NeuroTalk Support Groups - What does healing feel like?

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Really? I shared those test results with you two years ago and you said it was just because I had not stopped taking my B vitamins.

That is also a possibility but really 4000 is way out there.

Could be a lab mistake too.

I had posted and asked you about my MMA results, which to this day I really never understood. I dunno, I just put them away and moved on.

Stacy here is the thread where I address your level of 4000:

http://neurotalk.psychcentral.com/ar.../t-179340.html

Quote:

mrsD
11-06-2012, 02:09 PM
There is no published evidence that high B12 levels are harmful.

Most of the people here keep their levels above 1000. There are some at 2000.

I trialed the new Puritan's pride version of methylB12 last year and got test showing 1999 ...mostly to see if the product was
labeled accurately.

The only concern with high B12 serum levels is that it may mislead the doctor, as far as the medical causes for high B12 in the face of NO supplementation. Some kidney disease, liver disease and blood diseases may raise B12 as a warning sign.

If you are using a supplement, a high level is no surprise, however. But in and of itself it is not harmful.

Any odd or suspicious test should be repeated. This would rule out lab error, or mishandling of the sample. If the red cells burst (which happens sometimes), they dump their contents which include B12 into the serum and inflate the result.

I've posted many times on NT about factitious results like this, as it is pretty common with potassium too.

But you really need to know, if you are sustaining levels of 4000 for a period of time, you need to know what your levels are without taking supplements. Since you are under a doctor's care and have been so...you should follow up on this.

Sustained high readings when no supplements are used, implies a disease state of some kind...most of them are serious.

So while the B12 is not in itself harmful, the signal of a high level may need to be followed up on.

Here are my MMA:

My results:

B12 serum >3000 pg/mL High Range 193-982
MMA
Methylmalonic Acid >0.08 nmol/mL Range >0.40

Does this mean anything to you because I never understood it.

I will retest B12 next time and maybe I will stop taking it altogether for a month before I test.

Oh, also it was 3,000 not 4,000

The MMA test shows if B12 is actually working.

A high result indicates B12 is NOT working.

So a desired result is a low number.

http://www.nlm.nih.gov/medlineplus/e...cle/003565.htm

Quote:

Normal Results

Normal values are 0.08 to 0.56 micromoles per liter.

Your typed result is confusing. It is unclear to me what it supposed to mean, and what YOUR result was... It looks to me like it is only a range given.

The upper range may vary from lab to lab.

I just looked up my original lab result and it is exactly as posted above.

The 0.08 is my lab results and the 0.40 is the reference range, only that one number.

I never did understand it not then or now. I called the lab and they didnt explain it to my understanding either so i gave up. Other than it is a higher number than the reference which means I am low in B12 even though my B12 test is so high. not that I understand that.

.08 is much less than 0.4....

MMA builds up in the body if B12 is missing, or not working properly.

So a good MMA result is a very low number. The .4 I guess is the upper part of their normal range, and anything over that is considered pathological and poor B12 levels.

ah, well, I guess that was a good number to get for MMA.

Guess I will stop B12 and have it checked some time.

Thanks MrsD!

I'm hoping to share in the answer soon. Yesterday was brutal pain wise, and I'm proud oh myself for powering through without getting mentally overwhelmed. Maybe it's just the prozac I started taking for all this which seems to make me feel emotionless lately :rolleyes: Anyway I tried telling myself that the increased pain and symptom change is a sign of healing. If not I'm going to be in an increased world of hurt shortly.