[Dutchgirl]

Dear everyone with neuropathy,

I've been reading your posts on this forum for a while now and thought it would be time to post my story. My diagnose is not yet complete, but it is very likely that I have small fibre neuropathy. The emg was all right, but I have typical nerve symptoms (burning, pins and needles, and some kind of dull pain) everywhere in my body, mostly in buttocks and legs/feet. It's unbelievable, one year ago, I was (seemed?) a strong healthy young woman, now I have these symptoms which make me feel absolutely desperate. The weardest thing is, how these symptoms developed. It all started with a treatment for a hemorrhoid!! I got injected with aethoxysclerol (according to the "doctor"...) and immediately after that, I felt stinging near my tailbone. This went on for a couple of weeks, than became less, but later the stinging en burning spread to my buttocks en after that, in a couple of days, I felt stinging everywhere in my body. I know for sure that the injection was the trigger of the disease. To make my point more powerful: another patient of the "doctor" who got the same treatment, developed also a complex pattern of nerve symptoms!

I have two hypotheses about the development of this disease:
1) A nerve was hit by the injection and got inflamed. The inflammation spread to the rest of the body (like an autoimmune response of the body to an operation). (See e.g. the article of Mayo Clinic "Inflammation causes some postsurgical neuropathies")
2) A nerve was hit by the injection and the wrong fluid or more fluid than is allowed was injected. I was kind of "poisoned".

What I'm sure about, is that a nerve was hit. The injection hurt and it's not supposed to be in this kind of treatment.

But what now? Does anyone see logic in these two hypotheses?

All the best