Hello everyone.

I've been a bit of a lurker over the past year but not really taken the time to register and post anything. Apologize in advance for what I'm sure is going to be a long post I've enjoyed reading through so many of your posts, and now as my issues have progressed, I've decided I am going to need some additional help. Hoping that many of you that have already been going through this can help direct me.

I have been dealing with what my neuro is calling an "idiopathic progressive polyneuropathy" for nearly 3 years now. It began 2.5 years ago and started with numbness and tingling in my hands and arm pain. Diagnoses at that time was bilateral ulnar nerve injury after a fall. NCS indicated mild ulnar nerve problem. Ortho didn't recommend surgery as it didn't present as something which surgery would help.

Over the next year or so, my symptoms worsened significantly. The arm problems were much worse and I began to have issues with both of my legs and feet and the right side of my face. As things worsened, I finally convinced the neuro to do another NCS which suggested a progressing neuropathy to include what is now moderate findings with the ulnar nerves and mild findings with the legs. Not sure if the right side of my face is the same problem or something entirely different. I have issues on the right side of my tongue now as well. I also have issues with Gastroparesis and digestive issues(failed one emptying study and passed one) that are now a huge problem to go along with the pain, numbness, tingling in my hands, arms, feet, legs and face. It now feels like the face issue might be progressing to include both sides as I've had some unusual feelings in the left lower lip lately.

Idiopathic reasons are not very comforting but I realize I might never really know what is causing this. Of course, I'd like to find out, if possible, so I could potentially stop this from getting worse. My hands and right side of face now have involuntary movements as part of the problem. The only thing that has shown up on my exhaustive list of blood work and imaging studies (MRI's and CT's of brain and cervical region) is a mildly high fasting blood glucose (I think it was 94) and failed glucose tolerance test (within points of a normal high limit). My endo is not very concerned with it. Medications haven't done very much in the way of relief (lyrica was most recent attempt).

I apologize for the very long post. If anyone has thoughts on what this could be, suggestions for future testing or any type of input, I'd greatly appreciate it!!! Thank you