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Old 04-09-2014, 06:06 PM #1
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Thank you very much for getting back to us so quickly. No doubt many, like myself, will be a little skeptical for a few more weeks, waiting to see if this effect continues to work for you over time. However, it does indeed look very promising.

I'm rather excited to get my hands on this, but I doubt it's available yet in Australia. Will make inquiries though. I also smoked it many many years ago, as a recreational, social drug, at the beach with friends. Life was free and easy then, and we were harming nobody.

Just looking into it a little now and I see it's looking promising in some cases as a cancer preventative. Impressive!!

Keep us informed, please.
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Old 04-09-2014, 07:00 PM #2
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Thanks Debbie,
I definitely will keep updating with my experiences, good or bad.

Here are my concerns:

- That I build a tolerance and over time, need more and more to reap the benefits of pain relief. A very realistic concern.

- That it stops working. A year ago I was prescribed clonazepam (Klonopin) by a neuro and I did very well for a few weeks before it stopped working completely. Benzodiazepines are known for that and CBD is not at all related but I am a skeptic by nature and would need a significant amount of time to go by before I could cross this off the list.

- That is becomes unavailable or a shortage occurs. This could happen with anything but the way things are going here in the US, medical marijuana laws are gradually changing, resulting in more competition and hence, more availability. Still, it's something that I have thought about.

Dependence I do not worry about at all. I have already weighed this out and given the choice between being bedridden with PN as I have been or dependent on swallowing a pill or wearing a patch every day to function like a healthy person...

Right now, I am very much enjoying this relief with a clear mind. It has been a long time since I have felt this normal and CBD has so far exceeded my expectations.
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Old 04-10-2014, 01:06 AM #3
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Quote:
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Here are my concerns:

- That I build a tolerance and over time, need more and more to reap the benefits of pain relief. A very realistic concern.
If this happens, periodic breaks—medication vacations—should work well.

Quote:
- That it stops working. A year ago I was prescribed clonazepam (Klonopin) by a neuro and I did very well for a few weeks before it stopped working completely. Benzodiazepines are known for that and CBD is not at all related but I am a skeptic by nature and would need a significant amount of time to go by before I could cross this off the list.
I haven't heard of this with CBD, but time will tell. If it happens, I would try the same "vacation", as it may just be a tolerance issue.

Quote:
That is becomes unavailable or a shortage occurs.
Given your location, is this really an issue? I would think that if it proves a successful therapy for you, you might naturally move on to self-supplying (growing your own of an appropriate strain).

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Right now, I am very much enjoying this relief with a clear mind. It has been a long time since I have felt this normal and CBD has so far exceeded my expectations.
Following with interest.

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Old 09-08-2014, 09:55 PM #4
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Yesterday was the first day I have ever tried a CBD product in my life and it was a good day. I almost posted here last night but I didn’t want to speak too soon. I have had other good days with PN - okay, not great, but certainly functional. The best way I can describe my experience yesterday is uneventful. No brain fog or high, nothing like that. In fact, I could think clearer because I was not distracted by PN pain, it was simply gone. That is what I noticed about it, that the stabbing pains and electrical shocks were not present. The tingling was also much less noticeable. Normally the tingling antagonizes me constantly and it was still there, far less though, barely noticeable in fact and not bothersome. The numb parts of my feet remained numb however and I don’t think anything can change that besides possible nerve regeneration and that happens over a long period of time, if ever.

This morning, I woke up at 7:00, feeling normal, still no pain, no grogginess either (like I get from Lyrica as I am hypersensitive to most medications; a downfall with my PN), and no pain all day today. I have had good days in the past but two in a row is not typical for me. I was outside today for the first time in I don’t know how long, walking without any pain, with a clear mind and still numbness in my feet. I am being very cautious about this and carefully monitoring myself and waiting for the pain I haven’t felt for the past day. If it all ends tomorrow, I will report that and if I continue to do well, I will report that too.rl]
This is what I experience when smoking, I think it's the Sativa strain, pot. Incredible, no?

Hoping this continues to help you, as it does me.
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Old 09-13-2014, 08:39 PM #5
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Default Study of THC/CBD spray in peripheral neuropathic pain.

http://www.ncbi.nlm.nih.gov/pubmed/24420962
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Old 09-13-2014, 10:29 PM #6
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is there a pharm company behind this research? I'm not sure if NIH gets their money for research from pharm companies.
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Old 04-09-2014, 07:08 PM #7
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I would bring this to the attention of your doctors. Since you live in a legal state, it is worth trying to see if it helps. Some pain specialists won't prescribe any medication if you use MJ, even if it is in a legal state. I am involved in getting this issue on our ballot here in Florida. I tried it when I had a window of opportunity, as I do get tested for drugs. It did help, so I went on to fight the correct way, through the legal system. PN is strange, that's for sure. I have it in multiple areas. I do think mj is less damage than opiates. If you use a vaporizer, or better yet the MJ that doesn't have THC, then you are getting the benefit without smoke or the high associated with it. The 6 brothers in your state are growing different kinds for many patients. Get in touch with them and your doctor. Keep us posted on your experiences. ginnie
I am holding off on reporting anything to doctors. This is new for me Ginnie and need to be methodical how I proceed. I am doing baby steps with it. I too believe MMJ is better than opiates. I also know about the brothers here. They are helping a lot of people right now. I too am getting help that I am grateful for.
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Old 04-10-2014, 11:57 PM #8
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I am holding off on reporting anything to doctors. This is new for me Ginnie and need to be methodical how I proceed. I am doing baby steps with it. I too believe MMJ is better than opiates. I also know about the brothers here. They are helping a lot of people right now. I too am getting help that I am grateful for.



