's looking into it. I would myself, and perhaps will, but I have some other things on my plate at the moment, and family comes first.

But most of my comments have been strictly humor. If I can find humor in my own pain (Dr. Smith — Oh, the pain... the pain...) then you can bet I see it in a lot of places.

We've had similar discussions about N-acetyl-cysteine, which some other folks couldn't handle because it's made from human hair and duck feathers.

http://neurotalk.psychcentral.com/thread193882.html

I've recommended the stuff many times, especially for people who take a lot of Tylenol/acetaminophen, because it protects the liver from damage.

IME, (and I find it funny because I also see it in myself) there's no fanatic like a convert. I can cop to the same sin with adrenal hormones, RLA, and B5, and you're right—they work for me.

I make no apologies for my skepticism—or my sense of humor; I come by both honestly.

Doc

I read it isn't to be used on skin as it sucks out all the moisture. HMMM?