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09-04-2014, 02:49 PM | #1 | ||
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I have been diagnosed with small fiber peripheral neuropathy and I take cymbalta which seems to help a bit. I also have RLS which at times is worse than the burning and pain because it really interferes with any kind of ready. Does anyone else have both and did they begin at the same time? I had mild RLS until I was diagnosed with PN now it is so much worse.
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09-04-2014, 03:55 PM | #2 | ||
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Grand Magnate
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Welcome mrsz.
Someone will be along to help.
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"Thanks for this!" says: | Lara (09-05-2014) |
09-05-2014, 03:39 AM | #3 | ||
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"Thanks for this!" says: | Lara (09-05-2014) |
09-05-2014, 08:13 AM | #4 | ||
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I have had restless legs since I was a child, it can accompany hereditary neuropathy, (Charcot Marie Tooth- CMT). My neuropathy is pretty far advanced now, at 52, but my symptoms in childhood were clumsiness, inability to run, poor balance. Numbness started in my early 30's and is moving into my thighs. Do you have any idea what caused your neuropathy? Does anyone in your family have it? Are you experiencing muscle weakness?
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"Thanks for this!" says: | mrsz (09-06-2014) |
09-06-2014, 07:04 AM | #5 | ||
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"Thanks for this!" says: | Susanne C. (09-06-2014) |
09-06-2014, 08:43 AM | #6 | ||
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I wasn't actually part of their family, so I had no idea until I was 47 and the podiatrist said he couldn't continue to treat me until I went to a neurologist- I had a serious staph infection in my foot with no feeling at all- he didn't even have to numb it to cut away the surrounding tissue. Because of the specific muscles that atrophy with CMT, stairs are our nemesis. I keep clothes downstairs to limit my trips to once or twice per day, and I crawl up. Even slight hills are very difficult and painful. I still enjoy walking in he woods but it is very flat where we live on the east coast. I use two hiking poles. For stopping and starting destinations where there is any amount of standing like museums or airports we use a wheelchair. It is progressive and there is no real treatment but there are things you can do to make life easier. I also have arthritis of the spine, hips, and knees, so completely understand. |
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09-06-2014, 11:18 AM | #7 | ||
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Do you take ropinerole for your RLS? I feel like I am suddenly on so much medication. |
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09-05-2014, 02:51 PM | #8 | ||
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I believe there are other medicines out there for restless leg that you should ask your dr.about or the pharmacist, who can give you suggestions to ask your dr.about. Also, have read that low iron can be a cause of restless leg. But, please, don't start taking iron pills until you have your levels checked. Iron can cause bad constipation and it take a very long time for it to build up in your body. The best advice is to do your homework on SFN, restless leg and talk with your neurologist. You are your own best friend and advocate to feel better. |
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09-05-2014, 05:34 PM | #9 | |||
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Wisest Elder Ever
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SSRI and SNRIs can mke restless legs worse.
This is due to their negative effects on dopamine in The brain. Google "SSRI drugs movement disorder" and you will Find these explanations. Time on the drug is typically 6 months Or so before the movement problems arise. They start in the Face and neck and in some patients may cause leg cramps Or restless legs.
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09-08-2014, 06:43 PM | #10 | |||
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I had the RLS years before I was diagnosed with PN. It seems it often goes hand in hand. It's miserable isn't it?
Ultram helps and for times when the Ultram isn't enough I have Mirapex. Normally Mirapex is taken on a schedule and must be titrated going on and weaned off of. But for me I take half a pill of the starting dose and I have relief within a half hour. I know it doesn't work for everyone but it's worth a try. Gabapentin (generic Neurontin) helped with it when I first started taking it. Then they doubled my dose and I became suicidal. I stopped taking it cold turkey and within about 4 days I felt better again. They won't give me Lyrica because it's a related drug.
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