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Old 06-04-2014, 01:17 PM #1
Pixel22 Pixel22 is offline
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Default EMG Test Experiences?

I looked in the search box for this and I didn't find much about this test. My Neurologist called to follow up with me today. Since my numbness, tingling and pain seems to be progressing rather quickly, she suggested doing an EMG. I'm not at all sure what this test is supposed to do and from a google search it appears it is quite painful. I'm just not sure I want to have anymore poking and prodding done at the moment, and it appears some people claim it worsens their symptoms. I really don't want to make matters worse. How painful is this test?
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Old 06-04-2014, 02:00 PM #2
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Here is one site concerning EMG/NCV testing.

http://www.hopkinsmedicine.org/healt...emg_92,P07656/

The test may or may not be painful. Sometimes, it depends on who is administering it. Let them know if it is painful.

I will never have another EMG/NCV test. I do not have to in my case as it is mostly for the benefit of the doctor. I know that CMT is progressing as it does and I do not need another test to tell me that. A top CMT neurologist told my support group this as well. It was painful for me. However, I cannot see that it would make matters worse. Just my experience. I know others who have had it are fine and for some others it was painful.
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Old 06-04-2014, 02:41 PM #3
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Hi Pixel22,

Like Kitt said, an NCS/EMG is different for different people. Personally, I did not find it "painful" but there are some moments of some minor discomfort. The best way I can describe the NCS is sort of like when you touch something in winter time and get that little static electricity zap. Not necessarily "fun" but for me, I would not term it as "painful". Well, maybe a little bit when they do the sustained repeated zaps at the same site. The EMG test was actually much easier for me than the NCS. There was only ONE needle insertion that "hurt". It was for a deep muscle and the doc was having trouble getting the needle placed in the right spot. All the other needles were completely painless. I did find a little bit of difference when performed by a different doctor, (I have had the testing done several times by different docs) but not much so I guess it may vary by whom is performing the test.

I was very apprehensive before the first time as I really did not know what to expect. I had heard some horror stories and had read some things on the internet. I was very surprised that it was nothing like I had feared. If my fears had been realized, I would not have had any of the subsequent testing done.

Keep in mind that was MY experiences. Not everyone has the same experience and there are many factors that may account for differences in opinions on how unpleasant or painful the test may be for each individual. Some people may have conditions that would make the test more painful than it is for another with a different condition. Maybe I was just lucky or maybe I just had really good neuros performing the testing. I always had a neuro doing the testing, never a technician. In fact, until I read some things online, I did not know anyone other than a neuro performed these tests. That could be a factor, too.

Bottom line, don't get too worked up about it. The unknown is the really scary part. It may be a cake walk for you or you could find it a bit painful but until you experience it, no one can tell you exactly how YOU will feel. As I said, I did not find it bad at all. I have had other procedures that were much worse.
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Old 06-04-2014, 03:55 PM #4
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We've had good threads on this in the past; I'm not finding the one I'm thinking of—"emg" is too short for the search engine, and I can't recall any other search criteria/terms.

I agree with the others; apprehension & fear are your nemeses here—not the test itself. When we get startled by the "zap", there's a tendency to think of it as painful—when it's really just a little... unnerving.

When it's over, treat yourself to something fattening.

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Old 06-04-2014, 04:40 PM #5
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I guess we can all put up with some discomfort if it leads to a better diagnosis. I guess that's where I am confused. She told me I had PN and I mentioned to her that since I saw her last, it's moved to my hands. It sounds like many people have that, so I'm unsure of what she's looking for now. Painful or not, I wish I knew why we are doing the test and what we are looking for. I think I would prefer a pedicure and call it a day.
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Old 06-04-2014, 04:45 PM #6
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Just a thought. It might be a good idea to ask her what she is looking for.
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Old 06-05-2014, 12:17 AM #7
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Quote:
Originally Posted by Pixel22 View Post
I guess we can all put up with some discomfort if it leads to a better diagnosis. I guess that's where I am confused. She told me I had PN and I mentioned to her that since I saw her last, it's moved to my hands. It sounds like many people have that, so I'm unsure of what she's looking for now. Painful or not, I wish I knew why we are doing the test and what we are looking for. I think I would prefer a pedicure and call it a day.
My PN is like that, progressing to hands and arms. I also have the pins and needle feeling on my upper back, kind of like the sunburn feeling. I have almost two months before my nerve study, so I can hear if you survived..
I would think the nerve conduction is for gauging how damaged the large fiber electrical system is doing... We call it I. The electrical field as a "high resistant connection", so if the myelin sheath is damaged, it will slow down the signal. To bad they can't re-wire us yet...
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Old 06-05-2014, 10:34 AM #8
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I wish I knew why we are doing the test and what we are looking for.
Have you asked your doctor? For whatever reasons, some doctors are remiss in volunteering information, but will explain things if asked. Those are perfectly reasonable questions, and I don't know of any reason why your doctor wouldn't give you a candid answer.

In this group, we're somewhat familiar with that test & why it's done, and it does have to do with honing in on diagnosis. Unfortunately, that doesn't always result in better/different treatment options.

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Old 06-05-2014, 11:05 AM #9
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Well that makes some sense. I guess I always hesitate to "bother" them. I'm going to call and ask why we are doing it and if it is really necessary at this point or if we can take a wait and see approach. I've done lots of different tests in my life and it's not that I here it is painful that I'm hesitating, it is more that if it really isn't going to show us anything, why do it? Thanks. I'll give the office a call.
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Old 06-05-2014, 12:30 PM #10
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i have had quite a few emg/ncs's over the last 11 years and while i wouldnt describe it as pleasurable, for me it was never a very painful experience. i wouldnt hesitate to get another one. for me its the only test that has ever come out positive. the fact that i have large fiber axonal peripheral neuropathy with demylelination. by doing them over the years i have been able to chart the spread and the degree of my pn. it has gone from mild-moderate in my legs and feet to severe and is now moderate in my hands. there is a reason i am keeping track of this that applies in my case due to the circumstances of my exposure to toxins that wont apply to you so you wont have so many done.
reasons for doing the tests, it establishes that you have long fiber peripheral neuropathy in case you ever need to apply for disability down the road. it also is used to determine the areas affected as well as degree of damage and wether it is primarily axonal damage or damage to the myelin sheath. this will help to narrow down possible causes and suggest other possible testing that needs to be done. the tests can also determine wether your problems are being caused by your back or nerve impingement from the spine.

the needles being referred to for the emg portion are very thin needles and most likely wont be even felt in most of the tested places on your body.
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