This is fantastic news ... wow!

I also always tell anyone with "Idiopathic" pain such as yours to explore Lyme Disease and be properly tested for it!

Please keep giving us regular updates!

David

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Old 04-29-2014, 05:45 PM #9
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Default Medical Marijuana for PN, CRPS, and SBS

Hi Beatle, I just joined this neuro board in hopes of communicating and sharing resources with others seeking pieces to this frustrating and painful anatomical puzzle. I spent 18 years navigating through many of the same doubters, dilemma's and lack of knowledge by doctors and society waiting for technology and research to catch up. I had a fall that led to ankle surgery where everything that could go wrong did. Two years after my CRPS was diagnosed my colon and organs began failing until I lost my small intestines to an ileoanal pouch. Each year has brought more surgeries, debilitating diagnoses and new Rx trials all as the result of my original PN to the tune of #33 to date. PN has affected my guts, organs, bones, tissue, skin, hearing, hair loss, and equilibrium, not to mention my mental health and depression. The most benefit I've received to date has been from adding medical marijuana capsules with 28mg of cannabidiol and less than .05% of THC. These capsules have reduced inflammation, nausea, migraines, joint pain and depression. I take Indica MM capsules at night to help me sleep which have worked wonders. The therapeutic benefits of using the entire plant have been documented as far back as 1700's in Europe, Egypt, the UK and other countries. The salves, lotions, and teas also have extensive healing properties with ZERO negative affects on the mind and body. In 30 days my muscle spasms have reduced by 50% as has my nausea, vomiting and inflammation. If we can't cure it why not manage the negative symptoms the best we can. Let me know if you're interested in reading further information on these capsules. I hope your experience has been as positive as mine.
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Old 05-16-2014, 01:19 AM #10
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Hi Beatle,

Thank you for posting this one, I think it's an important thread to help with pain, unfortunately it's absolutely illegal in this country. I have tried it though, smoking and is once made brownies with the proper weed and it didn't help with my pain at all, chilled me out maybe but that's it no pain relief, I haven't tried it since. As you said yourself what might work for one may not work for another.

Best of luck with it yourself, I hope it gives you some relief. I would like to see legalised in this country but Holy Catholic Ireland nope, it would be a sheer disgraces to allow this madness into the country! I'm taking the p**s out of priest and their law abiding ways except when it come to children of course?

All the best,

S


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I live in Colorado where cannabis, both for recreational and medical purposes has recently become legal. For two years, I have suffered from debilitating PN and like many others, I have submitted my person to science in many ways for all of the testing associated with ruling out underlying causes. I am glad I did it. I have earned my PN badge. It’s not something I ever wanted but there it is. Also like many others with PN, the underlying cause in my case is unknown. I don’t have cancer or HIV and I was told that unless I changed my lifestyle dramatically, I will never be diabetic. I have been tested for everything that the best neurologists can think of and my Peripheral Neuropathy was determined to be idiopathic in nature, aka IPN.

Since the onset of my symptoms, I have educated myself, poured tens of thousands of dollars into it and devoting myself to making it all better to ultimately improve my now diminished quality of life. I have been prescribed the typical: Gabapentin, Klonopin, Lyrica, Cymbalta (in that order) and recently compounding cream. I have tried countless OTC supplements & creams, literally countless. I have three shelves of them and routinely go through them to box the ones that I am sure haven’t helped to make room for the new ones that just arrived. I use devices like The Rebuilder and Anodyne, I even own a traction device. I have built an arsenal of the things that help a little but I am nowhere near where I need to be, having my condition managed so I can go on with my otherwise happy, successful, great life. I recently ran into a snag with my insurance covering Lyrica (which isn’t all that great IMO) and while that was being sorted out and I was spending the usual countless hours researching PN in my endless search for relief, I came across a reputable study on cannabis and then the pain relieving components of the plant. Then I read another study and another, all posting positive results in the area of treating neuropatic pain. Why haven’t I tried this?

Everyone is different and what works for one, may not work for another so I don’t know how long this thread will travel but I am at a point where I will try anything and today I am trying CBD, the organic, pain relieving component of the marijuana plant. There are no psychoactive properties, there is no high or smoking but rather just the pain relieving benefit from the plant. If I am willing to put all of these lab-manufactured chemicals in my body, why not try something that grows from the earth? It is legal and available here and there is research to support it so I am going to give it a shot.

I'll post back with my experiences, positive, negative or neutral.
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