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Old 05-14-2014, 10:30 PM #21
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en bloc en bloc is offline
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Join Date: Feb 2011
Location: Shenandoah Mountains, VA
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en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
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Very happy to hear you are using (and she's okay with it) the gaba over the course of the day instead of just at night. It really is the typical dosing.

May I ask why you oppose the skin biopsy? It is the ONLY test to look at small fibers. EMG and NCS cannot look at these. Not to mention that the skin biopsy is a very effective test, that can also be done over and over to gauge progression or improvement of SFN. It checks not only density, but condition of the fibers them self.

I'm not talking about a sural nerve biopsy...that you should stay away from for sure. The permanent damage isn't worth the info gained. But skin biopsy is very minimally invasive, leaves has no ill effects, and provides detailed info.

I do have a handicap tag...have had one for years. I have both cardiac and balance/walking issues, but to look at me (other then my cane), I don't "look" handicapped...so I have gotten some stares. I can only imagine you trying to walk on your swollen painful feet...so I would ask her about her considering you for one. The worst she can say is NO.
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