i have had pn now for almost 13 years. the pain has defiitely lessened as the numbness has increased. i still get shocking, squeezing, stabbing and burnng pain sporadically but it is much less and the throbbing pain in gone. my main pain problem now is the broken bones type pain i get on standing or walkng which has greatly limited me. i get tired easily, and my limbs start to feel like lead after short periods of activity. balance is a big problem. the pn is still progressing in severity slowly for me.

Can't work anymore and retired
 

Hi , Well I'd been struggling into work with back pain for 15 yrs . I helped people with health problems to get into work . My staff were taken from me and had to do everything myself. Started with TMJD , Myofascial pain disorder as well . Than collapsed at work in great pain . Neuropathic facial pain started . Tried to continue as "I had my clients to help" told I needed to think of myself . That was true as things were getting worse and I really could not go on anymore. Don't know your circumstances but your health is the most precious thing we have or haven't . I should have left earlier before things got too bad. I now have to struggle to get up in the morning because I did not look after myself.

Hope things go well with you



Nick

I worked for over 30 yrs with my PN pain. But as I aged and passed 60 yrs old, I found that other factors, were the most decisive in my retiring.

When I found myself crying on the way to work, or on the way home, that is when I called it quits. Frustrations in my job were enormous, and I reached a point where my own sacrifices and dealing with my own pain, was enormous and more than the job itself.

So I decided to retire early. I didn't claim SS until I was 66. I was fortunate to have a husband still working, and that was a factor too. Our son was out of college finally and we examined our tax situation, and the pain/ etc did help me decide to retire.

Everyone has their own pain tolerance etc. I did not have medications to rely upon... so when my pain became too much for me and I was close to retirement anyway...I did it.

Thanks for this!
 

Hi,
Do you take Lyrica or Gabapentin or on a Viatmin regime. Did you ever go to Physical Therapy and take long walks to build up strength and endurance.

Thirteen years is a long time to have this monster condition. I noticed in the 8 months I have had it at times it's fine and plenty of times it's not especially at night. During the day when I am active it's is ok most of the time at the day wears on I start feeling the burning and numbness more and the hurt and my legs ache not everyday but throughout the week.

That is great it's is on a slow boat I hope I am that way too with the progression. I noticed lately my ankles feel numb maybe it's crawling up. However I was diagnosed with sensory polyneuropathy from feet to knee.

Thanks for sharing.:grouphug:
uglogirl aka Gloria

i dont take lyrica or gabapentin. tried them both but the side effects were too much. I am taking a few vitamins, among them, fish oil, r lipoic acid, benfotiamine, b complex, b12, acetyl l carnitine, and d3.
i used to take long walks of an hour or more with the dog mostly, but i just cant do it anymore. its not a matter of conditioning for me, my legs and arms just get very tired and heavy very fast. as an example today the chain broke on a ceiling fan. i had to put a new one on but could only keep my arms up for about 30 seconds at a time before i had to put them down again to rest. i did try physical therapy but it didnt help. the more i do in a day the worse the pain is.
no one knows how their pn will progress or if it will progress. it could stay the same or even improve. hopefully yours is one that stays the same or progresses very slowly.

Hey there Wolbachc :)