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Old 08-07-2015, 04:30 PM #201
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It is a wonderful tool to have around. It does not cure but it does help many of us with chronic pain.
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Old 09-20-2015, 10:51 PM #202
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Default what you found worked

I'm looking to try what you've done with the CBD. I was hoping for some more specifics of what you've found worked for you - trying to find a base to work from. Things like:
  • what brand CBD you have used and like and how do I know the right type of company to get it from so it's the real deal,
  • any you don't like,
  • is there a strength level of your CBD (been a bit confused on the different websites and trying to figure out a baseline),
  • how much do you take as a dosage,
  • once a day or twice or more,
  • how long before you noticed an effect,
  • have you maintained your dosage or has it increased over time,
  • recommendations for someone starting off

I appreciate your posts and hope that the pain relief has continued. Could use some myself. I've got PN with the cause unknown, take minimum 600mg of Lyrica a day, I can function okay but it's wearing on my body after 5 years. I know you aren't a doc so my questions are more what have you learned from experience. I'll be ordering it online to be delivered to a state that does not allow medical mj but from what I've seen for ordering the CBD as the primary it's not an issue.

If you'd prefer to send the answer as a private email I can allow that through the site, currently I don't, you'll just need to respond saying so.

Thanks for considering.
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Old 09-21-2015, 04:36 PM #203
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Default fork in the road

Can't wait to hear about your results ,as I too have IPN
Quote:
Originally Posted by beatle View Post
I live in Colorado where cannabis, both for recreational and medical purposes has recently become legal. For two years, I have suffered from debilitating PN and like many others, I have submitted my person to science in many ways for all of the testing associated with ruling out underlying causes. I am glad I did it. I have earned my PN badge. It’s not something I ever wanted but there it is. Also like many others with PN, the underlying cause in my case is unknown. I don’t have cancer or HIV and I was told that unless I changed my lifestyle dramatically, I will never be diabetic. I have been tested for everything that the best neurologists can think of and my Peripheral Neuropathy was determined to be idiopathic in nature, aka IPN.

Since the onset of my symptoms, I have educated myself, poured tens of thousands of dollars into it and devoting myself to making it all better to ultimately improve my now diminished quality of life. I have been prescribed the typical: Gabapentin, Klonopin, Lyrica, Cymbalta (in that order) and oorecently compounding cream. I have tried countless OTC supplements & creams, literally countless. I have three shelves of them and routinely go through them to box the ones that I am sure haven’t helped to make room for the new ones that just arrived. I use devices like The Rebuilder and Anodyne, I even own a traction device. I have built an arsenal of the things that help a little but I am nowhere near where I need to be, having my condition managed so I can go on with my otherwise happy, successful, great life. I recently ran into a snag with my insurance covering Lyrica (which isn’t all that great IMO) and while that was being sorted out and I was spending the usual countless hours researching PN in my endless search for relief, I came across a reputable study on cannabis and then the pain relieving components of the plant. Then I read another study and another, all posting positive results in the area of treating neuropatic pain. Why haven’t I tried this?

Everyone is different and what works for one, may not work for another so I don’t know how long this thread will travel but I am at a point where I will try anything and today I am trying CBD, the organic, pain relieving component of the marijuana plant. There are no psychoactive properties, there is no high or smoking but rather just the pain relieving benefit from the plant. If I am willing to put all of these lab-manufactured chemicals in my body, why not try something that grows from the earth? It is legal and available here and there is research to support it so I am going to give it a shot.

I'll post back with my experiences, positive, negative or neutral.
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Old 09-25-2015, 09:38 PM #204
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I do find it helpful at times but like with every other therapy, it does not help everyone, tolerance is an issue, there are psychoactive effects from THC and the most effective delivery method is inhaled into the lungs.

