On SSDI......Please stay in contact with your lawyer and read up as much as you can on getting disability. I also included letters from former co-workers stating how I loved my job and that they thought that if I could work I'd be right out there getting a job.....letters from my son, daughter, daughter in law and my very wonderful gyn ! I got that idea from the internet......when you fill out the daily living forms you need to think about how you feel on your worse day and use that info. After reading your posts I'm sure you are like me and that my worse day sucks and I'm in bed all day. And side effects of your medications are very important also. I had so much foggy brain at the time I had to look up the effects of each med on the internet and pick out what the side effects were. Didn't have sense enough to just name them by myself. Nothing worse than trying to fill out very important paperwork when you can't even think straight

I actually cried when they approved me.....just such a relief and I also knew that I could concentrate on my SFN without that big SSDI cloud over my head.

Boy that med you talked about above, Levorphanl looks like some mean stuff.....you know it's only given by injection right ? If you said how old you are I missed it totally...(I'm 51) are you on Medicare ? What about Tri-care ? My mom and dad use/used that since he retired from the Air Force. Some of her prescriptions are like $5.

And I'm a chatty Kathy.....also up for a good jawin'. When I feel like it. I'll go missing for a day or two from the site because I feel like poo but always get back on looking for info or something to get into

Let me know if any of this helps.

Debi from Georgia

You got a smile from me....I wish you luck, and will keep you in my prayers...God Bless!

Your post certainly caught my attention eddie! I am cured also, at least IN MY DREAMS. Thanks for the much needed smile. CeCe.

WOW!!! Talk about Pain!! Trying to use smartphone to write a post is a Real Pain. My laptop has a Hole in it, a Black Hole. Whenever I try to use it, I get sucked in to its Internet Black Hole for hours and hours.

No. I had no idea Levorphanol is only avaliable as a shot. I had put my hopes on it. And felt my heart sink to my stomach when I read your saying its a shot. That only leaves Hydromorphone (Dilaudid) I've had this about 3 times over the past 10 years. And they helped, a lot. I called them my "go to Hell pills." Because the Whole World could "go to Hell" and I wouldn't care. But doctors did not want to prescribe contiuosly, regularly.

I'm a Young 58 year old male. I was the Millwright at a log cutting saw mill for the past 18 years. But the last 5 years was a down-ward spin into bankrupcy and selling off land and all. I was their last employee. I had the same supervisor this.whole time , up to the last 2 months when he left to go work at another saw mill.

I only have 1 letter in support of my SSDisability, and its from my supervisor, covering my downward spin, from his hiring extra helpers for me, to my hurting so bad that I could only work 2 or 3 days a week, and how I was allowed to sit and prop my burning feet up.for half an hour 5 and 6 times a day.

Your getting letters from family and friends has inspired me and added little more "hope" for me. I'll be working on this. There is a lot of people that know my condition. I just got my last unemployment check. I have a house I normally rent for $600. But it has been empty close to year because I simply cannot finish the work. If the PN in my feet slacks off enough to where I can walk around, then it's only a matter of 10 to 15 minutes before my back is killing me, as in looking for a hole 6 foot deep to crawl in and be covered up.

Yes, have Tri-Care Standard. I was 30% Medically Retired crom the.Coast Guard due to motorcycle accident in 1978tatdestroyed my right foot. It's just like I had been in 20 years, except my retired pay is much, much less. And yes, some generic meds are cheap as $3.00. Name brand Lyrica is about $35 a month. What gets me is, its same price for 1 month, no matter if for 30 or 240 Lyrica per month.

I'm very Thankfull for all replys and any Suggestions, as well as bearing how others live and cope with PN. A criend from Scotland I met on FaceBook PN told me of NeuroTalk. I started reading here little over 2 weeks ago and went out and spent over $100 on Virimans and ordered Benfotiamine and D-Ribose from Amazon. Can't say if any of all this is helping. But can say when I went overboard taking it all I did get sick; freezing cold with temp little over 101 degrees.for about 6 hours for2 nights in a row. Stopped taking everything and went back with a few at a time to zee if I can figure out what I did to myself. OK enough about me.

One last thought on letters to SSDisability: I have about 12 people that are waiting to rent house. Several have beeninside and I showed them what's needed to be done. It's a funny thought to show SS letters from hopefull renters who can show my pain is keeping them from renting. ;-)

I have improvement in my hands and feet by taking a vitamin called long life vitality by doterra. I also rub my feet with esential oils by the same company. I have not stopped my meds but I have cut back some feet no longer burn and I rub them witout pain