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Old 04-13-2014, 03:55 PM #11
Kitt Kitt is offline
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Quote:
Originally Posted by nilram View Post
I have two rectangular dishpans--I fill one with warm water and the other with cool water. I'll soak in warm water for a couple of minutes and then in cool water for a half a minute, repeat that a couple times, and it gives me some temporary relief. Experiment and do what gives you some relief. Hot, warm, cool, cold, icy. Wet, dry.

One PT told me to rub my feet vigorously with a terry wash cloth--I don't do that very often, but perhaps I should. Let my nerves know that they're needed and they shouldn't be abandoning me.

With moderation, though. Stacy points out some issues that can happen, and there have been reports in the medical literature of people getting frostbite because they're seeking relief with icing. Sigh.
CMT damages nerves and they are not coming back. CMT is progressive.
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Old 04-13-2014, 04:38 PM #12
nilram nilram is offline
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CMT damages nerves and they are not coming back. CMT is progressive.
My comment about telling my nerves to not abandon me is tongue-in-cheek. They're going to do what they're going to do. The rest is for those who are discussing using temperature & foot baths to obtain some relief from discomfort.
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Old 04-13-2014, 05:37 PM #13
Kitt Kitt is offline
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No problem here. I get what you are saying. Just reiterating that anyone with CMT who is reading this should know, if they do not already know, that we have nerve damage and our nerves are not coming back no matter what we do.

I do agree with you as you posted "the rest is for those who are discussing using temperature & foot baths to obtain some relief from discomfort".
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Old 04-13-2014, 07:02 PM #14
AussieDebbie AussieDebbie is offline
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Thank you all for your ideas and input. I appreciate getting your opinions and experiences.

I guess I'll continue to trust my instincts and stick with the warmth. Not that it gives me relief from the PN pain, but it gives me relief from the bitter cold feeling. Perhaps it's psychological, but heat makes me feel slightly better.

Mrs D..... I'd not heard of RSD before, so read up a little. Very interestingly similar to PN in many ways. Overall, I don't think it suits my symptoms because I lack any sort of skin condition or muscle weakness. My symptoms are worse at night and fit more with PN. However, when I see my GP in a few weeks I'll run the idea past him next time he runs blood work to check for it. Thank you for pointing it out as I'm definately still open to ideas, no diagnosis here yet and not seeing one in the near future!

My GP is almost at a loss, suggesting we consider Plantar Fasciitis, so I'm humoring him by strapping, wearing arch support, etc. My Neurologist is done with me, she has no tests left to run. I'm going to request a referral to Podiatrist next time. With this condition slowly, very slowly getting worse, there will come a day I cannot work at all and will require G'vnt assistance. When that day comes I need a diagnosis!


Thanks again all.
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