It's not for everyone.
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Old 09-27-2015, 07:59 AM #205
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Quote:
Originally Posted by Patrick Winter View Post
There are proven links to long terms issues from Marijuana issues as well as abusers with psychotic tendencies. Also, the evidence of cannibus with neuropathy relief is similar to that of the current drugs that are pushed in that they mask the symptoms and do not treat the underlying issue. i would be wary of many current articles looking to selectively promote marijuana for the good while ignoring the bad. I am not against medical marijuana, pain is something no one should suffer with long term, but to say its completely safe is simply ludicrous. Marijuana is a drug, just because its a plant doesnt mean it is wholesome and wonderful for you. It can be abused like any other drug. And there are confirmed studies showing its damage on the brain.
1.I just read through this whole thread. I haven't tried mj yet (for neuropathic pain). Back in my high school days I was pretty experienced though.
I don't see how on earth synthetic opiates, muscle relaxers, and drugs like neurontin and lyrica can be anything but worse as far as health and side effects go. NO way! We have yet to find out what will happen to a young person who is on these cocktails for 20, 30, 40 years. I think the majority of peace loving hippie pot heads from my parents era are actually pretty healthy (doing yoga and drinking smoothies now and they smoked for 5, 10, 20 years- some still do. I personally do not believe it's a gateway drug. It might be addictive to some people, but no more than the crap handed to us by our doctors. I could go on and on about how ridiculous I think it is that alcohol is legal when marajuana isn't, but that's not the point here.

2. Wouldn't tea bags filled with a measured dose be a good way to administer the bud? It isn't legal here, but I am trying to think of options for my future since I am young and this might be the rest of my life.
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Old 09-27-2015, 09:36 AM #206
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Default Anti inflammatory properties

Health girl I am with you 100%. I don't know about the tea bag method. If you are looking to use it for sleep I have found the best way is to make your own cookies. PM me if you want the recipe.

MJ does share a common thread with all those horrid prescription drugs we are routinely prescribed and that is your body will develop a tolerance and you'll need more. I have also read it may deplete your body of zinc. I have not been able to substantiate that yet on a credible website.

However, and this is a big however... The biggest thing mj does not share with
those other pharmaceuticals is mj has amazing anti inflammatory properties. I was recently told by a PH.D in Neurology who does research for a very prestigious teaching hospital that marijuana and estrogen are the 2 things I need most right now for my PN. We didn't have time to talk about the estrogen so I don't have that information now. Interesting.....
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Old 09-27-2015, 07:07 PM #207
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I found edibles useful. Smoking too. I am hopeful that my neuro is involved in NYS program that launches in 2016. If not I will discuss options for obtaining another doctor to start the 6 month process of being his patient prior to prescribing it, as NYS has odd parts to the law, including no combustion of actual marijuana- oil, tincture, edible only.

Doesn't trouble me, save it seems to show special interests who make devices and such were considered. Oh well.

Like Healthgirl I am a bit young to be okay with "here take all this Lyrica you'd like". I decided around six months ago to see how I'd do without it, as chronicled elsewhere, as the side effects were too much and the pay off, decreasing.

My symptoms march on. I'd love to have some of those 10 mg sugar free candies around from CO or a vaporizer for some comfort. Perhaps I could enjoy more than one in ten meals.

But then the world might collapse, because cannabis is evil, right?

I am thrilled so many get an option to try it to treat pain, even happier it works for many. If it seems to worsen symptoms or make up upset or trouble you, like anything in this world everything is not for everyone.

So, yeah, stumbled in here while waiting for my boy to fall asleep. The pulpit is yours, whomever is next.

The backup dude to surfer00 abides.

Jon
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Old 09-28-2015, 11:01 PM #208
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Beatle! I live in Denver and my children want me to try weed in vapor form. I am so sick with SFN. I have NO pain but extreme pressure inside me with numbness in feet and left hand. I have trouble walking and cannot sleep.....I have a bladder disease which is under control. I have trouble eating. I cannot wait to hear your results. Let us know!!! Kate
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Old 09-28-2015, 11:43 PM #209
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Hi Kate!
I started this thread a year and a half ago.

Cannabis does occasionally help with neuropathic pain, it does not have any affect on numbness and does not improve walking (unless perhaps a deficit is caused by pain).

It may provide some benefit with eating and sleep but with your bladder disease and other symptoms, you should really discuss the idea with your doctor. Many doctors have changed their tune lately and now support its use for some conditions.

Good luck!
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Old 06-20-2019, 04:52 PM #210
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Default Entourage Effect / Multiple Cannabinoids Working Together

I'd be interested to hear a little bit more about how specific cannabinoids help with neuropathic pain. THC is different than CBD which is different than CBD and CBN and CBG...

I've read a few studies that suggest a mixture of cannabinoids (full spectrum or broad spectrum) is the way to go in terms of generating the best possible effect. Apparently, the effects of straight CBD aren't as effective as CBD mixed in combination with other cannabinoids. Since there are many, this makes coming up with the combination that much more difficult. Here's some more info on the entourage effect that I found useful.

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