NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)
-   -   Help! (https://www.neurotalk.org/peripheral-neuropathy/20790-help.html)

nide44 05-31-2007 08:42 AM

You probably have a multiple issue here, jak.
PN being a significant contributing factor.
One that will probably be difficult to Dx and will give you conflicting Dx's from each specialist you see. You really, probably have PN along with whatever else.
Acceptance plays a major role in treeating PN effectively,. Until you 'give in' to the fact you have it, it is chronic, will be with you for life..... until a 'cure' is found, and actively seek proper treatment...... (with over 75 differenbt meds currently used singly or in combibation to reduce symproms and pain)- you will be fighting with yourself and will not be able to come to grips with your PN.
Notice I said reduce, not make go away. The degree of reduction is the effect of which meds and which treatments work best for you.
It differs with each of us.
We must seaarch to find it.....acceptance keeps us on the search path, and eventually we find that happy medium of paiin and symptom relief.
But remember.....it never goes away 100%.
We live with it daily. It is difficult for doctors to understand and empathize with, much less friends or spouses. That's why we come here.
Hopefully it allows us the acceptance to take the stress out and live more normal lives. the stress alone..... makes our PN much worse.

cyclelops 05-31-2007 10:22 AM

SI
 
"SI"sacroilliac" the liagmentous juncture or 'joint' between the sacrum and illiac bones of the pelvis.

daniella 05-31-2007 12:13 PM

For the mental part and not just for you but for others have you thought about a therapist. I have been in therapy for 12 years on and off for other issues. I will say it helps to feel less alone and work on coping mechanisms.

jakatak 05-31-2007 01:38 PM

Thanks
 
For all of the responses. The unfortunate aspect of my job leads me to deal directly with psychiatrists, psychologists and therapists on a pretty regular basis. I remember after suffering a panic attack several years ago, I went to the emergency room...this was before I was placed on SSRI's and went to a treatment group for depression/anxiety.....the clinical social worker was to evaluate my condition and determine what needed to be done. Well, after an hour of conversation, she thanked me for the advice I gave her on her dysfunctional marriage, and would take the steps I recommended in order to begin improving her lot in life. So much for an invervention. I, obviously have a difficult time, not only finding someone that I entrust with my mental health, I also work in an agency that makes it even more difficult to find someone that isn't connected to our department in some way. I am concerned, also, about signing a contract with my local HMO doctor for narcotics. Since this HMO is provided to our unit with our contract. The ebb and flow of my foot pain is so exasperating. I will be on Lyrica for a couple days and seem to notice an improvement, only to find that my feet will than begin to ache again. I will be off the meds, and doing okay, and blam!, the pain returns. This, along with my inner groin pain that is lancing in nature, and goes away as soon as I shift my body. Oh brother!

Chemar 05-31-2007 01:47 PM

Jack
have you ever been checked for a hernia re the groin pain?

I ask becasue my husband experienced intense, lancelike pain there that also changed with movement, and they discovered he was herniated and needed surgery to repair it

just a thought as I read your symptoms that it reminded me of what he had

Silverlady 05-31-2007 03:26 PM

uhoh!!
 
I am not sure I understand this. Did you say you will be off and on the Lyrica? Lyrica is one of the classes of drugs that has to be taken consistantly. You must keep a constant level of this in your blood for it to work. Are you just taking it in an on and off dosage?

Billye

jakatak 05-31-2007 03:43 PM

Regretably
 
I am.....I take it for a while and being type A.....not seeing any change in symptoms...I will think about the side effects...weight gain...and the fact that it is an anti-seizure med....and quit taking it. I'm just so leery about taking a med that hasn't conclusively pinpointed my problem.
As far as the hernia which was mentioned....a gp did suggest that it might be that. I don't recall doing any kind of lifting that created a strain or any pain. I also am not tender in that area, and it just doesn't seem logical...but what does these days.

glenntaj 05-31-2007 04:42 PM

jakatak--
 
--you may be inadvertantly contributing to your pain rebounding by going up and down on the Lyrica dosage.

All of the anti-epileptic drugs, such as Lyrica, should be titrated up and down somewhat slowly, so that oen does not get rebound effects due to upregulation. As Billye says, these drugs need to be at a farily constant level to work effectively (if they will work for an individual); suddenly dropping the dose can result in fairly significant symptom uptick as the body, which has upregulated its signalling rate due to the presence of the med, now has no med, or significantly reduced amounts of it, to react against. It's pretty much the same mechanism that happens with a lot of other drugs, even caffeine--stopping them or greatly reducing them suddenly tends to cause symptom recapitulation.

If you don't think the Lyrica is helping, you would probably want to work with your physicans to work out a schedule of gradual reduction, to give the body time to react more smoothly and to prevent rebound symptoms.

I know from my own experience, as I've gradually been reducing my Gabapentin, that if I make too big a drop and/or go off schedule for several hours I will experience "flares". I am currently at 1600mg/day, down from 2400/mg day ten months ago; I am searching for the minimal level to keep symptoms tolerable, but when I do drop, I drop 100mg at a time and observe my reaction to that level for days.

Silverlady 05-31-2007 05:36 PM

Totally agree
 
I totally agree with Glenn. You are making yourself worse. If you decide to totally stop do it gradually or make up your mind to take them. Stopping gradually gives your nervous system time to learn to do without the med. Work with your doctor in doing this. If you don't want this med, try another one, but really give it a try before you decide it doesn't work.

Billye

shiney sue 05-31-2007 06:14 PM

Yes
 
I have to agree as well. Jack i had to be downtown today and wondered
into the Birkenstock Shop and they did have Dress shoes. You may
want to look at these for Court. They cost, but in MN. you would
have more places to look. Being type A can be exhausting,as you well
know. Nice of you to help out the therapist though,i love that,bad
for you but may change her like forever. My Psychiatrist for the last
5 yrs. was going through divorce and had 6 young sons,at first i found
myself patting her on the back,saying it's going to be ok!! :)
And it was,and i would hate to loose her. I'm glad you posted again,and
try the meds.a little at a time but not off and on,defeats the purpose.
:hug: :hug: Sue


All times are GMT -5. The time now is 03:30 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.