NeuroTalk Support Groups - Neurologist said "it's not PN, its Neuropathic symptoms"???

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- - Neurologist said "it's not PN, its Neuropathic symptoms"??? (https://www.neurotalk.org/peripheral-neuropathy/203871-neurologist-pn-neuropathic-symptoms.html)

Quote:

Originally Posted by hopeful (Post 1066570)

Hi Yu Ping,
Has your doctor suggested a skin biopsy to diagnose small fiber neuropathy? It isn't a bad test to go through and may give you the answer you are looking for. I am also curious whether you have had an EMG/NCS as echoes posted. If your doctor has not done this testing, I would suggest you request he order them.

It sounds like you are reluctant to take medications and I agree. It is a difficult decision to make. I just hope you are not suffering needlessly when there out some treatments out there that may help alleviate some of your pain.

Hang in there it took most of us a few years to get our diagnosis.

Hopeful

Hi Hopeful,

No skin biopsy for small fibre neuropathy because the Neurologist doesn't believe I have PN but neuropathic symptoms…. The NCS test was normal and no EMG test was order. However, my neurologist did use a small sharp pins to poke me all over. After many "ouches" and some "moaning and groaning", he declared I am normal.

I understand what you said about suffering needlessly, I will try to live in the present, and take the medication when necessary, rather than worry about what side effects and addictiveness of the medication. Thank you. Yu Ping

i would see another neurologist and get another opinion

Exactly what Echoes said!!

I also ditto what the others have said. Get another opinion. If your neurologist is a good doctor he will not mind you doing that.

I hope you get some answers!

I agree with the others.

Quote:

Originally Posted by Kitt (Post 1067005)

I agree with the others.

Hi Kit,

I really like the saying - "It is what it is, it's not what it was, it's not what it could have been, it is what it is". I often say this to myself and it helps a lot. Thank you

:Wave-Hello: It is so true for me. And for many others. :Thanx:

I do not think switching nerologist is that easy, at least not for me. You have to be referred for your insurance and my dr referred me to the one I am with and it is not going to be easy to switch. I hate that insurance and medical industry makes everything so dang hard. :(

But if you can switch I agree.

i never had a problem getting a referral for a second or even third opinion.

Most insurances have provisions for second opinions. Shouldn't be too hard.