Hi everyone,
I haven't been to the forum for a couple of years, so had to re-register.
Does anyone have there PN progressing up the limbs? I started with the burning feet and hands, it has been almost 30 years. I started having the sensation on the top of my feet and ankles, now it has progressed up to my knees. Likewise it is progressing up my arms too. Another new twist, I find that I am having painful finger joints, I saw a Ruemitologist to get checked out for RA, but the tests came back negative for it. We think it may also be PN related.
The first line of NSAIDs did nothing (duh) the Gabapentin just made me forget everyone's names, and give me tachycardia, so now I am taking Piroxicam, but since I do not have inflammation, it is another failure.
My father had PN so bad, toward the end of his life, he lost the feeling of his legs from his knees down, he said it was like a fuse burning up his legs. He also had widespread muscle stiffness' (which I also have) so I am thinking that it maybe small fiber Neurapathy. I was thinking of FMS, but the Ruemi said that "only women get that", and when I told her that my father had the same symptoms she said "she did not know my father"... I like her though, she is spunky.
I have tried all the usual things over the year, but I am looking into all the options.
Sorry to ramble on...