[bckay1]

I am burning all over. It starts in my mouth and tongue. Travels down my torso and goes into my crotch. I am on a total of 600 gabapentin and have no idea if it is helping. I burn everyday starting about 1 or 2 pm.
The only help is using sublingual Ambian which knocks me out. I have been on everything you can think of and all I got were side effects.

My neurologist says there is no cure for neuropathy. I am borderline diabetic not taking meds

Is anyone getting help from gabapentin?
Carol

[Dr. Smith]

Hi Carol,

I test negative for diabetes, but my body (PN) behaves as if I were. R-Lipoic Acid (RLA) stopped my burning (feet & lower legs) within a couple days. This is unusually quick for this supplement; it can take up to a month or two to work (if it does). RLA is also helpful for Burning Mouth Syndrome (BMS).

r lipoic acid for peripheral neuropathy

r lipoic acid for burning mouth syndrome

If it can't hurt to try it, then it can't hurt to try it.

Doc

[Sallysblooms]

What supplements do you take? Do you have a doctor that would understand how to help with nutrition and supplements? Integrative MD's?


If your doctor can't help, keep looking for another.

[bckay1]

Originally Posted by Sallysblooms

What supplements do you take? Do you have a doctor that would understand how to help with nutrition and supplements? Integrative MD's?


If your doctor can't help, keep looking for another.

I tried alpha lipoid acid for months. It was just another pill to swallow and I didn't feel any different. I'm on 300 gabapentin 2x a day.

[Jon_sparky]

My Rheumy is having me try 1500 mg ALA a day, so far no change in the PN pain. You have to swallow a lot more pills when you are going the nutritional approach...

[beatle]

Originally Posted by Jon_sparky

You have to swallow a lot more pills when you are going the nutritional approach...

Ain't that the truth!

[uglogirl]

Originally Posted by bckay1

I am burning all over. It starts in my mouth and tongue. Travels down my torso and goes into my crotch. I am on a total of 600 gabapentin and have no idea if it is helping. I burn everyday starting about 1 or 2 pm.
The only help is using sublingual Ambian which knocks me out. I have been on everything you can think of and all I got were side effects.

My neurologist says there is no cure for neuropathy. I am borderline diabetic not taking meds

Is anyone getting help from gabapentin?
Carol

Hi Carol,
How long have you had the burning sensation. I was diagnosed in Oct 2013 I am a diabetic 11 and have a team of doctors. I take Lyrica twice a day, have a compound cream, and compound vitamin B's that were prescribed from my pain management Doctor. I also take the Alpha Lipoic Acid and other vitamins.

It is a misery but I found what cause it to flair the better off I was and am.

As long as my sugar is between 80 and 100 I hardly feel anything. I just spent 2 weeks almost with the exception of small discomfort pain free.

This was until I was going through a very stressful period and had an Apple maple Mega Muffin. Now I have the burning, legs ache, feet numb the whole nine yards. For me it's staying away from carbs that makes a hugh difference.

Neuropathy may a chronic disease but you don't have to suffer every day with it.

Just get the right Team of Doctors.

[uglogirl]

Originally Posted by uglogirl

Hi Carol,
How long have you had the burning sensation. I was diagnosed in Oct 2013 I am a diabetic 11 and have a team of doctors. I take Lyrica twice a day, have a compound cream, and compound vitamin B's that were prescribed from my pain management Doctor. I also take the Alpha Lipoic Acid and other vitamins.

It is a misery but I found what cause it to flair the better off I was and am.

As long as my sugar is between 80 and 100 I hardly feel anything. I just spent 2 weeks almost with the exception of small discomfort pain free.

This was until I was going through a very stressful period and had an Apple maple Mega Muffin. Now I have the burning, legs ache, feet numb the whole nine yards. For me it's staying away from carbs that makes a hugh difference.

Neuropathy may a chronic disease but you don't have to suffer every day with it.

Just get the right Team of Doctors.

Just that term of saying there is no cure for Neuropathy would make me forget that Doctor. It can be controlled. Gabapentin did not work for me I am on Lyrica but its Lyrica and a regime that is followed.

[Dr. Smith]

Originally Posted by bckay1

I tried alpha lipoid acid for months. It was just another pill to swallow and I didn't feel any different.

Originally Posted by Jon_sparky

My Rheumy is having me try 1500 mg ALA a day, so far no change in the PN pain. You have to swallow a lot more pills when you are going the nutritional approach...

Ok, I didn't say ALA—I said RLA, and the stabilized form at that, which is better absorbed/assimilated than ALA.

What's the difference?

rla vs ala

ALA can go bad; it's much more difficult for stabilized RLA to decompose/go bad.

100 mg. of stabilized RLA is equivalent to ~600 mg of ALA.

It's also a cuss of a good antioxidant.

B5 (pantothenic acid) can further enhance the effects of ALA or RLA.
A new combination for treating polyneuropathy.

While RLA stopped the burning pain from my PN, B5 reduced the rude jabs & zaps.

But perhaps most importantly, RLA has worked for some where ALA has not, just as pregabalin has worked (better) for some where gabapentin has not (or has stopped).

More pills to take/try? Tell me about it. I try to try something new every few months to see if I can find something else that will help. One at a time so I know what works & what doesn't (and so I don't go broke all at once!) Some things help—most don't, so I drop those and try another.

If you've tried stabilized RLA and it hasn't worked, I'm sorry. If you've only tried ALA, I think it's still worth a try—it can't hurt, there's nothing to lose, and possibly something to gain.

Doc

[bckay1]

I was diagnosed with idiopathic neuropathy. I have gone thru lyrica ,gabapentin and am now trying gralise as each pill I swallow triggers my burning. I have been to Mayo. They had no clue. This has been going on for over 6 years. I now start burning at 9 am. The only thing that helps is sublingual Ambian which puts me to sleep. Sometimes when I wake up the burning is gone. When I wake up in the middle of the night I am fine until early am. Go figure