hello there, just came back into the NeuoTalk forum and noticed your post.
are you indicating PN as Peripheral Neuropathy or Pain....I have been waiting for a diagnosis since 2012...MS is still up in the air...when they did my EMG and Nerve conduc. studies....there was a small finding in my right calf and butt ...that was one year ago....I have had everything from fasciculations, cramps, spasms, foot and leg drag...tingling and numbness in tops of my feet and hands...now going up my legs.....the past few weeks, I see my neurologist every 3 months since. nov.2012...I next see him in august...how long did you wait for a diagnosis.
do you use a walker ? ...as far as..medication....I have tried them all, gabapentin/amytripelene...with a plant food diet only....I lost 16 pounds in two weeks, but I found the drugs to strong...and couldn't stay on that food plan..and yes...lyrica ....gave me carb. cravings ! bread bread bread ...I stopped it...also, Cymbalta...gave me the same reaction...now I only use Tylenol Arthritis , heating pad and I keep a 'hot' water bottle...'filled and frozen' in my freezer at all times......hope you keep well , I know its hard!

Recently I have had increase pain in my left leg and muscle spasms.

Its to the point where I want to cut the leg off.

Neurontin and ultram have not been as effective as they once have been.

Stretching and exercise have helped but when resting it comes back with a vengence.

My leg will spasm up to my waist when sitting and the leg will have me fall if it gets fatigued from walking.

In a no win situation.

I take neurontin and ultram with a tylenol chaser every six hours to keep the pain at bay.

My pcp can give me stronger meds, but I would rather find another way if I can.

My leg has had PN since 2009, I need a knee replacement, been diagnosed with RRMS and OA. My chiropractor visits have increased to two x a month and I have recently started with a licensed massage therapist.

I have changed my diet and removed myself from pop as it has sucralose in it.

I know that I am over 50 and I have a very high tolerance of pain. I have lived with this for a long time and its now not livable or tolerable anymore.

Neuro and pcp agree that going on a stronger maintenance drug could be my next step.

Any suggestions on how to live with chronic pain. Hubby is not as understanding as he once was as I am cranky more than ever, lol.

But I am nervous about any new meds

Hello terig,

PN as in Periphrial Neuropathy but I have pain with it also.

Dx for PN was in 1999, RRMS in 2012, OA since I was 35.

Pain has been a life long friend it seems. But its a friend that I would like to kick to the curb, lol.

Praying that you find relief soon.

PCP and neuro are talking about baclofen for the spasms and for the increased pain oxycodone.

I have noticed though my sleep has been off a bit. Not getting the 8 hours like I should. I wonder if the isn't a factor.

I was "unofficially" referred to myofascial trigger point therapy by a pain management clinic. The therapist we found is certified, and an instructor, and I urge folks to seek certified therapists; their education/training is in the hundreds of hrs (vs. hrs or tens of hrs for PTs & other types who claim they know/do the therapy—IME they don't, and can sometimes do more harm than good.)

After a couple of sessions, she told us it didn't make sense for us to keep paying her for what she could teach us to do at home for ourselves. It's rare to find a professional with that kind of candor/integrity.

Doc